Jump to content

caroles

Members
  • Content Count

    20
  • Joined

  • Last visited

About caroles

  • Rank
    Salisbury Hill
  1. Can you get d.l.a mobility for under 5,we get care allowance only,I though you only can get mobility if over 5,It's what it said in my son forms I think,as he can not walk outside ,uses a Kaye walker as poor balance ,and can not manage with the walker in uneven floor either ,only in flat surfaces,he got sensory issues to,and gets tamtrums,can not process what he sees around him,so I have to guide him,hold his walker,he has not peripherial vision either,he gets easy distractted with anything and has sensory difficulties,keeps moving his head,etc.He moves a bit much better at home as he know where everything is ,but in classroom,outside etc needs to hold hands ,and if uneven,most of the streets are ,he drops,the floor need to be flat like inside the house,them he is a bit better,He can not walk outside our house ,garden ,or street .He walks with his walker in football playground,and places like that ,but I have to get him there in the Major Buggy,he can not manage the stairs,sit by himself in adult chair as wobbly,he has a potty chair from O.T as can not sit in toilet either ,and he can not sit in bath unless I hold his back,I think the form says said that only gets d.l.a. under 5 if can not move at all.or is umputated.Are the disability allowance mobility for children like my son,or they have to be worse like not be able to move at all,his I.Q is normal.but his visual processing is really bad,he would not realized where people,furniture,toys,is unless he has been in there lots of times and things always stay the same .otherwise he meeds to bein his buggy, holding his walker ,or holding his hands .
  2. I think you should take your son to nursery,my son can't walk properly,and needs help holding hands,etc,sometimes he moves crawling,no other children get bad habits ,the may play for a little while coping him,but no child stop walking because for it.Anyway your boy got a one to one so she should deal with it.My son is in mainstrain school .
  3. Don't think you are a bad person,or abnormal,or anything like that. you are becaming really worry about your friend and everybody keep going about it,and anxious,Hope they don't want to change you,because you are what you are,is part of your personality,being different is o.k too, I mean hope they are not 24/7 telling you you got aspergers,need to solve yourself out,because is not right,you are the same person that before,with aspergers or not.You could go to G.P and have a good talk about it,maybe get referred to someone with an understanding of aspergers,it may help you to talk about how do you feel about it,when you don't feel confortable near people,outside,etc,and take it from there,I like spinning objects too,little ball,coins ,etc and it feels good,but do it indoor only,they relaxed people under stress,like chewing objects,etc but I always notice when I do these things,and not in social situations I once thought why my child when under stress keep nodding his head,spinning,he has sensory problems,not autism,sensory overload,anyway have you try doing that with your head,nodding spinning,after a while is like being in some kind of drugs, is really a stimulation,and feels good,but is still unaceptable in public for an adult,same many other odd thing,is just getting the balance right ,between what you want,are happy with,and what is aceptable in the outside world,outdoors ,In your home,as soon as you are not hurting anyone they should just accept your odities,and just try to get the balance right,you can not change you way ,the way you have lived for the last 23 years ,that is the way you are your personality,and I bet you have to cope with your friends annoying habits,too,.
  4. It's all this affecting your life really badly?Are you able to keep a job,etc, It may be Aspergers or obsesive compulsive disorder,or deppression ,but you need to be assess first.Instead of going to the G.P saying all the odds things you do,as he is no going to take notice,hope you don't get upset,but he may thing you just read to much about aspergers,as you are just describing asperger syntoms and not how they are affecting your life,You can take your friend for support,if she wants to,G.P.make listen to her better,as she can probably explain exactly how this affects your life,maybe if you seem insolated,unhappy,not able to work because for alteration of routines,and poor communication,but you ,and your friend,or and advocate make have to be more clear about how your life is affected ,with lots of examples of daily thing that happen ,and how at change in your routine that day,etc has left sobbing you for hours,or when that party you could cope,or when you when to that supermarket with your friend all the things that happen ,if you can not go shopping,etc,who does the shopping for you?Who help you when a routine changes and you start crying,Do you go outside at all,or just always stay indoors,your friend,or someone that know you well can help you with all of that,as I think you may have a problem explaining how you feel ,how your life is affected and in realising that you actually have a problem.You need a diagnosis to whatever problem you got,so in one day you want a family,a relationship,etc,you are able to cope properly,as the world can not always be the way we want it,and routines keep changing all the time in the real world
  5. caroles

    Confused

    Maybe that paedatrician is newly qualified,really nasty doctor thought. Would be a good idea to have the test ,if only for taking away youur worries. IF IS CREATINE KINASE test is just a blood test.,they would not do another test unless the creatine kinase is high or very high. Has your child always tip toes? many autistic kids tip-toes ,but with muscular dystrophy ,they start later .
  6. I think that for sure the son-rise program is not good,specially the having to be all that time in a room,but saying that a learner needs an enviroment full of materials Is not always true,for children with sensory problems,concentrate in the activity that is going to be done,only materials /toys for the activity or play time,and not having all the toys out at the same time is so important,some children would have problems with processing visual information,and the more materials,stimulus around them,the more difficult to make sense of all. It's true that learners need an enviroment full of materials,but some autistic children have sensory problems,visual ,tactil,noise,etc, My son ,has sensory problems,he is not autistic,but face same problems with sensory input,when he moves about he processed little information of what is around him,people,furniture,materials,and the more thing around him the more difficult it becames for him to funtion,if less things around him,quite and calm enviroment,making him aware of what is around him,etc he can manage so much better,when to much stimulation ,specially to much noise,he will change completly,not listen,not eye contact ,not aware of people around him,talking to him,spinning,head banging,trowing himself against walls,just because there is to much noise ,to much stimulos. He is not autistic thought,in a quite enviromment he is social,friendly,can understand feelings ,emotions,and is emotionally mature for his age.If promted about what is around him,like@carefull a bin in frnt of you,or people turn around,etc,he is o.k too. My son can talk quite well,but visually he can't recognized familiar faces if outside,within lots pf people,he can't recognized between something moving,staying still,like when cars are park and he thinks that he has to stop crossing because the car is coming,don't know what is around him unless promted ,everyday things furniture,lampost,etc,all is comfusing,doors,the lot,if you tell him he is going to bump into a wall he would move away,because he was a normal kid before and know what I mean,when I says a wall he has a image in his brain about it because he was O.K before. But if a child has that problems since they are born,the world would be so confussing for them and difficult to understand,would not be able to talk and explain what they see,hear,etc, their eyes,ears,etc work O.K but the brain interpratation of that is distorted ,they can not make sense of what is around them ,
  7. IT's clear they are doing it for the money,as is so expensive ,my son he has sensory problems and he learns the best when is quite and one thing at a time,but is not nice if the child hates it,and you are forcing the child,would be like being in prison I suppose,I think it depends on the child if is happy or not with it ,but 8 hours is just to much,maybe 2 hours a day,if the child enjoy it is o.k as it can be like playing,so the child can learn some form of communication,,as that willhelp i child enormously,sometimes the senses in the children are not working properly,dislike noises,can't make sense of what he sees ,hear,smell around them,and if they have little distraction no overload of the senses they can understand step by step,so some one to one is good but no in the same way,and starting at the child level is good,and trying to go a little step further,each time.
  8. Not long ago I watch a program in teachers t.v. ,about the program,the boy Jordan was called was profundly autistic and he really make a enormous progress in just 6 months ,but is true for what is was said involved putting the child in a room,with little things so the child no get overstimulated and starting at his level of learning,it was very spensive,the trip to America for a hole week in the centre was about 2000 ,or something like that,that boy maked a hugh progress just in that first week,so then they have to have a room,where only one adult at a time stays,and follow their method,in the U.K,they said it was 8 hours a day so they have to have voluntares every 4 hours ,or something.So the involvement is hugh ,make a room,the playroom,travel expensives to america,the centre fees,etc.and you have to have volunteers ready to work with your child too,is an intensive one to one.I think the program can work,specially for children with sensory overload,as that way they only take one little bit at a time and their senses don't became overload ,so they can start learning at their own peace,but I think that the centre is trying to make a profit out of it as is so expensive,.I can't remember what learning theories is based on,but they didn't invented it,althought they said they did,so if reading the theories,etc would be O.K using that approach without having to go there,or paying them as this not their invention
  9. I think before diagnosis children are just trying to fit in ,with everything,be like everyone else,so they are more withdraw and quite ,people take no notice ,see differences in passive children,so they are like everyone else. Afterwards the person ,realised that is the reason why is different and relaxed and becames more aspergers but at the same time it helps them to undrestand and knbow what they are,and feel more confident to do things and act in life,becames more active and less passive They still have the same difficulties in social interaction,etc but seems worse because they are more involved socially,
  10. caroles

    statements

    It seems special schools are better at delivering the statement ,or not? It's interesting as I think I hear that they are trying to integrate as many children as possible in mainstrain school,and close special shools,but if mainstrain shools can not deliver properly,and do what is recomend by the LEA specialist teachers ,O.T and profesionals What is going to happen with our children?.
  11. caroles

    statements

    I wonder how many people have problems,school not doing what is stated in the statement.
  12. IF he is happy that is great,but no everybody is happy,I mean one thing is that someone choose to be insolated and another is that someone that is insolated because he /she had no mechanisms to cope in the social world,and for that reason is unhappy ,frustated,anxious ,maybe depressed. This man is choosing what he wants to do,he don't seems confused and seems pretty confident is his choice and way of life,and very happy indeep and he thinks he speak for all the autistic people,what is not right as not everybody is like him. He don't want to socialize,autistic people can't socialize properly without help
  13. How aspergers or autism affect your child ,yourself and your family?It's anxiety a big issue in aspergers and why?My S. has depression and anxiety for years,and have all the problems of aspergers,
×
×
  • Create New...