Thankyou. Everything you say about socialising is so true of my husband; we just don't socialise anymore, although I'm beginning to have a social life of my own which he is fine with.
I think life could improve with a diagnosis and some guidance - has anyone found that a diagnosis helps? The specialists don't seem to understand why it's important to us (me more than him) for this condition to have a name as they say there is no cure, only management.
We've been trying to get a diagnosis for 3 years but just keep being told that although thery're sure that's what it is it's out of their field so we're refered on.
Is a diagnosis a good thing for the person with the condition or is it just an unhelpful label?
Sorry, I just have so many questions I need answers to.
Jimbo