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harmony

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About harmony

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  1. Well done to you! Think of all those amazing places you can go now, just hop in the car and you're off. congratulations Harmony
  2. harmony

    omg help

    Hi My daughter, with diagnosis of AS, dyspraxia and ADHD. Lies constantly, all day everyday! she is now 14, but this has been going on for years. I remember when she was small she told all my friends my husband and I were getting a divorce (100% not true) She lies about taking money from my purse, about having removed things from our room ( when I find items belonging to me under her bed) She makes up stories all the time, so I do understand where you are coming from. I don't think our children understand that lying can and will eventually get them into real trouble. It is almost like my daughter doesn't care if i acuse her of lying or not. If you find an answer do let me know, as I too am at a loss. Thoughts are with you Harmony
  3. Hi Just to say, My daughter is almost 14, was diagnosed with AS at 11/12 Although had an earlier diagnosis of dyspraxia. I do understand what you are going through. She was considerd too bright at certain things to be statemented??? Yet now she is behind and getting c/d grades. We have put her in to a small private school ( paying for it is a struggle) It has helped to a certain degree as class sizes are small, and she can't "hide" I find this age with girls is so hard, their AS symptoms seem to be magnified, and emotions can run high. It is hard to know what our children will do as they get older in this exam/test obsesed culture we live in, but AS children have been through a lot, and are quite oftern very resourceful. Maybe your daughter will not go on to A'levels, but maybe there is something greater for her around the corner. I really hope you find a solution, if you ever want a sympathetic here just post. love Harmony
  4. Kathryn, you are so right.I love what you say and agree 100% she is 14 and needs to grow up a bit, a lot actually. I have told her from now on when I find wet things she has to put them in the wash, hang them out to dry and put them away. I need to be a parent and prepare her for life, not a doormat who does everything for her. Perhaps if she is made to be responsible for her clothing/bedding she will at least try to keep them clean, and when she runs out of tights again, mine are off limmits!! Sometimes i think she uses her AS against me, and I feel so sorry for her I accept everything as part of her condition, and she ends up doing just what she feels comfortable with. She is such a sweetie really,and all my friends adore her, as she wants to know everything about them, their lives, their dreams. She always wants to be with me, and is so affectionate (overly) with all the family, but she lives in a world where good always wins, where she will always end up with what she wants, and where mummy and daddy will protect her from the big bad wolf. Life is tough, she needs to understand that..........watch this space, and thanks again, you said the words I couldn't quite. Harmonyx
  5. DD, AS, ADHD and Dyspraxia born at 36 weeks 72 hr labour, forceps delivery, and incomplete placenta DS (1) NT 39 weeks normal delivary DS (2) NT 37 weeks, induction after waters broke. Harmony
  6. Thank you all so much for your help. She certainly has sensory issues, and I think she actually likes the sensation of warm/wet. we are being referd to a peadiatric urinary consultant (didn't know there was such a thing) It seems strange for a teenager, who is as tall as me and "borrows" my clothes (then pees in them) to have such issues, but that is AS for you. Also didn't know we could get any financial help with this so will look in to that one Thanks again Harmony
  7. Hi Havn't been on for about a year.......life flies by My DD is now almost 14 AS, ADHD and Dyspraxia. Life with an AS teen is challenging to say the least. The last time I posted we were having trouble with DD wetting day and night, and now it has got totally out of control! we have seen doctors,consultants incontinence nurses etc etc. 3 mattresses in a year, and 4 duvets. When she wets which is almost daily, (unless desmotabs have been rememberd, which are oftern forgottern) She hides her wet sheets, pants p'j's etc around the house, have found them in some very odd places but never the washing machine, our house smells terrible. My daughter doesn't give a damn. She is not daft she knows what she is doing, but can't stop. She will not wear incontinence pads, or use plastic sheeting and would rather be wet. Likewise her hygine during her periods is quite appaling. I can't invite anyone over incase the smell is too dreadful, or incase she has left dirty knickers on the bathroom floor. I work almost full time,and have two younger boys to look after, and this is really getting me down. When I read posts about mums with 7 and 8 yr olds still wetting at night and finding it hard, I wonder how they will cope if their child is still doing it at 14. None of my friends knows my daughter does this she has asked me not to tell anyone as she is deep down embarresed. After school her pants are wet everyday and all her clothes are rotting. Please help!!!! I am drowning in a sea of wee..... advice much appreciated Regards Harmony
  8. harmony

    Hello again

    Hello I havn't visited the forum for about 6 months, life just took over. It is good to be back though as having a nightmare with my DD aged 13 diagnosed with dyspraxia aged 6, ADHD and AS 2 years ago. Her bedwetting is constant. Everyday! and she will not wear pull-ups, and removes plastic sheet. She has also started eating weird foods in her room. horse raddish, Mayo, flour choclate powder to name a few. She then hides the evidence in with her clothes.... Her periods have started, and that is proving unpleasant.(I won't go into details here) In general I manage but with 2 other children and an almost full time job life can be full on. It will be good to chat again with you all, as I know you understand. Harmonyx
  9. Just want to empathise, DD 13 Smells like a drain...or worse!! I told her so this A.m, I am her mother I lover her so I felt it was my duty to tell her she stinks. She hasn't washed her hair for a week, her teeth hardly ever see a toothbrush, and she wears the same clothes in the day as she wears to bed, (despite having loads of p.j's) I can't talk underwear.... not nice. Let's hope they grow out of it, otherwise I will need a peg for my nose.....soon!
  10. Absoloutly yes DD now 13 her very first word aged 12 months was cardigan! followed by babygrow, then trousers!! strange but 100% true. Her vocab is unreal, she ran out of English words (her words not mine) and now her French and Spanish vocab are better than some A'level students. She talks fluently and confidently with adults, but can't cope with her peers. DD is so immature in so many ways, still soft toys, bath toys and little girl dresses (hates jeans) while her class mates are in to make up and boys! Perhaps I should count my lucky stars she doesn't want to hang out at the shopping center or go to Mcdonalds, or heaven forbid talk to boys! harmony x
  11. Insightfulness 86! that is very interesting, will have to get hubby to do it, but knowing him he will insightfully lie when he answers harmony x
  12. Really interesting discussion, I think we must have just struck lucky with our diagnosis. Had "issues" with daughter for years. She was diagnosed with dispraxia at 5 or 6, we spent the next 6 years dealing with the clumsiness, the obsessions, the innapropriate behaviours, bladder problems, eating problems, innability to understand the world around her. We delt with the meltdowns, the stress, the falling over, the short attention span, the innability to understand concepts such as personal space. As you all know the list is endless.We did not return to our GP for 6 years, as we didn't think there was anything anyone could do, it was our lot, and our daughters, and we just thought we had to get on and deal with it. The only reason we went to GP this year was that DD's wetting was getting out of control, when the GP asked if we had any other problems I listed about 20 things that were hard to deal with. We had private medical insurance, so a couple of days later we had an appt with a consultant paed, who is well known in the field of AS. Within 20 mins we had a diagnosis of AS and ADHD. This diagnosis has been accepted without any issue by our NHS GP and by the school. DD has some one2one support at school. Having a diagnosis hasn't changed anything except that I now know as does DD that her behaviour and habbits are part of this condition and that she is ultra special and may need more help than others with certain things throughout her life. She feels sadly it is a stigma so will not let me tell anyone, but at 13 it is her choice, and if she wants to tell people that is up to her not me. At least with a firm diagnosis I know what I am dealing with, for me it has been a blessing. Just thought I would tell you our experience. Good luck Harmony
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