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zenemu

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About zenemu

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    Manchester
  1. zenemu

    Tribunal forms

    Hi Carol, My Partner works for the Tribuneral service. In all honesty the panel members really won’t care one way or another – it will be local or district officer who is nagging you for details on your rep – it is entirely up to you on what you wish to disclose. It is that officers job to try and ensure that the panel members have as many accurate facts about your case as possible beforehand. The Panel members are basically paid professional volunteers. They will receive paperwork about your case approximately two weeks beforehand, they will read it through and follow procedure to the letter – based on legislation, they really won’t mind or care if your rep is a friend, neighbour or paid solicitor. Without wishing to create or cause any offence, yours will just be another case like the five or six others they will deal with that day.
  2. zenemu

    melatonin

    I'm sure it has, it is the hormone that actually induces sleep. However the side affects do need to be considered. Other problems it can cause include changes to the immune system, retina damage and changes to the reproductive system, especially in pubescent children. All in all hormonal therapies for children are a bad idea; the consequences can be very unpredictable.
  3. zenemu

    melatonin

    Hi Noeleen, I'm not entirely sure how you can get it, but you do need to be very careful here. Increasing Melatonin artificially can cause a tolerance build up over time, meaning that you grandson will require higher and higher dosages, it can also affect natural Serotonin (Melatonin is created by the body breaking down Serotonin), which can cause serious problems like depression. For many – myself included, Insomnia is a natural part of Aspergers Syndrome, and it is always better to find non medical alternative to overcome or control the problem. Often managing to focus the mind on one task, such as reading helps the situation a lot.
  4. Both are tough situations to be in. Personally I advocate being as open as possible about Aspergers, at least with family and friends. Support is extremely important with AS and proper support can certainly help improve things. Perhaps the most important thing you can do to help yourself with AS is to be very introspective. The more you learn about yourself, the more easily you can learn to adapt to situations you find uncomfortable and the proper support certainly can help with that. It is extremely important that you are very open and honest with your family, especially your parents. Tell them about your concerns; discuss everything you have learned about AS and how it applies to you. Tell them how you feel in social situations and try to give those examples of things that other people seem to take for granted that you sometimes miss. You are right; people don’t understand Aspergers and many people don’t acknowledge it. The truth is it is very difficult problem, but not insurmountable. Over time a lot of the symptoms of AS do lessen slightly, especially between the ages of 25-35, because we learn from our experiences and it is important to do so. There are always going to be those people who don’t acknowledge it. They vary from people who are outright rude, to those well meaning souls who occasionally come along and attempt to “bring you out of yourself”. Unfortunately you need to accept that and move on. In the end, I suppose what it all boils down to, is that you can’t let Aspergers define you. Aspergers is a part of you, but it doesn’t define what kind of person you are deep inside or what kind of per you will be ten years from now. Only you can know that. Your AS will never go away, but with the right help and the right attitude it will get easier and in the end, you may even find that AS has some positive aspects too.
  5. The lack of a sense of smell is called Anosmia and it has many causes. I have Aspergers and complete Anosmia (so I have no sense of smell at all), but I have never heard of a link between the two. Anosmia is often caused by head injury or childhood illness - one of the key causes appears to be Pertussis (whooping cough) in children under 4 years of age. In some cases where Anosmia is not complete, a nasal steriod spray can help improve things. Edit: And to clarify for the sake of posts above - smell and taste are seperate senses, although having no sense of smell can affect the way taste is perceived.
  6. Hi, You need to get in touch with the Equalities & Human Rights Commission and you need to do so as quickly as possible - http://www.equalityhumanrights.com/ you can find them at and they will give you free advice on how to proceed. Your son is protected under the Equality Act 2010 and under the act one of the Protected Characteristics is the perception of disability. In this case it seems that this company has blatantly refused to either employ or train your son purely on the basis of having a disability, which is in contravenes The Equality Act 2010 (more info).
  7. It is possible that this could be a sensory issue. Personally I find bathing extremely unpleasant (it is actually painful) and I need to shower instead, which to be honest is only a little better but bearable. If that is the case, it will be difficult for her to put into words or describe, because for her, it may be the norm. Also if it is a sensory issue, they can and often do change over time for better or worse.
  8. I have Aspergers and have always suffered from insomnia. I have never found a cure for it as such, even pharmaceuticals don't work. I have learned to manage it somewhat though. Basically it helps to give the mind something very specific to focus on, rather than allowing it to wonder. In my case reading helps, I am sure others on here find different things help.
  9. NAS have been recommending private alternatives for several years. They have a list of NAS Approved therapists based on an interview and a basic NAS recommended training package. It is exceptionally difficult to get an NHS refferal as an adult at the moment and even if you do manage to get one, there is often a waiting list which can range from nine months to several years depending on your location in the UK. NAS felt a list of private professionals capable of reaching a diagnosis was necessary to address this problem. Unfortunately, although the list exists, it is actually very short, and even private consultation on ASD's have a fairly long waiting list at the moment.
  10. One other thing I should like to point out is that that for people with ASD's the accuracy of these tests is questionable anyway, depending entirely on the context and environment under which the tests themselves are done. If you were to take a someone with Aspergers for a diagnosis for example and one of these tests was suddenly pulled out of a drawer and they were expected to do it out of the blue, the likelyhood that they could concentrate enough to get anything like a relaible result is so small as to invalidate the test anyway. In my opinion, any test like this during the diagnostic process is a waste of time and a source of unecessary stress.
  11. Actually, it is entirely possible to have a low IQ and Aspergers, in general and when combined with other conditions - Anencephaly is one that instantly springs to mind. Although IQ tests are commonly given during diagnosis, they really aren't relavent, they are used more as a way to illiminate various learning disabilities, most of which are known to cause social anxiety. Actually IQ is irrelevent to ASD's, other than the curiosty that they usually are at least of average intelligence. It is also important to recognise the fundemental flaws in IQ tests. There are many forms of intelligence, emotional, spacial, social, logical and deductive just to name a few. Most IQ tests focus either on spatial reasoning or logic and excelling at them in real terms means very little. Different forms of intelligence tend to play against each other too - most people with Aspergers excel for the first few years at school for example, but when social intleeigence becomes more important and the child becomes more aware of their own short comings in this area, their academic performance tends to suffer as a result. Personally I never put much faith in IQ tests. Certainly a diagnosis should never hinge on the results of an IQ test.
  12. Not very. It is true that people with Aspergers are usually of average intelligence or above, but IQ isn't diagnostic criteria.
  13. It could well be a sensory issue. I shower rather than bathe and the water has to be luke warm. If the water is hotter or cooler, or if I have a bath I find the whole thing incredibly painful to the point where I literally can't breathe. Similarly when washing my hands, I use anti-bacterial soap because I cannot run the water too warm or my hands hurt for ten minutes afterwards, so it takes a while to get the temperature just right.
  14. This isn't going to go down well with most parents I am sure, but gaming in general is very good for fine motor control and improved reaction time. With the invention of motion controllers and microsofts new kinnect system, a combination of fine motor control and genral excercise is now here. In my view it is excellent therapy for dyspraxia.
  15. I think most Aspies have a sense of physical disassociation - it is quite a common symptom, especially combined with fatigue.
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