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RainbowsButterflies

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Everything posted by RainbowsButterflies

  1. has eaten too much pizza!

  2. Has been upgraded to an enormous family room. Anyone in London fancy a girly night in?

  3. Bethy is very excited about our new recycling wheelie bins!

  4. You've never finished a book? That makes me quite sad - books are my escape from the world (null)
  5. I went last year - it was quite interesting. Had major issues with the underground though. There was a lot for parents, but I am a parent as well as an adult... (null)
  6. I don't think Lancs Lad's question *was* inappropriate, and the cyclist was probably pleased that you were interested enough to ask. I've commented on the spoke covers on wheelchairs before when they've looked good - just like you might say to someone I like your tshirt. As I've grown older I've started to recognise which things are inappropriate, and it's more when to keep firing the questions and when to back off. DD is terrible for going up to complete strangers and interrogating them as to the minutae of their lives though! (null)
  7. Special talent - not all social services still have a register. I asked and my county doesn't any more. There doesn't seem to be any way to register other than claiming DLA. (null)
  8. I don't view my autism as a negative thing (now I've got my head straight). All the negatives have come from not being diagnosed and the misunderstandings that have arisen due to that - both my own misconceptions and others', leading to secondary mental health issues. It is imperative that children are diagnosed as quickly as possible so that they can grow up understanding and valuing who they are, and not being mislabelled as 'naughty' or 'lazy'. Yet this isn't happening. And I have the double whammy of a genetic physical disability which has only just been diagnosed, and I have been made to feel like a hypochondriac all my life. But I am still not being taken seriously about my daughter who is showing very strong signs of both AS and EDS... (null)
  9. I'm hyperlexic butterfly - I could read before I was 3 and was reading adult fiction and textbooks by 8.
  10. Almost 5 years ago, back in April 2007, a group of complete strangers found out we were pregnant. We joined an online forum of ladies all expecting their babies in the December of that year. We compared notes, relayed birth stories, worked out just how we were going to deal with being new mums or how to cope with more than one or two or even three. Almost 5 years on and we are a smaller group but we've been through all we can together: obvious child worries; returning to work; starting busine...

  11. Everyone on the autistic spectrum has such a unique set of skills and deficits that their needs and capabilities need to be assessed on an individual basis anyway. Not only that, our our needs change depending on the stressors in our life - obviously there are some people who will never be high functioning, but some of us with be very capable at some points and very dependent at others.
  12. Personally - I think we will be better off when the Aspergers diagnosis goes. At the moment there a massive confusion about what is autism and what isn't, what's autism and what's Asperger's etc etc. I went to a really interesting talk/discusssion on Monday that a lecturer on autism (Dr Luke Beardon) gave to the Lancashire Autism Partnership Board, and he said that there was only one thing you could definitively say a person with autism could not do - and that was not be autistic. If he had a dx of Aspergers then he would be autistic anyway...
  13. has had some very sad news this morning. Rest In Peace Caroline Greenwood, you have been an inspiration to us all. Our thoughts and prayers are with Grant and Luke.

  14. We got a set of combs on prescription which are as effective as the lotions.
  15. Home-made doner kebabs.... yummy!

    1. butterfly73

      butterfly73

      I used to lóve those... In Holland they made an even 'worse' one which always was order by the Barbershop.. so now that's the name! 'kapsalon'..

      Döner.. Onions, bit of lettuce, fries, garlic sauce and red hot sauce topped of with cheese (melted)

      Not to be recommended when trying to get your figure in shape (unless y'goal is to look like Cartman, especially the Ubermass one..) Even more calories than pizza!! But YUM!!

       

      I...

  16. Sorry I missed your birthday. Sounds like you had a good time
  17. Mencap are an organisation who help people with learning disabilities. If you have Asperger's Syndrome, then by definition you don't have a learning disability (IQ below 70). They aren't a sham organisation, you just don't fit within their criteria.
  18. If you're contributing financially, sharing the cooking and getting medical care elsewhere (it sounds like she's not doing that in the meantime), then in what way is she entitled to carer's allowance? I know in theory you could sign the piece of paper, but how is she justifying it? Honestly, it makes my blood boil how difficult it is to successfully claim DLA, whilst people who have no real justification have this whole 'entitlement' mentality - and seem to be getting away with it! (That's not directed at you by the way Mumble - having a bad time with SS at the moment, plus resubmitting my DLA claim which was knocked back flat 6 months ago. In theory I've been told I should be eligible for HRC and HRM now, but I'm not holding my breath. The local council have just approved a Blue Badge though.)
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