Hayden

Bullet, that sounds like me, i sometimes jus 'cant' talk because i worry that it will come out wrong etc etc, or i jus really dont want to. its something i have control over so when im stressed il jus shut off and people might get frustarted with me but i dont care. i use sign language - went to school with a deaf girl in primary school and we both had 1:1 teachers /LSAs so they used signing for me too. we progressed together and although im not fluent i sign to people now if i dont want to talk, my family knows some so they can understand a bit. i could tell people if i was ill or sad through a sign rather than word which helped a lot Hayden

why do we have random place names by our log in names?? its been confusin me...

I was told as a child that i was autistic. sometimes it would help me realise thats why i had a 1:1 support at school, cos i was a bit different and special to everyone else and it was called autism. ive grown out of it a lot now, which is good, but i have higher functioning autism (basically aspergers)

i hate long journeys too, and i got into counting eddie stobart lorries when i was a bit younger!! (im 18 now) i am dreading my flight to new zealand cos as well as having AS (was lower functioning as a child) i have ADHD. im gonna go craaaaazyy!!! HELP!!

im 18 and still have anger management issues. it wont go away until a professional gets involved... i am a lot better now than i used to be!!

glad some things i can relate to. im liking the name sian at the moment, the girl who im chatting to in NZ is called sian!! i think i remember as a kid and sian may feel this too, that it felt more like the whole world didnt understand ME, rather than me not understanding the rest of the world. i jus wouldnt understand why this teacher told me off for hitting someone over there cos he was messing up my model etc. like why was this wrong when he totally deserved it?! etc. i had 1:1 support in a mainstream school but they had a unit for special needs particularly ASD. i had to have counselling cos i took a change of teacher half way through the school year very badly when i was 9 but counsellimgs never worked for me. my teacher was also trained to react to my auras and deal with my many szs. maybe this could happen for sian?? hayden xxx

hi im 18 and have AS. i am really sensitive to sounds too, sometimes its like someone has a volume switch in my head and it turns itself up without my control. its usually when im feeling a bit claustrophobic or anxious about something and the sounds get really loud and makes me wanna scream. as i kid i would yell out trying to stop it but now i can stop it myself jus by getting out of the situation thats making me nervous. although im prone to panic attacks so sometimes this doesnt work... i can also turn sound 'off' if im thinking really hard the other sounds will not really register with me and unless people wave their hand infront of me i wont necessarily respond. it can really irritate me when people try to invade my space when this happens. hope it was helpful to read this

hello u guys, its hayden also from nse, i jus notice ur messgae on here, not been on cos of being in hospital like i mentioned on the other forum. thought id add to this as i have aspergers and epilpesy (sorry about splelling, head fuzzy cos had a few to drink). when i was a kid i was more autistic than i am now, i now am higher functiononing (aspergers in other words) but i was ur typical autistic kid wiht the tantrums etc. i was lucky enough to grow out of it a bit. i think i wasnt that bad but i also have ADHD which made it look worse. so i have AS, ADHD, i have been classed as 'mentally ill' cos i have a panic disordr where i get pnaic attacks and part of that is cos i have OCD tendenceis. as well as epilepsy... when i was a kid i was really bad with epilepsy, when i first had seizures id have partials near enough every day, (complex partials) and TC every week, maybe twice. i was constantly groggy and confused for months until they died downe abit to a norm of TC every month, complex every week or so. aged 12 they disappeared then at 14 i had a TC out of the blue, got back to a new routine of TC ever 2 months or so, complex every 2-3 weeks. started having absences not so long ago so changed from trileptal to epilim. i have been on ritalin for adhd, i have taken oral diazepam to calm me down, im taking prozac at the mo. ive had rectal diazepam for going status twice and once for panic atatck/meltdown i had at school in year 11. (school had permission and one lady was trained). i was 15, had a bad day as had a bust up at home (my mums ex boyfriend was violent to me and her) so not a good start, then i got in trouble at school for skipping lesson, one kid found me and started picking on me and i jus blew off . i was shouting, kicking and hitting at him, i had 2 male teachers come to restrain me but i couldnt stand them touching me. i was like an animal - i was angry but also scared and was crying by now . they took me to the detention room and had to let go of me and i completely trashed the room. eventually (once id stopped throwing the chairs!!) they came in and tried to calm me down but it was so bad, ive never been so out of control in my life. i was crying and hyperventilating and i started hitting my head agaonst the wall and they jus had to do it. i jus couldn see an end to it, that was the worst panic attack ive ever had. i would never have been able to swallow anything so that was the andswer i guess. i havent mentioned this on NSE cos i thik they woudlnt undertand but people on here might have a better understanding. i remember calming down i was shivering all over and i nevr said to anyone else before but i actually wet myself as well. i couldnt stop crying and thats the first time i told some one at school that my mums boyfirend had been hitting me, and i didnt actaully tell them the other stuf he did but i think they kinda guessed. they werent stupid though - they came straight out and asked if it was why id been cutting my arm but i never thought they knew cos my shirt coverred it even with a t shirt. im sorry for rattling on, im trying to get over my panic attacks once and for all at them moment. so im going back to the main one. and i wanted to show it from the perspective of someone who has both AS and eplipsy and all the ###### that goes with it!! Hayden

Hi everyone, i have this same sort of problem, but being 18 and not having a set home/routine doesnt help. i often get to 9-10pm and remember i havent had dinner. i have a routine of having breakfast but lunch and dinners can be easily forgotten about. im currently on new drugs for epilepsy called epilim and they've been a god send cos they actually have a side effect that makes you hungry. it means im eating more regularly now but i have to be careful to have a balanced diet cos epilim can cause weight gain. i thought this was an interesting thread. I have AS, ADHD and epilepsy Hayden

can anyone help me to understand what these sorts of things mean? NT DD DS1 DS2 OH etc? all i see is a bunch of letters but they mean something dont they? is DX diagnosis?

i do this thing called stimming i think. im an 18 year old with AS. i have a bit of an unhealthy way of releasing tho i think, i use a punch bag and thrash it!! it really helps let go of everything that has been building up. i also shout and scream if something goes wrong when i have a meltdown. i like that term, i can see when i have one of these moments when im letting things out i can visualise a candle burning out all my problems. cool huh?

hi gladysmay, yea i can get impatient too, when waiting for things. sometimes i get frustrated cos i go for a morning run at 7.45am and if im ready before then il be waiting thinking i could go early but then it wouldnt feel right cos its not my usual time. if i leave for it later than normal i will have to add on the extra minutes which can also be frustrating as il know i will be late for the next thing which jst messes up the day!! i have different types of seizures with my epilepsy - tonic clonics which is what most people associate with epilepsy where the person falls and shakes, but i also have partial seizures where i can walk around and do stuff but il be semi conscious whilst doing it and wont remember much about it. i had 2 seizures at the weekend... not too good!! dont worry about gettting it wrong, we all do sometimes. the thing that annoys me is if someone says "do u know what u have to do?" and you say "yes" but they explain it to u anyway - whats the point? its just infuriating!! hope ur ok, its interesting to hear from you too Hayden

Hi im Hayden, I have a thing about straight lines, if someone doesnt underline a word with a ruler it makes me cringe!! (i have AS). my fave words probably are - peristalsis - laminator - amor - summer - yo kukomi (japanese for a karate kick) - im a brown belt!! i cant think of any else. i hate the words for sexual organs, someone could have thought of some nicer terms!!

Thanks for the reply, i guess meltdown in a good term to use, i think i have heard it once or twice. i had one last week if that is the case. i was at karate and got a routine wrong which frustrated me and i took 'time out' on the punch bag. Then when i got home i realised my dads girlfriends son had been in my room playing on my games console cos he had left the lid open. i went a bit crazy at him and had a panic attack that i couldnt sleep in my room. feels a bit stupid looking back, but at the time its really a serious thing!! i had a change of teacher when i was 8, halfway through the shcool year and i would worry that her routines would be different and it disturbed me so much i couldnt work and if she did something slightly differently i would scream about it. i also would try and shut off by sitting with my hands over my ears and looking away from everyone. i could be quite violent if anyone tried to touch me!! i still have odd moments like this, where i want to shut myself away. it got better though, once i got used to the new teacher. thanks for reading all this. and yes, i understood your posting!! i belong to an epilepsy forum as well and some of the posts can confuse me cos they dont appreciate how literal i can take things e.g. someone said to me 'local rag' for newspaper and all i couldnt work it out. and "ring any bells?" made me wonder why anyone would be ringing any bells. image of church came to mind!! Hayden

Hi GladysMay, I'm Hayden, im 18 and have AS. I'm new here and dont know any other people with AS so is nice to hear that im not alone. I too have these 'meltdowns' (is this an official term? i havent heard it much before), its really reassuring to know that ur 19 year old son does some of the same stuff as I do. i too hate changes. im stressing about A levels at the moment and it has brought on the OCD i sometimes get. i have an obsession with excercise and i go running every day come rain or shine. I have a really short temper and often act first think later. its really hard sometimes, coming from someone near enough the same age as ur son. I also have epilepsy so had that to deal with at school as well. annie, i like the card system, I had similiar thing at shcool where i could leave if it got too much, but i didnt have a card thing. Nice to read your posts Hayden