BEVERLEY

Not sure if it has been mentioned before but just incase it hasn't Warm front grant is a grant for people who are certain benefits (this includes DLA) The idea is to help people with: central heating cavity walls loft insulation fires If you qualify they will send someone out to assess your house and to discuss what you would like doing and fund you up to �2700 towards the costs. There own installers carry out the work Hope this is useful Bev xxx

I have always said Toni doesn't have the "I'm full mechanism" If i don't watch her she will eat until she is physically sick. Parties are a nightmare as she spends the whole time eating I have mentioned to her Doctor that i thought she was obsessed with food or she didn't feel full and she just looked at me stupid and changed the subject. Toni can't reach the top cupboards at the moment but that won't last for ever she already helps herself to the contents of the fridge Bev xxx

We are in a simular situation. Toni's infants school are currently giving her 3 hours 1-1, even though she does not have a statement Toni goes to the juniors in september and we have been turned down for a statement. We are being told that all children on school action plus will be entitled to 5 hours a week 1-1 as this money will be in the schools budgets. The LEA are saying this should be enough as Toni is learning. They have not taken into account her social issues and language issues and the effect going to the juniors will have on her. I know i am fighting a losing battle at the moment so i am waiting until september and reserving my energy for when Toni goes to her new school and can't handle the change. I am hoping the juniors have more understanding off ASD and will fight our corner to get her the help she needs and deserves. (knowing my luck it will be the other way around and the juniors will start saying theres is nothing wrong and take her off school action plus) Bev xxx

Simon Congratulations, well done Bev xxx

Luckily Toni's reaction up to now has not been life threatening she vomits, becomes lethargic, face and eyes swell and she gets a rash. When we first found out she had a nut allergy the school sent a letter out asking for parents not to send nut products to school, but this was 2 yrs ago so alot of parents are not aware. I would prefer it if they sent out a letter a couple of times a year just to remind parents especially now there is a child in reception whose reaction is very servere. I know his mum to talk to so when i spot her in the playground i will be letting her know what happened, especially the fact that staff didn't recognise the symptoms toni was showing and the fact toni was suffering until i got there. The other child has badges sewn onto his cloths stating that he has a nut allergy, i will have to ask her where she got them so i can do the same for toni Bev xxx

Thought this was the best place to post this Toni has a nut allergy On tuesday Toni came out off school face and eyes swollen, eyes bloodshot and rash coming out. I instintly new she was reacting to something so asked her teacher if she had had any nuts. Her reply was she didn't think so. I went striaght to the office to get her meds for it, as they would work for any allergic reaction Teachers from everywhere then appeared and then Toni said she had had a nut and told us who gave it her. After speaking to the other child and her mum it turned out that Toni had put one in her mouth but then spat it out (she didn't like the taste) thankfully this was in our favour as it meant the reaction was less severe I wasn't annoyed that Toni managed to get a nut as i thought the school would send a letter out reminding parents not to send children in with nuts as there was children in school with nut allergies, especially as the other child in the school with a nut allergy is very servere and nearly died once from it. Well there has been no letter I'm also annoyed that her teacher didn't do anything about it on Tuesday. She was a stand in teacher but it was obvious that there was a problem - she could off gone and found out if toni had any allergies or phoned me to take her home. Also talking to Toni and the girl who gave her the nut they did go to the dinner lady who told her to go and have a drink I know Toni has a problems with language and her friend didn't know Toni can not have nuts but shouldn't the dinner ladies know she has ASD and a nut allergy I think i too will be writing a letter of complaint and also talk to parent of the other child with a nut allergy Bev xxx

Thanks Toni had an OT assessment last week and has recently been reassessed at SALT so as soon as i get my copies of the reports i will be sending a copy to the Lea I've been thinking that even if we do not get a statement at least the Autism Team will have given advise to the school which the school really do need as they havn't got a clue. On Toni's last IEP they put that they wanted Toni to read with expression, well Toni doesn't talk with expression so as far as i'm concerned she isn't gonna read with it. Bev xxx

Hi all I've not been around for a while-lots going on at the moment I put in a parental request for statutory assessment before Christmas and the panel met last week. It was decided that there was not enough information to decide wether or not to proceed with the assessment and they wanted the Autism Team to go into the school to assess and do a report before the next panel which is the 10th feb, so they can then decide wether statutory assessment is necessary. i'm confused - shouldn't this assessment be part of the statutory assessment? and surly if they think she needs this assessment it would be just as easy to do the whole statutory assessment Don't get me wrong i am glad they have asked for the Autism team as we have been on there waiting list since last April and they are now coming to school next week. Havn't got a clue what their assessment involves or wether i am allowed to attend Has anyone eles had this assessment, if so what does it involve Thanks Bev xxx

Happy new year to all I thought this was the best place to post this Until recently Toni was unable to read, then one day it was like someone had turned a light on and she was practically word perfect. she has now caught up and is starting to overtake her classmates but the problem is toni cannot tell you about what she has just read. School are also worried about this and it is now down in her IEP Has anyone eles come across this Bevxxx

we are lucky, i would say Toni's eating is pretty normal for her age loves junk food not that keen on fruit and veg but will eat it if you promise her something nice for afters. The only problem is toni is contiually asking for food, we can't go an hour before she is saying she is hungary and asking for something. We have even joked that maybe she is missing the 'i am full mechanism' as even when she was born the hospital gave us a bottle which she drained and her second bottle she did the same and then cried for more. Does anyone else have a continuosly hungry child?

GO FOR IT, APPLY Your mum wouldn't be saying that if (god for bid) your son did run in front of a car It is not a mobility badge it is a disability badge. bev xx

after you all mentioned the batcave i had to go and look. LOL not laughed so much in ages, hubby (john) woundered what i was laughing at so came and joined -suprised he didn't wake the kids he was laughing that much bev

hi i'm Bev and really glad to have found this site i have 3 wounderful kids 1 boy Ben 7yrs and 2 girls antonia (toni) 5yrs and taylor 2 yrs nearly 3 yrs ago toni was refered to different specialist due to showing traits of autism, but as today we still have no dx the school doctor has said toni has some traits of autism but also traits that are not she has requested the school get the educational psy and the autism team to come in to school, but we have been told by other people that these people are not able to give a dx and that we need to see a specialist in the field. the specialist in our area (chester) has a 2 yr waiting list and we have not even had this referal yet (hoping to get that this week) the request for ed psy and autism team was 9 weeks ago and the school has done nothing about it yet to say we are very frustrated and worried is an understatment, as toni is now coming to the end of yr 1 at school and apart from being on school action plus toni has no support. i initially thought toni could have aspergers but i am now thinking semantic pragmatic disorder another form of autism as toni didn't start talking untill she was 4. but then she has obsessions which SPD children don't, which then puts her back towards AS. as you can tell i'm confussed by it all and i suppose i will have to wait for another 2 yrs before we get our answers.