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Storm

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About Storm

  • Rank
    Salisbury Hill
  • Birthday 04/16/1977

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  • Gender
    Female
  • Location
    Kent
  1. It took 6 months for my first ds to be dx aged 3yrs.....I had a few concerns about him so asked Hv who referred him to child development centre, got seen pretty quick, pead then said poss ASD so ds attended for ten weeks at cdc to be assessed...was given dx of asd at team meeting. Hv had concerns over younger ds (i wondered at time if perhaps was a lot of copied behaviour) so asked for Pead to see him too. Pead said he displayed asd traits but we both agreed to wait and see for a bit, next appointment after it had become more apparent he dx younger ds aged 4yrs with asd, that was with pre-school and salt reports too. The last bit of the process only took 6 months too. So guess we were lucky.
  2. Storm

    sleep

    My youngest who is 5yrs has never slept for more than 4 hrs a night since the day he was born, he has been under the sleep clinic for years, tried everything bar medication. (pead doesn't think it would be beneficial, although suggested it for other son) It takes him ages to fall asleep then when he does is for only 2-3 hrs then up and down till morning. Have come to the conclusion he really just doesn't need alot of sleep. He doesn't seem affected by lack of sleep. (I do mind you ) Whereas my 6yr old who loves and needs his sleep will go to bed brilliantly as long as his routine is spot on, but suffers with night terrors, pains in his legs and as of late (since his teacher tried to explain that he could get up when it was dark outside, during certain times..eg time of year and weather) he now gets up any time after 4am. (working on this at present so any ideas much appreciated??) Our Pead told me that it is very common in children on the spectrum.
  3. We have a pony and my boys ride him, they love just being around him too as he is very gentle and understanding, horses are very sensitive creatures and are very good for helping your mood i find. My pony needs a good routine aswell, which is great for the boys. They really enjoy brushing and feeding him as well as gently riding him. It really does help their confidence and encourages their speech as i encourage them to always talk to the pony. He has a great calming influence on the boys and they are always happy around him.
  4. My B does this too, although at times and others have said too that its as though he is just looking right through you,
  5. Storm

    hi

    Am a bit late but Hi... <'>
  6. Storm

    DLA

    My ds got dla at age 3yrs. He got middle care thats just for ASD. Now gets middle care , low mobility. my other ds at 4yrs got high care, However my niece aged 5 has ASD and hyper mobile joints, has been awarded dla high care and high mobility untill she is 16yrs,
  7. My eldest ds was dx aged 3yrs, the process started when he was 2 1/2 yrs. He went through the CDC, attended 2 hourly sessions alongside 2 other children for 10 weeks and was monitered and seen by various proffesionals, after a team meeting he got his dx. whereas my other ds was diagnosed aged 3 1/2 yrs, but only ever saw the pead, his dx took 6 months but that was more to do with both me and pead waiting to see if it could have been copied behaviour. We have a great pead though. He has also gone on to dx my neice aged 5yrs and my nephew aged 13 yrs, both only ever seeing pead too.
  8. Storm

    Hi there

    Thanks for all the welcomes <'>
  9. Hi there I have 2 sons both dx ASD also have a nephew and neice both dx ASD (bro and sis)
  10. Storm

    Hi there

    Thought it was time to introduce myself. Have been lurking for a very long time....just never had the confidence to post before....silly but that's me. However alot of others have very similar problems to what we have and have got answers without the need to post. Anyway....I am a mum to 4 children.......2 NT girls aged 11 and 8yrs (eldest is dyslexic) then i have my 2 darling boys aged 5 and 6yrs both of whom have ASD. Also my neice 5yrs and newphew 13yrs have ASD, eldest only recently diagnosed. Apart from everyday life being a rollercoaster with my boys..i cope! The main battle at the moment is school, will ask advice on that later when i can get my head round it all. The boys are under the childrens disability team and we have a support worker who tries to help.....but School well more "senco" is of no help This site is so helpful though and most importantly it helps to know that your not the only one, as most of the time i feel totally isolated.
  11. Hi hun , its only me, how are you?

    Hope to catch up with you soon.

    Thanks for telling me about this site, its really helpful. xx

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