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admum

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About admum

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  1. Let yourself grieve. Take time for yourself. I had counselling which did help. Your child may also be feeling confused. I remember going to the toilet to cry to shield him but he wondered why mummy was so upset. If my child could turn out like eugene id be so happy. My sons dx of adhd also came first at 6 and As at 8. Try www.adders.org.uk. Good luck
  2. Wilaid week comes up latr this year - you make a donation and solicitor draws up will. Discretionary trust should be quite cheap. Log onto law soc website to find local solicitor
  3. sounds good. I love him in Pirates ofthe Caribean. Fisrt time I really spotted him. Son knows all the script from watching it so many times and im not going to stop him. Yummy.I have yet to meet a 30 plus woman who denies he is fab. We must all be sad! Hubbie really hates it as Johnny is one of the few that really makes me water at the mouth
  4. One son 10 as, adhd dyspraxia and 4 year old suspected by Paediatrician oif having some AS traits on waiting list ( 2 years) for assessment. She may have AS but i dont think has adhd. Unlike my son she can actually follow though instructions, At 4 can read level 8 oxford reading tree on own to end. But is v obsessive about certain things and can be literal. In hubbie family two of his cousins have sons one with adhd and one with AS. In my family one of my cousins was clearly adhd un dx- army helped. My late uncle is now suspected of having dyslexia and some form of autism having looked back at behaviours. I think I may have dyspraxia and possibly signs of AS. My hubbie is the same. A friend has two autistic one kanners one AS. She had genetic counselling and was told a high cahance any further child would at least have dyslexia if not as or some other learning disability. We were told that we could be referred for genetic counselling if we wanted.
  5. My 10 year old (As adhd dyspraxia) used to have a real issue with tags. Its not as bad now but hates wearing clothes coats shoes My 4 year old as yet undx has major meltdowns sometimes and will tear off her clothes screaming that they hurt her socks shoes the lot. I often cant find the source of her pain but trying to distract her doesnt work. As shes starting school im getting a bit concerned as she has to wear uniform even if she feels uncomfortable.
  6. Hi Jonica we al;so went in February and loved Davy Crocket. I hate satying in hotels with my son. I recall one night when efused to go to sleep and had tantrum such that french neighbours were banging onthe walls at 1 oclock in the am. We didnt have special needs pass but dont yet have DLA. Is it possible just to use dx letter which we did a few weeks ago at Legoland which made a difference.
  7. I agree Annie. Unfortunately its the better informed parents who are able to fight. I feel so much for those who are often misled. In our local new Nas branch we are trying to do seminars so that parents can be better informed. We too had to fight to tribunal twice and I think someone needs to review the tribunal sysytem. Im aware that one local Lea routinely doesnt turn up or try and get last minute adjournments when they are really just playing for time. The tribunal has the power to award costs to be paid. Perahps its about time that in those circumstances it did. Ipsea do a brilliant job but they need to be more widely reported so that all parents get to know about them. When my son was first dx we were v naive. We asked senco to put us in touch with other local parents. Bearing in mind that it was 600 plus school with large sen dept it seems strange that we were advised that there were none with similar difficulties! We were never told aboutipsea, nas or any local groups by the school. The hospital was better and to be fair has triedto support parents and help them meet. In desperation I put up a flyer in the local hospital. Im sure that leas and schools dont want parents to meet and talk as we can help each other! Our local lea statementing officer seems v wary of parents meeting. It has to be saidthat our local PP officer is v much lea driven and hated by most parents who meet him.
  8. I agree. Our Lea was found out. But one of its officers claimed that Ipseas claim on their site was rubbish. I asked our Nas officer at local branch and they said Ipsea was correct. It seems leas just feel they can say and do what they want and No one is really interested. What it needs is more press coverage. When I asked local parents if they were aware of the fact the sec of state had told local lea to stop writing illegal statements no one was aware. If its not publicised then how will parents know - LEas are hardly going to publicise it.
  9. Saw this post and watched. nOT REALLY INTO bb. dONT KNOW WHO IS WHO. oops sorry hit caps. After five minutes I said to husband is that eugene - he said yes. We both agreed v aspie. What a great guy. Hope he wins.
  10. Thanks for the info re Legoland. Parents had booked to go for 2 days as birthday treat for son who has adhd and aspergers. I remembered just as dropping them off. Quick call to hubbie who checked this post. I had a file of sons papers in car and pulled out letter which had with dx. Produced it - got a carers pass and all family stamped hands and son so that could all go on rides with him. It was great. I went as well - hey it was free for me. We went straight on - few minutes wait at most. It made such a difference. We did all the rides. Made waiting even with 4 year old ok. max of 4 including son could go on - its specail needs plus 3 but worth getting all stamped so that can take in turns. When we went to Disney in Feb we could really have done with this. I understand that other parks have similar schemes. Disney years ago - we went with disabled mum in law pre sons dx, she had to go to front and we had to queue - so not really helpful. I saw a family with a girl with downs who seemed quite a handful and suggested that they go and ask for passes. Its a shame that these places dont make it more known. If anyone knows about other parks fast passes please post experiences. Only down side was the stares from queues of people as we went straight on with an apprently "normal "looking son. But it made the day so less stressful. And the staff handled him so well and the guy on the guest services desk was great. Well done legoland.
  11. Hi Cutie. Welcome glad to hear degree went well and that youre on the way to law school. Admum ( also adders)
  12. My son has a dx of adhd aspegers and dyspraxia. I found the Diane Kennedy book v interesting and also Lisa Blakemore Browns book reweaving the autistic tapestry.
  13. Just to say that there are a few really good books - cant recall titles but aimed at his age- have a look at the Jessica Kigsley site. One is by a child called Adam. My son really realted to some of what had been written.
  14. Just to say I agree with lots of the posts. A dx label is useful and can change- my son at 6 had a label of adhd, dyspraxia, AS traits and ODD. Later they removed the ODD and called it Aspergers as they said it was part of his Aspergers and clearer with age. Bearing in mind he was dx by a leading team it just goes to show that its not clear cut. Weve had a few locums in the meantime who disagreed and said no signs of AS. Im convinced that many have co-morbids and not all are dx - it depends on the team. Our team felt that only with the full label would he get the help he needed. You have another child with AS and so Im sure that as a parent you are the expert.
  15. I missed this. Shame it cant also be in print in one of the Sundays - remember the long article a few yaers back in the sunday times about the Spinks family and others about their battle wth Leas. It would be really good if they did a follow up. Im really annoyed that I missed it.
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