seeking-sanity

Hi Ive been reading this thread, but not wanting to add a reply in case I upset anyone. Thanks baddad for putting it so clearly, none of us are on opposite sides of the fence we are all on the same side and like DAS999 said we are parents first and foremost, but still need some support sometimes as do our children.

Hi WE got a kitten about 5 months ago, Js 11 and he loves the kitten more than anything and if the kitten is around when he has his rages she can carm him down sometimes, I know that sounds strange but shes had an amazing impact on him and hes always talking to her, the only think is our other kids dont get a look in!!!

Hi Thanks everyone for all your replies, they were all really helpful. Hopefully it will all go smoothly and we can have some fun.

hi I wondered if anyone has been to legoland and how they got on, we are going on thurs and J seems very anxious, obviously the other 3 children are really excited, but we are starting to wonder what we've let are selves in for now, we are having two days there and two nights in a hotel. Starting to panic as hes not very good in busy places and I hope we can control his rages, it seemed a good idea at the time. So just wondering if anyone else has been and what it was like or if anyone has any strateries for legoland or hotel??? Any advice would be greatly appreciated. Thanks.

Understand totally this one, Jamies obssessed with cricket and would watch it 24/7 if we let him and I thought it would stop in the winter (silly me) cos now its australian cricket, I wish he would go on to something else cos I think its like watching paint dry, although my husband doesnt seem to mind!!

Hi Waccoe Just wanted to say this sounded so like my son when he was younger, J's 11 now and was only dx wtih aspergers and dyspraxia earlier this year and I disputed dyspraxia as he is very good at sports, but J has fine motor difficulties and although he now sees the OT it was the ed phsch that origannally did the tests and found out about his dyspraxia and she was the one that referred J to the Ot and this took approx 3 months and although hes only being seeing her for a couple of months the approvement with writing, dressing etc is unbelievable, so keep pushing I wish we had when he was a lot younger.

Hi Does anyone know of any support groups etc in the dorset area, we are in North Dorset?? Really appreciate any information. Thanks

I applied and got it first time, but they contacted consultant and GP, I wonder if they had consulted school whether we would have got it cos as in most cases the school dont see a problem!

Thanks for all your replies. Julian- I can see what you are saying and obviously J knows nothing of what was said, however she was wrong to say this she is obvoiusly not educated in the autistic sprectum and knows very little about J and I found myself justifing Js needs, which looking back I shouldnt of done, I found this teacher did not have the sense to realise that maybe J is coping better because he has the support he needs. Maybe more teachers in mainstream should do their homework and realise these children dont come into school with aspergers written on their foreheads. I feel Kat is right teachers are not qualified to make dx or to judge dxs, we all know they are not given lightly and the meds involved would have to be 110% sure before giving a dx. I loved your post Denise and I hope it made her think! This teacher did actually say Brook that it must be very mild and your right I did wonder if with her own judgement in place any difficulties would be overlooked. Thanks everyone for your replies it really helps, however it is sad to know there are so many people in the same boat. I'll stop now and hope I havent offended anyone. Beth

Hi Can anyone give us some advice please,, we went to meet Js teacher tonight, hes just started this school in year 6 after nearly a year out, hes dx aspergers and dyspraxia, the LEA head set up all the help he needed with 1 on 1 T.A and laptop, hes a very high verbal IQ but on the 1st centile on performance, but is very good at covering up. Anyway to cut a long story short his teacher informed us tonight that basically other than being anxious she thought that nothing was wrong with him and if he did have aspergers it must be mild!! We felt like she was calling us liars, they have the reports but dont have formal dx, which they will have first thing in the morning by me, I cant believe she has said this to us shes taught and known J for 1 week and only mornings. Sorry for the rant but Im so angry and dont quite know what to do, but feel these teachers shouldnt be able to get a way with giving dx or no dx after all the months of going throught the core team to get a formal dx. Any advice would be really appreciated.

Hi We get ours from consultant, as far as we've been told gps cant prescribe this it has to come from the consultant. Hope you get help with this as Jamie's sleep pattern is much better since being on it. Good Luck

Hi LKS- Just saw this and Jamie's having an assessment for a laptop today, I was told by the ed phsyc that if jamies handwriting is readable he would get laptop, jamies nearly 11 has aspergers and dyspraxic, but only fine motor, he has always struggled with his writing and his hands hurt after a couple of lines, the OT he has been seeing recently said to us she could not believe he didnt have a laptop ages ago, anyway what I wanted to ask you, is how long did it take for your son to understand his comp?? and did you mean he did his sats on it?? as Jamie has his sats this year and he'll either have to have a writer or his comp, but it would be nicer his comp, cos I think he'll feel his achieved more. Sorry for rambling on, but not sure how it all works.

Hi I found this article very interesting, I really do have my doubts about this jab,J had a bad reaction to his first jab swelling etc and was very hard work as a toddler, but just thought I had been lucky with my first two! He went on and had his pre school booster and had another bad reaction and after that jab his problems became so much worse and eventually dx this year with aspergers, hes now 10! My youngest had her first jab, had no reaction like J, but within 48 hours was taken into hospital for 2 weeks with pain and sickness, eventually told it was a kidney infection, but not one dr would tell us it wasn't a reaction from her mmr,I refused her booster, but even now(shes 7) the drs still write to me and are not happy with me, but she has a lot of as traits, not to the extent of J but I would not risk giving her a booster. Sorry how long I went on,but I believe if there is any doubt whatsever it should not be given until they are 110% it is totally safe for our children.

Hi MY SON WENT BACK ON FRIDAY, he was really nervous, he has been home tutored since last christmas, this is a new school for mornings only at the moment hes 10 and had a new ta, but tonight he has just said to me hes looking forward to tomorrow, thats the first time he has ever said that to me about school I felt like crying, just hope he stays like this. I hope everyone gets on well tomorrow. Good luck

Just thought Id let you all know received cheque this morning towards holiday and some electrical bits for J, really worth the wait, so pleased to get a result and thanks for your help.