• Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
Genna

Claiming DLA for Adults

62 posts in this topic

Just so you know - you can download a version to fill in on a pc at:

 

http://www.direct.gov.uk/en/DisabledPeople...nce/DG_10011925

 

anyway - just a few q's

 

I'm not sure if I qualify - I have no problems washing, dressing, cooking, but have mild-moderate coordination problems, and communication/socialising - should I still apply?

 

You mention no problems with cooking, what about shopping for the food, preparing the meal from scratch and then cooking without burning all on your own? Could you cook a roast chicken with potatoes, vegetables and gravy for example? Having 3 or more pans on the go at once? Also if you were interrupted by something unexpected (fire alarm, phone ringing knock on the door, loud bang) would you be able to continue with the cooking without being distressed?

 

The problem is ive heard if you can manage to cook meals then it's harder to get DLA. i know of one asperger (only 1 and it was 12 years ago) who was refused dla on the grounds he could cook meals. The communication/socialising i would definitely apply for that reason but im unsure about the cooking.

Also - a lot of troubles aren't things I usually need others help with - but can usually cope with myself - again does that matter?

 

Don't mention in detail what you can do.

and - when it asks how many days a week I need help - that can vary, what should I put?

 

it mentions a three month qualifying period - is this from the date you submit the form?

 

and finally - where it asks how long you've had the condition - should I just put "lifelong"?

 

ta.

 

For the number of days a week i would put the maximum that you have required help. Use a worse case scenario with each comment you put down.

Not sure about the 3 month qualifying period could be that it takes up to 3 months to process. i know any money you are awarded is backdated to the time you submitted the form.

 

Put n/a congenital (meaning from birth) since most research suggests autism is congenital.

 

Alexis

 

Share this post


Link to post
Share on other sites

am gonna talk to DP about appealing our decision as based on the above he should have got something, he cannot prepare a meal undistracted for sure!

Share this post


Link to post
Share on other sites
am gonna talk to DP about appealing our decision as based on the above he should have got something, he cannot prepare a meal undistracted for sure!

 

i mentioned things like problems with lifting a kettle with one hand, timing when somethings going to be cooked, any instances of overcooking something that set off a fire alarm (had a smoky kitchen due to overcooking food twice now). Also what would happen if he was distracted, ie would he go back to the meal and know what had to be done next.

 

Alexis

Share this post


Link to post
Share on other sites

Just wanted to quickly update that I got confirmation that I'm getting higher rate mobility/middle rate care :thumbs: Sorry I haven't been around much :unsure:

Share this post


Link to post
Share on other sites

Glad to hear that there is good news about your DLA. I hope it's good things that are keeping you too busy for the forum.

Share this post


Link to post
Share on other sites

Pleased you got the level of benefit you deserved mate.

Share this post


Link to post
Share on other sites

I have just received my renewal form. I think I know how to fill in my bit, mostly by copying my last application form really. Just scared it will be assessed differently this time, and my GP may not support my claim.

Share this post


Link to post
Share on other sites

I found out today that I have been turned down for DLA. The NAS is useless, inasmuch as they don't give you any information as to what to write for each question. I was led to believe that if a person can't cook a meal from scratch, then they might get help. I get easily stressed when cooking a meal & I usually end up eating say around 8pm, because I end up surfing the net and forget to put the oven on.

 

I don't socialise as I don't have any friends - in fact I don't like socialising. I don't like strange people, such as plumbers, etc, coming into my house and I don't like people using my bathroom. Can someone explain how I, someone with Asperger's is able to get some help?

 

I am also wondering if the new Personal Independence Payment will actually take into account the various traits experienced by those of us with Asperger's.

Share this post


Link to post
Share on other sites

Filling in the forms is not striaghtforward - did you have anyone to help you? The wording of your replies is important.

 

You could ask for help to fill inthe form at the CAB.

Share this post


Link to post
Share on other sites

I didn't find the NAS information that helpful either. What it does do is help you to collect the right information. Then it's down to you to work out what bits to write where.

 

There is a website called Benefits and Work which a lot of people recommend for help with appealing DLA. There is a fee but apparently it is well worth it.

Share this post


Link to post
Share on other sites

If you want to receive DLA then the only thing you can do is lie. I have no mobility issues and do not need care and yet, I can only work for 10 hours a week, due to my lack of slef-motivation. If the agency, for which I do telemarketing, decides to dispense with my services, (I am a self-employed telemarketer), then I have no income, unless I apply for JSA.

Today, I learnt that I will receive £97.20 a week in Housing Benefit, instead of the £103 -odd I was getting, due to the fact that I earn £320 a month. My landlord has asked me to contribute an extra £10 a month, maybe a bit more. If I did claim DLA, then I would lose more HB, so I'm in a quandry. But what I do know is that Aspies are one group of disabled people who are being denied DLA, even though they are disabled.

Asperger's Syndrome is deemed to be a disability and yet most of us are denied DLA in the first instance. And the NAs does faff all.

Share this post


Link to post
Share on other sites

im nearly 22 claim dla. when i went through ESA not long ago staff had to make doing it on behalf and state reason why, had some nurse do some things and had my doctor help me with other things. usually professionals do it for me cos im not able to understand it

Share this post


Link to post
Share on other sites

If you want to receive DLA then the only thing you can do is lie. I have no mobility issues and do not need care and yet, I can only work for 10 hours a week, due to my lack of self-motivation. If the agency, for which I do telemarketing, decides to dispense with my services, (I am a self-employed telemarketer), then I have no income, unless I apply for JSA.

Today, I learnt that I will receive £97.20 a week in Housing Benefit, instead of the £103 -odd I was getting, due to the fact that I earn £320 a month. My landlord has asked me to contribute an extra £10 a month, maybe a bit more. If I did claim DLA, then I would lose more HB, so I'm in a quandry. But what I do know is that Aspies are one group of disabled people who are being denied DLA, even though they are disabled.

Asperger's Syndrome is deemed to be a disability and yet most of us are denied DLA in the first instance. And the NAs does faff all.

 

Thats completely wrong to lie about your needs. You can write down how things are on a bad day which is what i have done. i didn't get my DLA via lying. Cant you apply for ESA if you loose your contract? Your description appears that you are loosing less than you need to pay extra to your landlord. Why would claiming a non means tested benefit ie DLA mean you loose your housing benefit? I'm on both. i know of aspies (and auties) that arent denied DLA my friends in my social circle, they've happened to have applied via benefits and work and various other agencies to get their money. im guessing the NAS welfare email address was unable to help you?

Share this post


Link to post
Share on other sites

Other tips when applying for DLA is explain what would happen if someone couldnt help you, explain what happened when you didnt have help, explain any routines that take longer than a non disabled person, explain what other people can do to help and why they have to understand your disability. Knowing who to and how to ask for help is common amongst this population.

 

Another resource ive found helpful for any assessment is...

 

http://sacramentoasis.com/docs/8-22-03/taking_responsibility.pdf

 

I've used the 'Practical Support Services' section writen pages and pages (extra pages are good for DLA applications) on what mine and sometimes others needs are to help them get the moeny they deserve. One of my firends was turned down year after year, she scanned in her report and as i suspected she just needed help filling in her form. She was awarded DLA and is very happy.

Share this post


Link to post
Share on other sites

Hiya Floz, good to see you. smile.gif

 

Great news about the DLA. L has an indefinite DLA award too. I don't know exactly what it means either. I'm hoping it means "for ever" - but that may be a bit naive. huh.gif

 

Hope Bill is doing well, indefinate means they can look at claim at anytime used 2 be 4 life but changed it 2 indefinate

 

K x

Share this post


Link to post
Share on other sites

Indefinite actually means for a long time... but the changes to PIP.

 

Indefinite award mine has not been relooked at since 18 years old

 

 

in·def·i·nite/inˈdefənit/

 

 

Adjective:

  • Lasting for an unknown length of time: "indefinite detention"

Edited by Special_talent123

Share this post


Link to post
Share on other sites

Mine is now Indefinite Higher Rate Care and Higher Rate Mobility. With the physical disabilities as well as ASD I should be on Enhanced for both in PIP

Share this post


Link to post
Share on other sites

I found out today that I have been turned down for DLA. The NAS is useless, inasmuch as they don't give you any information as to what to write for each question. I was led to believe that if a person can't cook a meal from scratch, then they might get help. I get easily stressed when cooking a meal & I usually end up eating say around 8pm, because I end up surfing the net and forget to put the oven on.

 

I don't socialise as I don't have any friends - in fact I don't like socialising. I don't like strange people, such as plumbers, etc, coming into my house and I don't like people using my bathroom. Can someone explain how I, someone with Asperger's, is able to get some help?

 

I am also wondering if the new Personal Independence Payment will actually take into account the various traits experienced by those of us with Asperger's.

This might help: The 'cooking test' of the Disability Living Allowance

Edited by Aeolienne

Share this post


Link to post
Share on other sites

Another idea is the 'benefits and work' website.

Share this post


Link to post
Share on other sites

We have to re apply for DLA,we have been sent DLA forms, as there is such a backlog for PIP, however, I cant seem to be able to find the supplementary forms from the NAS, I click on the link, but It wont work!! They, were brilliant last time we applied, does anyone know how I can get them?

Share this post


Link to post
Share on other sites

Have you tried looking on the nas website and using the search box on the bottom right of the page.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now