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elizabeth8459

27 year old with aspergers

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Hi everybody

 

Sorry I have not written in a while I have been really busy. Hope you can help with dilemma.

I currently for my 27 year old sister in law who suffers from aspergers syndrome. I started looking after her in March 2005 after her mother suddenly passed away. Her farther is unable to look after her due to working away from home. Her Brother (My Husband) also works long hours.

 

I have reached a problem due to me now being pregnant and due very soon and i feel I can no longer care for her and the new born baby. The family network is very poor so I don't know where to turn, Since getting pregnant L has found it very hard she is currently under a phycologist and under medication I am also currently getting her re-assessed as she was last assessed at 14. She lives we me during the week and with her farther at weekends. She attends a college course Mon,Wed and Thursday so primarily care is needed evening nightimes and some days. Social services are as much use as a Chocolate teapot as L does not meet their criteria as she has a learning difficulty not a disability even though she is on the higher rate care and lower rate mobility though he DLA.

 

All the parents fighting for DLA for there children now, What happens when they get older are they expected to live at home and who cares for them ??

 

L can live at her family home during the week but not alone she cannot cross a road,boil a kettle alone so who is expected to help her ???

 

Can we get in a private carer and if this is so who pays them >?? Yes ok her benefits will but will this cover someone for 5 days a week and up to 75 hours per week.

 

Look forward to hearing from anybody with ideas

 

Lizzie

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Elisabeth,

 

Do you know if there are any ASD support groups in your area? They might be able to point you in the direction of locally available help.

 

Search here to find out what's available in your area.

 

Also can you enlist the support of your own GP to help push SS into providing something? This is a problem which affects not just your sister in law, but your own and your baby's wellbeing as well.

 

Sorry if I'm stating the obvious and you've already tried these routes.

 

In answer to your question, there is a woeful lack of concern and care generally about what happens to adults on the spectrum, and very little provision. The buck always stops with families. SS know that people will struggle on trying to cope,and nobody will abandon someone they care about.

 

The NAS are starting a campaign next year about adult services - lets hope it brings this issue to the fore and achieves better provision. You've highlighted a common problem - nobody seems to know which category ASD fits into when it comes to making proviosion - learning difficulties or disability? - resulting in buck passing from one department to the other.

 

K x

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Thanks Kathryn i have not seen my Gp for ges only seen the midwife due to a good pregnancy luckily touch wood, so i did not think of that, all i can hope for is that when ss come out yet again to see us as on this occasion i have told them as of May i can no longer provide care they will lookm at the other areas i.e when i first got pregnant L took it very badly no help in any areas in the end i went to her GP and told him unless he helped id throw my self off a bridge sorry but id had enough he sent us to the mental heath department no for me actually but for L after talking to a physcologist we were sent away with some tablets which has worked wonders he then refered L for a re-assesment at an adult assesment unit which we are currently undergoing now so....................... hopefully this will go for us you never know??

I actually asked ss back in Oct when L became a handful what was there for me they said nothing ?

So i said what happens if i throw her out??? Oh well put her in a hostel, they are not stupid they know i wouldnt ever see L like that hung up in a hostel with druggies they use it to their advantage.

 

Anyway thanks ill see how we go

 

Love Lizzie x x

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