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Poll: Where are you based? (622 member(s) have cast votes)

Where are you based?

  1. England (493 votes [79.26%])

    Percentage of vote: 79.26%

  2. Scotland (68 votes [10.93%])

    Percentage of vote: 10.93%

  3. Wales (23 votes [3.70%])

    Percentage of vote: 3.70%

  4. Europe (non UK) (18 votes [2.89%])

    Percentage of vote: 2.89%

  5. Other (20 votes [3.22%])

    Percentage of vote: 3.22%

Vote

#1 Kris

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Posted 08 September 2003 - 07:33 AM

Hi there and welcome to the new forum.

If you have not already registered you will not be able to post replies or to start new topics so it is worth taking a few short moments to register by clicking on the link above (or from the login screen)

We would be grateful if you could take a little time to complete the above poll and post a reply to introduce yourself. Maybe you have a story to tell or would like to ask a question.

Go for it. This forum is for you and depends on your input, information and participation.

If you have any technical questions or problems using the forums then please feel free to email us at Kris@krism.org.uk or PM either myself or Elefan (forum co-host)

Regards,

Kris & Elefan
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Edited by Kris, 08 February 2005 - 11:36 AM.


#2 Kris

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Posted 09 September 2003 - 01:25 PM

Let me introduce myself. My name is Kris, and I work in the UK as an IT Manager and i'm a father of two.

My interest in Aspergers/Autism is due to the fact that my best friends little girl (a twin) has recently been placed on the high end of the autistic spectrum with a likely (eventual) diagnosis of Aspergers syndrome. As I am a very close family friend I have been very active in finding out all I can about the syndrome and its effects. This research has made a huge difference to my understanding of a very special little girl whom I love and I hope has meant that I can exist better in her world, and to understand the issues faced by the rest of her family.

During my research I have learned to recognise some of the specific traits. Perhaps the biggest thing I have learnt is the classic aspect of 'literal speech' and as such have been able to adjust the way I talk to her. This has made it easier for her to understand me, and thus made it easier for me to understand her. I have to admit to still falling into the occasional 'literal' hole and having to dig myself back out again smile.gif

Much of her behaviour is challenging at a number of levels and I am constantly amazed at how her parents have coped over the years, and I feel privileged that they allow me to share in her (and her sisters) lives to the level that I do. With this comes a responsibility to learn all I can about Aspergers (which incidentally, I find a cruel but fascinating syndrome) and I very much hope that others will join us on this forum to share ideas, stories and offer help and support to anybody who asks.

As I have said above, I realised very early on that it was vital that I learned to live in her world as much as she needs to learn to live in ours. I hope more people make the effort to understand the condition and therefore understand the child because, as I have found, when you get it right, the rewards are huge.

Happy posting.

Kris

#3 lisapow

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Posted 10 September 2003 - 02:09 PM

biggrin.gif Hello all,
I'm Lisa mom of (2) chelsea 13 and Cameron 3. I am married to my left arm and my right ,Nigel, and we live in the West Midlands.
My son was dx with autism adhd and ocd a year ago, he attends a special needs nursery 5 mornings a week and they are wonderful with him.
The site looks fab, well done guys (and gals ).
Regards Lisa.

#4 Anj

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Posted 10 September 2003 - 06:52 PM

Hi

I'm Anj, someone left a message on my site suggesting I come and have a look at this new forum. It's great to see another UK link smile.gif. And wonderful to see someone who is not directly affected by their own family taking an interest and the time to find out more about Asperger's/autism.
My son Kyle is nearly 18, he has Asperger's Syndrome and ADHD. He went through main stream school the hard way as he was not diagnosed until he was 13. I just wanted to give some hope to anyone trying to cope with a new diagnosis. We were told that out son was unteachable and would never make it through school, would never be able to work, would never be able to make it in the big wide world. We did have a few rough patches at school but I am pleased to say, he sat and passed his GCSE's and that he is now a confident young man of the world. He is working full time, making friends and improving his social skills all the time. He is a bright, intelligent and happy young man who has learnt to celebrate his differences rather than fight against them.
Congratulations on the new forum.

#5 Woody

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Posted 10 September 2003 - 09:32 PM

Hi everyone. My nephew who is now 11 has recently been diagnosed as having aspergers, and he also has mild CP. I have been looking around to get as much info on this as possible and this site will be a big help to many parents and relatives look for the help that they need. I am currently in the process of helping my sister to get as much info together as possible on AS as we have to go through the procedure of getting my nephew statemented for school.

Will read with interest peoples experiences of AS and hopefully pick up a lot of useful tips along the way.

T x

#6 Kris

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Posted 10 September 2003 - 09:41 PM

Hi Woody,

Welcome to the forum.

This is only day two of the forums existence and already the response has been phenomenal (I think its spelled that way) - Its surpassed all our expectations already.

Please keep in touch and let us know how you get on. There will be others on the forum in the same position or who have already been there so there should be lots of help and advice ready and waiting for your questions.

Best of luck,

Kris

#7 bluejean-genie

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Posted 10 September 2003 - 10:27 PM

Hi everyone, My 11 yr old son has AS, TS and ADD ( he is not statemented). The Senior school he has just started are proving to be very supportive of him which is in total contrast to the way he was treated in Primary school. This is the first time anyone has been willing to help him and what a difference this is making to his behaviour, he's actually willing to go to school without causing us a great deal of upset every morning. I am so grateful as this has taken us 5 years to get here. really glad to be here, Thanks for listening. smile.gif

#8 Kris

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Posted 10 September 2003 - 10:36 PM

Hiya Genie,

Glad you've joined up on the forum. Its great to hear that you are finally getting the support you need.

I'm sure there will be a few members here that can relate to the issue you had with your primary school.

Keep in touch.

Kris

#9 baileyj

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Posted 11 September 2003 - 12:28 PM

Hi everyone, I'm Jo.

My son Max is 2 & 11 months, and we are just starting (on Monday 15th) assessments at our local Child Development Centre in Redditch for 3 months, Max has suspected High Functioning Autism/Aspergers.

Max attends a local playgroup 2 mornings a week, they are great and providing loads of help and support.

I work in I.T., hubby Kevin is house-husband, so he has to attend playgroup as well - not easy for a chap!

I have been all over the internet trying to find out as much as possible about the condition, and find the discussion forums the best help, just to talk to people in the same boat. Got this one from one of the other forums that I have recently found.

Look forward to knowing you all.

Jo

#10 Kris

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Posted 11 September 2003 - 12:37 PM

Hi there Jo, welcome to the forum.

Please keep us posted on your families progress and best of luck.

Kris

#11 lisapow

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Posted 11 September 2003 - 12:51 PM

JO,
JUST TO LET YOU NO IM ONLY 10 MINUTES AWAY FROM YOU IN REDDITCH,
SO IF EVER YOU NEED A CHAT,
IM ONLY AN EAR AWAY biggrin.gif .
GOOD LUCK WITH MAX'S ASSESMENT,
LISA.

#12 baileyj

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Posted 11 September 2003 - 01:05 PM

Hi Lisa,

I live in Wythall, sort of North of Redditch - where are you?

Jo

#13 lisapow

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Posted 11 September 2003 - 02:13 PM

First of all a big Hello to,
Anj, Blue-Jean and Woody from myself and my family.
Everyone, there is a programme on BBC3 tonight (sky tv i think ?) at 9PM.
It's about the issues conserning The MMR vaccine( both pro and anti) and it's attribution to ASD if any ???.
Just thought i would let you all no, for those of you that are interested.
Regards Lisa.

#14 Kris

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Posted 11 September 2003 - 02:24 PM

Thanx Lisa,

Ive added this to our calendar section smile.gif

Kris

#15 nana

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Posted 17 September 2003 - 11:11 AM

Hi Im nana (kath) i have 3 grandsons 2 whom are autistic, kenneth aged 12 has just been assessed and is awaiting his dx,Kaidyn is 3 and was dx last august he has autism, language delay, and possible learning difficulties, the younger of the two is an escape artist and a very good one (lol), kenny is the quiter one and always comes out the worst for wear when kaidyn is around,he reduces kenny to tears often.

#16 dolphin

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Posted 29 September 2003 - 06:03 PM

smile.gif Hi i just wanted to say HI and tell you abit about myself I am the proud (sometimes biggrin.gif ) mother of a 3 year old boy ASD non verbal low functioning fantastic light of mylife. I am married have been for 5 years am 30 ohmy.gif have just given up work to be home full time.

#17 stella

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Posted 22 October 2003 - 11:57 AM

biggrin.gif Hi I,m stella and i,m a 32 yearold community support worker for adults with learning difficuties. I,m married to Paul a 35 yearold train driver and we have a 7year old son Scott who has just been diagnosed with Aspergers . Glad to find this forum and I hope for lots of advice.

#18 fairies72

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Posted 22 October 2003 - 10:28 PM

Hi everyone
Im another Lisa smile.gif who works in an autistic school as a support worker.
I have 2 children , my son whos 9 was diagnosed at 7 with AS and my daughter whos 7 was diagnosed last week with AS.
Still getting My head round the fact they both have AS and why?.

Anyone else have both boy and girl with AS? i was told that 7 was young for a girl to be diagnosed.

Btw im in the Kent area.
Great to see an English site up and running
Lisa

#19 forouronlychild

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Posted 29 October 2003 - 11:16 PM

Let me chime in wink.gif

Greetings to all!


During the past eight years, my wife and I worked effortlessly with our only child
who has been labelled autistic. We have studied ways to offer him opportunities to move up the developmental ladder. Our challenge, as I'm sure all of you know, is locating appropriate developmental approaches that engages him at his current level of functioning, works with unique features of his nervous system, and utilizes intensive interactive experiences to enable him to master new capacities.

Traditionally, we have looked at our children with special challenges in terms of labels. Global labels: autistic, PDD, mental retardation, ADHD, and so on.

My wife and I challenge all tradionalists to try to move beyond the labelling of our children. Although many children are given labels that are misleading, parents strive to pinpoint their child's unique strengths and challenges. We parents attempt to not have our children obscured or unwittingly demorlaized by labels. We simply attempt to create positive expectations for our children.


Just felt like rambling abit sad.gif

Taylor
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#20 Testy

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Posted 05 November 2003 - 09:42 PM

Hi, I?m Testy. biggrin.gif

My son is 4 1/2 and last year, we were asked by his nursery to see the nursery doc, because they said my son didn't join in with groups and his concentration wasn't very good. He has had various tests and he saw a pediatrician. At the end of all of this, it was said he had and I quote" a communication problem".
Liam started school in September and he is doing really well. At a recent meeting with his teacher, she mentioned that he was Autistic; we nearly fell off ours chairs!

We have never been told about him possibly being Autistic, and his teacher only mentioned it accidentally, she thought we had been told. It was his old nursery who had told his new school about our son being on the Autistic Spectrum.

My son has never been diagnosed.

I have since researched Autism and I believe my son has Asperger Syndrome. He displays a lot of the traits.
I have noticed since he started school that his behavior has improved a lot and it's more of the social side and changes that he find hard to cope with. His teacher has told us he knocks spot off some of the other kids when it comes to learning words and letters.

Since we accidentally found out about our son having Autism, we have written to the pediatrician he was under and we finally have an appointment with her in 2 weeks time. I just hope she?s ready for us!


I?m pleased I have found this site; it was given to me by someone on another site.
I hope I can find the time to be around quite a lot. biggrin.gif

#21 viper

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Posted 12 November 2003 - 11:03 PM

Hi I'm Wez or Wendy.
I have already posted but thought I had beter tell you who I am. I am a 38 year old mother of 4 from kent. My children are Jennifer nearly 16, (has dyslexia) Jodie 12 (AS diagnosed at 9) Abigail 9 (psorias, skin condition) and my only boy Kian 3 (AS undiagnosed).

I married my partner of 16 years on October 11th this year with our son playing the part of Camilla Parker Boles(spelt wrong?) he never left my side through the whole ceromony and kept asking for Jelly tots (my dress had tiny beads on that made him think of them) rolleyes.gif and saying can we go home now. If you have read my postings up to now you can imagine the trouble we had getting him out of the door let alone wearing clothes.

My husband is a train driver, also 38 and I am a full time mum. I found this site when I was feeling very low and used a search out of desperation to my relief I found a UK site.

Our experiances with AS started When Jodie was born, She entered life screaming and hasn't stoped yet. We felt she hated us and we could do nothing right, as time went on she had strange phobias, grass was like a seething mass of wiggly green things to her and none of the family was allowed to touch it without her screaming hystericaly which made life very hard for Jennifer. At this point I had an idea things were not right but my husband could not accept there was anything wrong (a male pride thing) not untill she reached 9 and was still screaming did he agree with me and we sought help from my health visiter after Kian was born. It all just came out one day when she was checking on Kian and she was wonderful, we had an appointment at a special centre within weeks and a diagnosis followed very soon. Jodies school did not agree with it, her teacher said she was just rude and ignorant, refusing to even speak when asked questions. rant.gif
Her current school say she has 'age appropriate behaviour' but they don't see her when she 'lets go' at home.

Now we have Kian a whole new set of problems, he loves me so much it is a problem, I am his world. I love him just as much and even with his problems would not swap him for anything, the same goes for all my children and I am so proud of them all.

Well thats me done, you might notice I go on a bit but I have never had anyone to talk to about all this and fell the need to unload onto someone, Sorry.
Wez.

#22 Guest_kathy_*

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Posted 13 November 2003 - 01:05 AM

Hi

I am Kathy I have just posted my first message on this site in the Parents section...

If you read it you will see I am Charlottes Mum (and Jens) - but being Charlottes Mum has taken up most of my energy, time etc of the last 16 years.

I am feeling very down today - hence the searching of the internet late at night (Peace at last Charlotte has at last gone to sleep)

I am looking forward to reading more posts tomorrow when I have more time.

I will be back!!!

Kathy

PS I live in Devon if anyone knows of any support groups etc in the area

#23 eddie

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Posted 20 November 2003 - 09:14 AM

just wanted to say hi to you all, i havn't been on at all for ages as my little one has been very poorly and we have been out of the picture for some time. we have had a few weeks of hospital stays and daily visits as he has screamed the place down and we thought it best to take him home!!!!things are looking better now and we are in the real world again!!!!hope you are all well smile.gif

#24 Elefan

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Posted 20 November 2003 - 10:55 AM

Welcome baack!! So sorry to hear your family have all been having a rough time of things. Hoping this will now be the start of a more settled period,...just in time for Christmas!! wacko.gif

Take care,

Elefan
xx

#25 jue

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Posted 21 November 2003 - 03:17 PM

Hello everybody,
I have three children, my middle child we think has aspergers syndrome, he is due to see the consultant next week. He is four years old ad it is a struggle every day.

#26 Kris

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Posted 21 November 2003 - 03:36 PM

Hi Jue and welcome to the forum.

We hope you can use the forum to find the help and support you need and maybe make that struggle a little easier.

Regards,

Kris

#27 jue

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Posted 21 November 2003 - 03:52 PM

Hello Kris
I ound this site totally by accident, and it is really great to read other peoples experiences. Tom is four and the past twelve months have become harder, changing routines for him leads to full scale battles with us all. I have spent many nights crying feeling inadequate. My husband has found it very hard to deal with it has taken me six months to ge him to come and see the consultant our appointment is next week. Before I neverunderstood how hard it is when a child has to be involved in certain routines.

#28 Kris

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Posted 21 November 2003 - 04:58 PM

Hiya Jue,

I have to make an admission, i dont have an ASD child but I am very close to my best friends children one of whom has an ASD so I can understand some of what you are saying.

We created this site to expand our own knowledge of ASD's and to provide a sounding board for other people who have or know those with ASD's.

I hope you are able to find things on here that will help you and very much hope that you'll continue to post your experiences. There are many people on the forum who have gone through or are going through the same things as you and will be able to provide a friendly ear or practical advice depending on your needs.

If you need a more private method of communicating then use the PM and email systems (see My Controls above)

Best of luck and please post whenever you feel the need.

Keep smiling,

Kris

#29 ksasnic

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Posted 03 December 2003 - 01:30 AM

Hi all,
I have just posted what seemed a rambling posting in the ... I'm not sure thread it mentioned a tv program and a diet. It was probably in the completely wrong place but I was that grateful to find somewhere to let go...so as to speak but not literally !!! I just typed and posted before looking around.

My son is 7 and is in the process of being diagnosed, he's been through so many people so far from clinical, educational, psycho, eating, speech and occupational therapists as well as the drs before the specialists get hold of him..... the waiting list seems endless having been told that its at least 20 months long even though they all have said he is definately in the aspergers group. I have fought with the school who are only just starting to realise that I will fight them for my son to be accepted as a little boy with problems and not just a disruptive boy with a trouble making mother.

I am a single parent bringing him and his 14year old sister up in West Yorks and finding this site was a real blessing the relief was immense and the tears have just stopped flowing. I have found it hard to realise that the norm that I thought was real was not really the norm at all... and the relief strangely reassuring.
Thanks for this site

#30 Kris

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Posted 03 December 2003 - 03:41 PM

Hi there and welcome to the forum. We are so glad you found our site and that it is already helping you.

Please let us know how you get on and remember that there is a huge amount of support from many people on the forum, so if you ever need help then just post.

Kris & Elefan
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#31 joanne

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Posted 05 December 2003 - 03:05 PM

My son who is 17 years old has just been diagnosed with mild Asperger. I have felt for a number of years that something was different about him. He is of high intelligence gaining all A* in his GCSE's. Since going into sixth form at Grammar School he does not seem to have coped very well, and i have now found out this his due to the unstructured amount of time that they have.

On his assessment the Dr pointed out that my son has learnt to cope with alot of the traits of aspergers but unfortunatly due to the overload of work and commitments he now has at school he is having difficulties. He is due to go to University next year and this worries me because I do not feel that he can look after himself in certain areas of his life.


Joanne
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#32 nellie

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Posted 05 December 2003 - 04:25 PM

Hi

I can understand your worry. It may be possible for your son to ask the university for help and support. They may be able to provide a mentor.

The following books might help.

Pretending to be normal and Asperger Syndrome in the Family both written by Liane Holliday Willey. Liane is a doctor of education, a writer and a researcher. Dr. Willey has a husband and three children. She also has Asperger's syndrome, just like her youngest daughter. She gives accounts of life at university.


Hope this helps

Nellie.

#33 Sandra

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Posted 23 December 2003 - 06:40 AM

Hi everyone,

As I am new the site, I thought I would just intruduce myself.
My mame is Sandra and I live in South Wales. I am a house wife married to Gareth who is a telephone engineer. We have 4 children and our third son Daniel aged 11 has Aspergers Syndrome.

Daniel started comprehensive school last September with a full time one-to-one teacher but as expected things are not going too well.

Hope to post a little more later and join in the discussions.

Regards - Sandra

#34 tinytrace

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Posted 23 December 2003 - 11:25 AM

hi sandra

my name is tracey and we live in northeast lincolnshire
my husband lee and i have 5 children and our second child (son) aged 12 has aspergers

i know what you mean about things not going too well in secondary school, i think is because its a much bigger and less organised environment

anyway just wanted to say hello and welcome to the site and hope it helps you as much as it has me

hope to hear from you soon

tracey xx

#35 mossgrove

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Posted 23 December 2003 - 11:46 AM

Welcome Sandra!

My name is Simon, we have four children and our eldest (6) has Aspergers Syndrome. He is at amainstream Primary School with 1:1 support. We live on the Wirral.

You may find discussions are a little quite at the moment as many of the regular contributors seem to be taking a break for Christmas.

#36 nellie

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Posted 23 December 2003 - 01:46 PM

Hi Sandra

Welcome to the site. I have two sons, 23 and 25, my eldest has ASD and my husband has recently been diagnosed with AS. I am Scottish but have lived in Berkshire for the past 18 years.

Hope you find the site useful. Kris and Elefan the hosts have done a brilliant job.

Seasons Greetings to you and your family.

Nellie.

#37 vjmac

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Posted 05 January 2004 - 10:47 AM

Hi there,

My name is Vicki and I live in Scotland. My little girl who is almost 5 was diagnosed as having AS on New Years Eve. While I am devastated that she has to have this, I am so relieved that she has finally been diagnosed.

I have known for approx 2 years that there was something wrong but have spent most of that time fighting with professionals and trying to get them to see what was in front of them all this time. Now I can expend my energy looking after my girl instead of convincing people that I'm not a bad parent!

My thanks to Simon for introducing me to this site.

Vicki

.

#38 Elefan

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Posted 05 January 2004 - 11:08 AM

Hi Vicki!! Really glad that you have found the site now and hope it can be of some help.
You can feel rightfully vindicated now that you have a diagnosis. Now hopefully, once you get over the initial range of emotions that will follow this, you will be able to channel all your energies into getting the help your family deserves. Very best of luck.

Kind regards,

Elefan

PS Thanks Simon, too!! wink.gif

#39 pat

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Posted 05 January 2004 - 01:14 PM

smile.gif
Hi Vicki,

My name is Pat and I also live in Scotland, North Ayrshire, and my 6 yr old son Peter was diagnosed AS in November. Like you Iwent through the whole range of emotions when it was finally confirmed, but they only told me what I had already known for a long time. Finding this site was great for me as it gives me the chance to express my feelings and experiences with other parents who understand. Hope it will be helpful to you too!

Bye for now,

Pat

biggrin.gif

#40 Laura

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Posted 09 January 2004 - 05:22 PM

Hello all,

I would like to introduce myself. I'm Laura. I have a 5 children (3 girls, and 2 stepsons) my twelve year old stepson has recently been diagnosed with aspergers. I'm currently trying to find out all I can. We have been finding it extremely difficult getting helpful advice from professionals. I feel looking through some of the postings has already been a help and I hope I'll be able to pick up some more tips from this site!




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