CarolJ Report post Posted April 7, 2004 Hello Bid and thanks again for the recommendation to the site. It looks like a pretty friendly place. Since giving up work I am trying to find things to keep me sane and the internet has kept my brain from turning to mush. Its great to talk to others in the same position. I think the problem is that although I have many friends with children with special needs we all find it difficult to get together because of the limitations of our children and when I have my kids with me, especailly my boy all conversation goes out of the window as my son monopolises my attention as I am constantly tearing around after him. Its like he's stuck in that baby stage (you know when they first learn to walk and you have to follow them around). The only problem is he is superfast - keeps me fit though! Share this post Link to post Share on other sites
Helen Report post Posted April 7, 2004 Hi Carol Welcome to the forum. I read your introduction post and found it to be quite something... From your post you're really convinced that the MMR vaccine damaged your children - I know that after my son Daniel had his MMR, he did change for the worse, although I can't put it down to the vaccine as there is 'undiagnosed' history on both sides of our family. Have you condisered registering with a solicitor for vaccine damage? kind regards, Helen Share this post Link to post Share on other sites
CarolJ Report post Posted April 7, 2004 I contacted Alexandra Harris but at the moment the legal funding has been withdrawn for the cases. Have you been on the JABs website, it explains about it there. Since no funding they are not taking on any more cases - they have also stopped the research that investigating the cases. I am trying to build up medical evidence of my own at the moment and just hope that the legal aid board will reconsider their decision. In USA cases are successful but I can't help thinking with things like BSE and Gulf War Syndrome I find it hard to trust what I am told by officials. I have have emails from GPs and scientists who have researched blood/brain barrier and they all seem to think there is a link. I can only go by what I have seen in my own children and my son's reaction was like a slap in the face. I felt that my trust in the health profession has been betrayed. I have asked four times for a MRI brain scan to see if my son has brain damage. I think my son's peadiatrican finally got the message on the last visit because I was a very angry mum - I've always thought "they know best" but they dont. Parents know their children best and need to be listened to. Anyway, that's enough of that, I could go on all night and bore the pants of you! My kids are happy and apart from bowel problems are realtively healthy. There are children with a lot worse problems so I can grateful for small mercies. My boy is a character and believe me he always brings a smile to my face, my little girl could whinge for England! Regards CarolJx Share this post Link to post Share on other sites
Kris Report post Posted April 9, 2004 Hi Carol and welcome to the forum Kris Forum co-Host Share this post Link to post Share on other sites
CarolJ Report post Posted April 9, 2004 thanks Kris, pretty friendly lot on here! You will all have to excuse my warped and twisted sense of humour - if I ever offend anyone it is never intended - perhaps I should issue a pubic health warning - perhaps amend my signature! Share this post Link to post Share on other sites
Kris Report post Posted April 9, 2004 You will all have to excuse my warped and twisted sense of humour And you will have to excuse ours btw... Ive taken the liberty of fixing your signature You can send a cheque made payable to ........... Kris Share this post Link to post Share on other sites
CarolJ Report post Posted April 9, 2004 chq for fixing signature bouncing its way to you as we speak! thax for welcome Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 Hi , Im a mother of 2 boys 10 & 4 . My oldest son was unofficially said to be " very very mildly - on the cusp of - autistic " . I was told that it is so mild I wouldnt get a diagnosis and it wouldnt do my son any favours . After researching more into the traits I now disagree . I am just trying to make sense of all the information there is out there . I have alot of friends who tell me " oh yeah , my son does the same " . If I hear about someone elses son once more ... When I was first reading up on things I thought my son cant have it because he doesnt have an obsession , but while talking to someone from an Aspergers and Autism centre I was told his obsession seems to be time . I am so lost and dont know where to begin . I was told to see my sons SENCO at school which I will do when they return in just over a week . Im wary of going to my DR as I went to him about 2 yrs ago about my sons behaviour and I walked out with a prescription for Lustral for me . If anyone has any suggestions please let me know . Share this post Link to post Share on other sites
Helen Report post Posted April 10, 2004 Hi Purdy 1, welcome to the forum You have another week yet before you're going to be able to approach the SENCO - try scrolling through the many topics available in both the education and advice sections. There's a lot of info there and some of it isn't easy reading - if you can't find what you're specifically looking for, construct a post and I'm sure that someone will try to point you in the right direction or actually find it for you. Kind regards, Helen Edited post 11:51 - if you're not sure where you need to begin, when your son goes back to school, you'll need to find out if your son is on the special educational needs register (and if so, at what stage) once you know that, then you can progress from there. Sorry if this doesn't help you in the meantime. Share this post Link to post Share on other sites
CarolJ Report post Posted April 10, 2004 Welcome Purdy1 - sorry to hear - we all know that feeling of despair! With my two I asked for a referral to Educational Psychologist - they are the ones who assess the child's needs and make recommendations for educational needs. It is (unfortunately a longwinded process) but on the plus side you do get input. I am sure a child does not need to have a diagnosis in order to a statement for education and help in general. I think the SENCO may be able to refer you to an educational psychologist. Whether or not you choose to push for a diagnosis I will be your choice but I think by the sounds of it you sound pretty upset by it all! I personally feel with a diagnosis it is easier to explain to other people what is wrong with your child. Otherwise you feel you have to try and explain and it can be longwinded. I find the word "autistic" usually shuts people up! If you read some of posts on here about our kids I think you will find that you are certainly not alone. It can be isolating when you feel your son is the only one. We are all in the same boat here! Welcome again and hope to speak soon and remember you are not alone!!! - sounds like the X-files here! Regards Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 My son has been seeing a clinical nurse . She is the sort of nurse kids see when they have attempted suicide . My son hasnt done this but has said things like " I wish I wasnt alive " or " I dont want to live no more " . He has never said he wanted to kill himself and at the time of saying these things he would have only been about 9 . She is the person who has come to the conclusion about my son being mildly on the cusp of autistic . I am just pretty peeved at people trying to compare my son to theirs saying oh hes just a typical boy when he forgets to flush the loo or wipe his own rear end . A comment he made a few yrs ago now comes to mind when asked if he wiped his bum . He said " but I did that yesterday " . Im wondering how much of that is a normal response or how much of it is questionable ? These are the sort of problems I have with him . He is ruled by time when we go anywhere . He needs to know how long it takes to get there , how long we will be there , if its to a shopping centre he has to know how many shops we will go in . Then after all that he will try to calculate the time we will arrive home . If we go into a shop that I didnt expect he will declare that Im a liar ! He cannot for the life of him use a knife and fork now matter how many times he is shown . Is so much more of a messy eater than his 4 yr old brother . Gets angry when his laces come undone . As far as he is concerned he did them and they should not come undone . He is such a sloppy dresser , he will come downstairs with his trousers tucked unto his socks , t shirt or top tucked into his pants and the pants waistband above his trousers on show . When he comes out of school he will carry his bag , jumper , coat , lunchbox and any letters or homework . I know alot of these things will seem like normal kid stuff but how many do you draw the line at ? There are so many more things that I could honestly be here all day listing . Im desperate for some kind of recognition or diagnosis for my own sanity . I feel guilty if I tell him off for things because I dont know if its just him beling lazy or if there genuinely is a problem . Share this post Link to post Share on other sites
CarolJ Report post Posted April 10, 2004 Purdy I am no expert but I you son really sounds like he is confused and seems to know he is "different" - that is classical aspergers. The awareness of feeling different is really hard. There is a post on here re whether kids are aware of their ASD. I think you will find on the whole that most benefit when they know about their ASD. Otherwise they struggle to understand why they are so different from everyone - that itself creates problems - frustration, anger and behavioural problems - they lash out and who can blame them. Sorry I don't want to analyse here but from what you have put down I think you and your son both would benefit from having a diagnosis - also he would get the understanding from his school and teachers, people and youself - in general. It seems easier when you know for sure (I think so anyway). You cannot force or expect an AS person to conform. Their minds just don't work like that. They take thinks very literally ie. You drive me up the wall! - they would look at you and say "how can a car drive up a wall - confused at what you are talking about" Or "you are doing my head in" - they would look at you and say "I am not touching your head!" - You have to be explicit and don't use "sayings" - everything has to be literal! Does any of this sound familiar? Anyway - what is normal? I hate society sometimes! Perhaps our AS kids are normal! Also AS's like to know ahead - they hate changes in plan or routine - when I gets upset that you go into a shop other than one already mentioned - it sounds that he has problems coping with unplanned changes or routine. Another classic thing. I have to stick a routine like a sergent major otherwise my son goes ballistic! Regards Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 I have told his teacher what the clincial nurse said and he said " it explains alot " . My son is not aware of ASD or anything in relation to Autism . He gets bullied at school for having red hair and freckles so already thinks he isnt normal . I dont want to add any more fuel to his fire so we havent told him anything . I dont wish to tell him anything until I absolutley have to . As for taking things litterally ... I say alot of things and he is usually fine with them . He is very unsympatheic to me though so when I say things like " Go away , youre doing my head in " he doesnt go away . He continues to bug me until Im practically at exploding point . I dont know about not getting jokes . We havent known about his possible ASD to test it out but last weekend when we were going to be staying overnight in a B&B I said his brother would have to wear a nappy cus he still wets the bed occassionally and that the hotel will call the police if his brother wet the bed . He thought I was serious . How much of that is a normal 10 yr old ? I dont know ... Share this post Link to post Share on other sites
CarolJ Report post Posted April 10, 2004 Is he able to read moods? Ie can he tell by looking at someone ie a picture whether they are sad or upset or happy. My daughter has problems with verbal humour and jokes. I love red hair and freckles - kids can be so cruel sometimes. I think for your own sanity you need to push to get him "assessed". The possibility that something may be wrong with your child is a really hard thing to deal with. Beleive me I've been there! The anger the questions why my child - I could go on forever. It sounds as if this realisation of AS may be quite a recent thing so you are probably still in shock. Please please please - don't feel you are alone. We all know and understand how you feel,the worry the fears the tears and the anger. Perhaps if you get him assesed it may turn out that he does not have AS, I often wish that one day my son would wake up and be like every other like boy - wouldnt it be fantastic. I felt as if I greived for my son when I found out - I honestly felt as if I had lost the child I had thought he would be - but I love the child he is - even though he drives me crazy!!!!! Please don't feel you are alone, we all understand. Take care, must go now, WWIII is going on downstairs. spk soon Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 We were told about his possible ASD about 2 months ago . I was devestated , it was the last thing we would ever have thought of and come completley out of the blue . I grieved for my son and cried . At first we didnt want him to be diagnosed and she said it wouldnt do him any favours and that was even "if" we got a diagnosis at all . I need to know and will do what I can to get a diagnosis one way or another . Share this post Link to post Share on other sites
CarolJ Report post Posted April 10, 2004 You know what, I felt a relief when I finally got the diagnosis. It was weired - I cried and greived when someone first cofnirmed my fears and suspicions that there was a problem. It has got to be one of the hardest things in the world to acknowledge the perfect baby you brought into this world - all the hopes and dreams and plans - I wanted my son to be a doctor, his dad always wanted him to play for Glasgow Rangers - that all changes - the goal posts move with any disability. It is hard to suddenly - especially at the age of 10 - to hear about the possibility of AS or anyother problem. Noone tells you how to deal with it. They tell you oh he could be AS, goodbye - and off you go - in shock! Question upon question in your head - sometimes I think these professionals should have lessons on how to tell people! Everything seem to change when you actually hear someone else say there is a problem. I remember I broke down sobbing on the train the next day on the way to work - I could not help myself - I started thinking and that was it! I was a blubbering mess! You know what these rush hour trains are like!!! Noone knows how to take you! In hindsight it was funny but at the time I felt terrible. Go for the diagnosis Purdy - in the words of the immortal Del Boy "you know it makes sense" Share this post Link to post Share on other sites
nellie Report post Posted April 10, 2004 Hi Purdy 1 Welcome to the Forum I can understand your difficulties in understanding and trying to come to terms with the possibility of your son having an autistic spectrum disorder. Try to stay calm, read as much as you can, take your time and observe your son, noting any behaviours you think are relevant. Keep a small note book and list any points. If you go to a specialist for a diagnosis you will have to give him as much information as you can, he may be an expert but you are the expert on your son, you know him better than anyone. I have just come across this booklet this morning. I will give you the link, you may find it helpful. http://www.learningdisabilities.org.uk/htm...bout_autism.pdf Most people on this site will be able to relate to your problem. Take Care, Any questions, just ask. Want a moan, moan away. Nellie. Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 Thank you so much for your replies to my posts . You will never know how much they mean to me - to have someone who "understands" . I am in shock , turmoil and god knows what else right now . For so long I have had problems with my son but never for a second did I think it would be this . We just thought he was acting stupid most of the time and would tell him to behave or grow up . When he gets embarassed he will get angry or have a tantrum . I cant stress how much I need to know whats normal and what isnt in the things he does . We have lived with him for 10 yrs and have nothing to compare him to so I wouldnt know what would be considered ASD and whats normal . I have started making notes about things he does and has done in the past . It will be up to whoever does the diagnosis (if I get that far) to deem whats what . Sorry if Im rambling ... Share this post Link to post Share on other sites
Maria Report post Posted April 10, 2004 Hi Purdy I think I know how you feel. My son , also 10, has been diagnosed 2 months ago with Asperger. We decided not to tell him at the moment because he is trying not to be the odd one out at school anymore. He seams to be fine and the last thing he wants to here at the moment is to be different. So we'll wait and see.... My son also doesn't fit the whole picture of Asperger. He for example has a great sense of humour and can read facial expression. But he has obsessions and phobias and difficulties to make friends. The phobia was the reason in the first place for searching professional help. Luckely we had no problem to get him diagnosed because his wasp phobia was so accute. He has also been bullied at school because he is not sporty and slightly clumsy. Some of the boys pick on him because he is German. They call him "Germinator" or even worse, "Hitler". This hurts, but he does not want me to tell the teacher, because he does not want to get attention from everybody. I think he just wants to be "normal" at the moment. Purdy, take your time and yes, I also think it helps to get a propper diagnoses. Maria Share this post Link to post Share on other sites
pookie170 Report post Posted April 10, 2004 Ooohh, Maria, I'm fizzing on behalf of your boy! The one thing I would not tolerate when I worked with kids was this sort of teasing, although that's a really mild word when you consider how it makes our kids feel!! Maybe you should get your son -it's Leon, isn't it?- to react to the name calling in a way the other kids are not expecting...not in a confrontational way... If it was me, I'd probably tell him to say "Hasta la vista, baby!" or something when they come up with 'Germinator', but you never know if that would make it worse for him. As long as he knows he has every right to be proud of his roots, he'll be fine! Tell him he has a 26 year old woman in awe. I wish I could speak two languages, he's obviously a very clever and intelligent chap. Maybe he should enlighten his tormentors, and tell them that Hitler was actually Austrian!!!(As is Arnold Schwarzenegger, I believe. Don't they teach their kids anything???) Tell him that I ,at least think he sounds like a very cool dude! Esther x Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 My son gets called "ginger pubes and freak " because he has freckles . They say " freckles is spelt F-R-E and so is freak so he must be a freak ". I have been to the school about it and to my face they were lovely telling me they will watch out for it . Next thing I know I had a letter outlining an incident my son was involved in where he hit another child . He wont let me involve the school no more as he gets picked on worse . What can I do ? Share this post Link to post Share on other sites
CarolJ Report post Posted April 10, 2004 I am so sorry to hear of this teasing and bullying, the school is responsible for this. What is their policy on bullying! They should be watching out for this especially if they suspect your son might have AS - and you said you spoke to his teacher. My daughter has had a couple of incidents where she has been called "fat" or "stupid" and some boy stole her crisps. I straight away spoke or wrote to the school. Thankfully that was the end of it. You say you son does not want you to contact the school - perhaps you can do it so that he does not know about it - the school have a duty to keep him from being bullied. Even if he did not have suspected AS. I think it is really terrible, poor thing. My blood is boiling on your behalf!!! Perhaps because my daughter is statemented they tend to watch out for her. All I know she is happy to go to school and enjoys it (she's 8). I did worry about mainstream schooling but I think I made the right decision. She is "touch wood" happy at the moment. However I always watch out for it and am sensitive in case anyone upsets her - too sensitive in fact! Something will have to be done - it sounds like its upsetting not only your son but as a mum you must feel terrible - you poor thing. I think the SENCO may be the best one to talk to. Again, I am sorry and I hope it gets resolved - you must feel helpless and your son sounds frightened - its funny but that is what bullys rely on - kids thinking it will get worse if they tell! Good luck anyway, thinking of you. Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 10, 2004 This bullying and letter incident was way before we had any idea he may have ASD . I will be seeing the SENCO as soon as they return to school after the Easter holidays . Share this post Link to post Share on other sites
nellie Report post Posted April 10, 2004 Purdy 1 and Maria This is bullying and I can understand your sons reluctance to have you 'interfere'. You have to decide after weighing everything up if he needs support with this situation. Children with ASD can be very vulnerable. They often do not understand bullying some even think that it is ok to be bullied, that it is normal behaviour and they are expected to put up with it. There is a leaflet on the ACE website on bullying http://www.ace-ed.co.uk unfortunately it now costs �1 to download it. It's well worth looking at. The following two sites may help http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=108&a=3239 No one should have to suffer bullying. Nellie. Share this post Link to post Share on other sites
Helen Report post Posted April 10, 2004 Hi Purdy1, I'm so sorry you are feeling so alone at the moment... you're not alone, we are here to listen Have you viewed the topic 'Australian Scale for Asperger's Syndrome' in the education section? This is what an independent educational psychologist is presently using on my son (assessment hasn't finished yet, as he has to pay a school visit and home visit). Daniel has formally been diagnosed as being AS, but I still had to complete the above questionnaire, to confirm that he is AS. From reading your posts, your son could have a degree of dyspraxia - poor body co-ordination, poor organisational skills etc - it sounds very familar to my son who has dyspraxia. I've also read that you seem somewhat reluctant to visit your GP about your son - if you want answers, this must be the next course of action, as your GP would be able to refer your son to the necessary departments - the drawback is long waiting lists, so the sooner you enquire the better; you're clearly at your wits end... Your GP could refer your son to a clinical psychologist (not a clinical nurse) for his behaviour problems, an occupational therapist to assess your son for dyspraxia, a psychiatrist - who'll take into account the entire family's history - to establish a diagnosis. Your GP could refer your son if applicable to a specialist speech and language therapist or an audiologist. If you want your son to be assessed by an educational psychologist, either school or you will have to request this. I don't know if any of this helps, kind regards, Helen Share this post Link to post Share on other sites
nellie Report post Posted April 10, 2004 He cannot for the life of him use a knife and fork now matter how many times he is shown . Is so much more of a messy eater than his 4 yr old brother . Gets angry when his laces come undone . As far as he is concerned he did them and they should not come undone . He is such a sloppy dresser , he will come downstairs with his trousers tucked unto his socks , t shirt or top tucked into his pants and the pants waistband above his trousers on show . When he comes out of school he will carry his bag , jumper , coat , lunchbox and any letters or homework . I know alot of these things will seem like normal kid stuff but how many do you draw the line at ? There are so many more things that I could honestly be here all day listing . Purdy Your son sounds very like mine. He has learning difficulties, we thought he was immature and would eventually grow up. He also had irrational fears and phobias. We were told by everyone that we were making a fuss about nothing. Our concerns were never taken seriously. It wasn't until he was 19 that someone mentioned ASD. I immediately found a book on autism, within a few pages I knew my son had ASD. The more I read the more I understood his behaviours. He's 25 now, a handsome young man, and yes, he has eventually grown up. He still has ASD and has learnt coping strategies to deal with his difficulties. My husband has Asperger syndrome. They are lovely people and I am immensely proud of them both. Nellie. Share this post Link to post Share on other sites
Helen Report post Posted April 10, 2004 I knew my son had ASD. The more I read the more I understood his behaviours. He's 25 now, a handsome young man, and yes, he has eventually grown up. My husband has Asperger syndrome. They are lovely people and I am immensely proud of them both. Nellie, What lovely sentiments... Helen x Share this post Link to post Share on other sites
Maria Report post Posted April 10, 2004 >>If it was me, I'd probably tell him to say "Hast La Vista Baby" or something when they come up with 'Germinator'<< Hi Esther, how funny, my mother suggested exactly the same . .... I probably have to suggest it to Leon. Thank you very much for your sympathy. I think I'll go and have a word with his teacher after the holidays. Hi Nelly, thanks for the links they are very useful. Maria Share this post Link to post Share on other sites
pookie170 Report post Posted April 11, 2004 Hi Maria, I'm sure it was Robin Williams that said he used humour as a defence against bullies at school..I think because it's the last reaction the bullies expect, it throws them. "Laugh and the world laughs with you..." as they say. It's tough to do though! I think everyone here will have experienced this with their kids. I know I've seen other kids deliberatly do things to wind Caghal up so that he does something naughty and gets into trouble. His teachers were great about it though, they knew which kids to watch out for and made sure it wasn't Caghal that got into trouble. I just hope he gets on better at his new school. I'm dreading a repeat performance of "Could you come and collect Caghal, please, he's having a bad day..." It's keeping me awake at nights!!! Good luck! Esther x Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 21, 2004 Quick update - My sons nurse come out yesterday and we have started the process of getting him diagnosed . She asked us lots of questions (thank god she understood them lol) next step is to get the school to fill in their bit . Then she will present it to the Drs and see if there is enough evidence for an assessment . I have very mixed feelings . I almost feel that I am labelling him myself by asking for an assessment . I dont know how he will react to this . We have agreed not to tell him anything until he has to go see the Drs . If they think there is not enough evidence then he doesnt need to know anything . Share this post Link to post Share on other sites
Elefan Report post Posted April 21, 2004 Hi Purdy, Just a thought,... You could try preparing him for his Drs appointment (if he ultimately has one) by saying that the Dr will be trying to help him. Assuming he is aware that he has problems which impact on him and your whole family? We told our little girl that we were going to see a special doctor who would try and help us all (making no mention of disorders/diagnosis). Also, that we knew she wasn't just a 'naughty girl', and whatever was causing the problems would hopefully be addressed now. She was relieved,...and showed her true colours to him!! Even without a diagnosis, the Dr could still be in a position to help you all, making the necessary referrals. I know some children who get more support within the school environement but whom do not have any diagnosis, than my own girl has WITH a diagnosis. Have a look at my 'circle of friends' posting under Education. Such schemes do not apply only to children with a diagnosis. Something like that may help with the bullying he is experiencing, too. Good luck. Elefan xx Share this post Link to post Share on other sites
pookie170 Report post Posted April 22, 2004 Purdy, the way things are, we are almost initiated into the belief that labelling is always a bad thing. I know we worried about our boy being labelled, but there are positive sides to a label too. Obviously, it gives you the reason for your child's behaviour (and relief at knowing!!) but it opens doors to assistance that remian locked without. For instance, my boy would never be at the school he attnds now, having fun and actually learning, without his 'label'. Or it would have taken far longer without at any rate. One thing has confused me though..(it happens all too easily, sad to say!! ) I thought that GP's had to make referrals when parents request one....that's how it went for us at least? Anyway Purdy, I hope that you guys get some help, with or without a diagnosis, and that the process goes smoothly for you. Let us know how you get on, please. Best of luck!!! Esther x Share this post Link to post Share on other sites
Purdy_1 Report post Posted April 22, 2004 I didnt go through my GP at all . The last time I went to him for help for my son I walked out with a prescription for Lustral . I had come to the end of my tether with him and went to see my younger sons H/V . It was the health visitor that refered me to the clinical nurse he sees now because my son was having thoughts of dying , death (not suicidal and he was only just turned 9 at the time) , self harming through frustration . We started seeing his nurse (shes from the Children & Adolescent mental health service) in January 2003 . Along the way we discovered many things , mostly about me and as a result I am also in councelling with a phsyco therapist (sp?) We have come a long way in the past 18 mths or so . It was my sons nurse who suggested to us he has mild autism and when I looked it up I was overwhelmed with a sense of relief that we had finally found a reason for his behaviour . He is not severely affected but I do worry that if he has thoughts of wanting to die now , what will happen when he is 13 or 14 and facing exams at school ? Highschool itself can be so daunting . I dont want him playing truant because he cant cope . I have been told he will inevitably have problems when he goes to seniors (sept 2005) as he will have many classrooms , teachers and more lessons to cope with . I will do whatever I can for my son . Share this post Link to post Share on other sites
pookie170 Report post Posted April 26, 2004 At least we're all in the same boat here, Purdy. Is there any way you could see a different doctor at your practice? If the doc is not being helpful, you might find one of the others is more sympathetic... Hopefully, when things get moving, you'll be able to get your son help regarding thoughts of death and all, I know how you feel. My boy is only 6 and he's talked about dying once or twice too, normally when it's been a really bad day for him... I hope they know we're there for them no matter what. Are his teachers aware of his difficulties? Perhaps you could ask the Headteacher for a referral to the Educational Psychologist, they might be able to help devise strategies to help your son cope better and plan ahead for high school. Good luck, Purdy! Esther x Share this post Link to post Share on other sites
dodobird Report post Posted April 29, 2004 hi, i'm jodie, wendys daughter (wez).i was first diagnosed with aspergers syndrome when i was 9, and i am now 13. I have to wear tinted blue glasses to keep bright light out of my eye otherwise i would get a migrane gauranteed. I first reallised that i had this condition when every day i would walk to school and before i had even got to school i would start to get flashing light(s),sometimes just in one eye and then i new what was coming and it was very irritating and othertimes it would hurt because my eye are very sensative to light often i would go home and hide my face in dark places so that it wouldn't hurt and pain killers wouldn't work so i went to the doctors and he dianosed me with aspergers syndrome and said that i had to take some medicine called sanomigrane and i had to take it before i went to bed and that made me drowsey and that would cover the next day and i took that for ages and sometimes i take a spoonful now and then and that would help. If you have any Questions you would like to ask me then i would be happy to answer. dodobird. Share this post Link to post Share on other sites
Elefan Report post Posted April 29, 2004 And a big welcome to you!! Really glad you have decided to join in. I hope we can be of some help to you sometimes too, as I am sure you will be to us. It can be very hard for us parents to get things right!!! Really sorry to hear about your migraines. I know from my own experience how horrible they are. My non-ASD girl used to get them once every 8 days, like clock work. Poor wee soul. Glad the glasses and medication help you. Your GP sounds very wise! Take care, Elefan PS If ever you have difficulty posting your message again, just contact Kris or me and we can sort it out for you easily. Share this post Link to post Share on other sites
nellie Report post Posted April 29, 2004 Welcome, it's great you could join us. There is one question I would like to ask - why dodobird? It's not a great question, but it's a start!! Looking forward to chatting with you. Nellie. Share this post Link to post Share on other sites
dodobird Report post Posted April 29, 2004 Hi Nellie The reason I chose dodobird is because when my little sister Abigail started to talk she couldn't say my name(jodie) so she called me dodo, my nickname at home is dodo. And I am the only dodo in the world. DODOBIRD Share this post Link to post Share on other sites
nellie Report post Posted April 29, 2004 BRILLIANT Thanks for that Nellie. Share this post Link to post Share on other sites
Gita Report post Posted April 30, 2004 Hi My name is Gita. My husband's name is Tariq & we live in North London. We both work, me part time & my husband full time. As you've probably guessed we are asian & have both lived in the UK for over 30 years. We are both 45 years old. Our only child is called Shaan & he'll be 4 in June. He was diagnosed in June 2003 with ASD. His nursery put in a request for a statement a few weeks ago & his case has gone to Panel today. I should hear by early next week if they have agreed to go ahead with the assessment or not. Shaan is an extremely happy little boy. He is very vocal but needs lots of help in social interaction. As an only child, we try not to spoil him, but sometimes this is difficult. We need to encourage him to ask for things, so of course he asks for chocolate/crisps etc & you cant reward his efforts by saying no! He does all the usual AS things like spinning, being absorbed in his own little world, faddy eating. One plus side though is that he can read. Gita Share this post Link to post Share on other sites
