bid Report post Posted May 19, 2004 Hi Sarah, Welcome to the forum! You will find that this is just the best place for advice, support or a (virtual) shoulder to cry on!! It is also very good if you can't sleep because your head is buzzing after an appointment with your child's specialist! And, if you need a laugh, perhaps I can tempt you into the Bat Cave ...see in General Discussions... Bid Share this post Link to post Share on other sites
lynyona Report post Posted May 20, 2004 Hi sarah nice to meet you and welcome. lynn Share this post Link to post Share on other sites
CarolJ Report post Posted May 26, 2004 Hi Sarah, welcome to the "mad house". Its okay, we dont stand on ceremony here! Feel free to off load stress, we all do it. Look forward to posting with you. Take care Share this post Link to post Share on other sites
hartshayrose Report post Posted May 27, 2004 Hi there long time since I posted, but been busy with other things & I also was worried I was getting totally obsessed with AS! Today I am introducing My son Josh to the forum. I decided to tell him that he has AS. I was worried about telling him, but I'm so glad I have, he finally understands himself a little better, all he said to begin with was "I knew I was differant"!!!!!! any way have told him he can write here and say his own hello, so over to Josh!!!! hello Well that was Josh's cotribution! he just wanted to hit his head against a wall! well we'll have a look round the forum, maybe help him a little more! speak to you all soon Jackie x Share this post Link to post Share on other sites
viper Report post Posted May 27, 2004 Hi Josh, <'> My daughter posts here, she also has AS. She is 13 yrs and posts under the name Dodobird. I hope you find things you need to know and any questions you have will be answered here I'm sure. Welcome to the world of ASD its a wonderful place to be. Wendy. Share this post Link to post Share on other sites
CarolJ Report post Posted May 27, 2004 (edited) Hello and a warm superhero welcome to Jackie and Josh. Josh I know the feeling of wanting to hit your head against a brick wall! I do it all the time, even when I dont mean too! Hope you both derive pleasure from the site, "most" of us are okay, just watch out for the "strange" ones - you know who you are!!!! Will stop going on now, as you may notice from a few of my posts, I do have a tendency to ramble! I decided to tell him that he has AS. I was worried about telling him, but I'm so glad I have, he finally understands himself a little better, all he said to begin with was "I knew I was differant"!!!!!! Josh one day I will have to tell my Scottie, so knowing someone like you can help him and help me to understand him better. Welcome again Edited May 27, 2004 by CarolJ Share this post Link to post Share on other sites
autty39 Report post Posted May 29, 2004 hi im new here..i was diagnosed with HFA 3 yrs ago now..i also have epilepsy and mild learning difficulties..im married with 2 kids who also have ASD's..we live in south yorkshire.uk Share this post Link to post Share on other sites
saz690 Report post Posted May 29, 2004 Hi autty39 I live in South Yorkshire too! Where abouts are you? Sarah Share this post Link to post Share on other sites
Carol Report post Posted June 15, 2004 Hi everyone I thought I would jump in and introduce myself I have 3 lads nearly 11,12 & 13 - my eldest has AS, the question of ADHD rises it's head from time to time as well - he is mainstream & boy what a difference since he got away from the primary & went to secondary, he is really settling down & starting to channel himself :D soooo proud he (& others) are realising his potential My youngest is going through a dx of dyspraxia or specific learning difficulty that is moving along but as I am sure you are aware the cogs sure do turn slowly lol The biggest problem I always have is with them being so close in age - my middly lad perceives him getting away with stuff - "that's not fair just because he has aspergers !!" so I am always having to think of creative ways to let my eldest son learn about "appropriate behaviour" but getting his brothers to accept that sometimes he can ( & does ) display extreme behaviour lol I am also aware that he is now having to deal with hormones too, so he is turning into a huge "Kevin" lol. I have recently given up work, mainly to try & give them a bit more stability - there is no suitable chidcare for high school kids & the phone calls I was getting at work from school & carers were just getting so regular that I was sitting waiting for the phone to ring sorry, I have been known to ramble a bit lol, but this is a great site - I have been working my way backwards getting loads of info :D Carol Share this post Link to post Share on other sites
lynyona Report post Posted June 15, 2004 hi carol and also any new members im sure ive missed nice to meet you all .lynn Share this post Link to post Share on other sites
nellie Report post Posted June 15, 2004 Hi Carol Thanks for the introduction. It's good to hear that you are finding the site useful. Best wishes to you and your family. Nellie. Share this post Link to post Share on other sites
pookie170 Report post Posted June 18, 2004 Hi to all newbies!!! Hope to chat with you all soon! Esther x aka CC Share this post Link to post Share on other sites
Elefan Report post Posted June 18, 2004 Welcome to everyone who has joined recently. You're in good company!! Hope you find the forum helpful, resourceful and fun at times. Elefan and Kris Share this post Link to post Share on other sites
Kay Report post Posted June 18, 2004 Hi Everyone I'm Kay i am 42 and live in Nottingham with my 2 sons Kyle 9 who has Aspergers and Dyspraxia and Kieron 4 who as an eating disorder called Pica.Like a lot of you i find it hard at times and wonder how i ever get through somedays, things have been even worse since November 2002 when my Husband Michael died very suddenly and as i have no family here i have more or less done it alone and its so hard at times.Anyway better go don't want to bore you all in my first post ,but what i have seen so far this site looks like it will be a great help to me. Kay Share this post Link to post Share on other sites
pookie170 Report post Posted June 18, 2004 Hi Kay! Sounds like you've been through some very tough times, you have my sympathy. Don't worry about boring us, I think I'm the champion borer here!! Seriously, though, welcome to this site, hope you find it as big a boon as I do!! Chat soon, Esther x Share this post Link to post Share on other sites
nellie Report post Posted June 18, 2004 A warm welcome to you Kay, You will find this site brilliant for support and advice. Hopefully we can help you through the hard days and a visit to our Batcave in Introductions might even make you smile. They might even give you a hob nob in there! I don't think you will ever bore us Kay, people use this site for many reasons, offloading their emotions, be it anger or sadness, asking for advice or having a really good moan or scream. I am so very sorry to hear of your husband's death, you have my sympathy. It can't be easy for you. I look forward to further 'chats'. Have a virtual cuddle from me. <'> Best wishes to you and your sons. Nellie. Share this post Link to post Share on other sites
CeeLee Report post Posted June 21, 2004 Hi - I'm a newbie - so thought I'd introduce myself. I'm Christine, married to Jason with one son, Bailey who is 4 &1/2 years old, we live in Milton Keynes. Bailey is not yet been "officially" diagnosed with AS although it has been mentioned - been through a lot of appointments with lots of different departments and doctors - an appointment with his paeditrician in July will hopefully confirm things once and for all. He's at nursery at the moment and we are a third of the way into the statement process. There you go - my intro! Looking forward to getting to know everyone Chris Share this post Link to post Share on other sites
nellie Report post Posted June 21, 2004 Welcome Chris Thanks for the introduction. Looking forward to getting to know you too. Nellie. Share this post Link to post Share on other sites
niki Report post Posted June 21, 2004 welcome chris! Share this post Link to post Share on other sites
Vix Report post Posted June 23, 2004 Hi. I saw this site recommended on another website I use, and from what I've seen it's excellent, and has already helped me a lot. I've got 4 boys, Jayden is 5, Kyle is 2, and twins Caleb and Reuben, who are nearly 6 weeks old. Kyle has a probable social communication disorder, so I'm trying to find out what this could mean. He has speech delay, and doesn't interact very much with us. (He still hasn't noticed his 2 baby brothers!) He has obssessions, like switching everything on, and opening and closing doors. He also does hand flapping sometimes, while running up and down the living room, and he likes spinning round. He is such a lovely happy little boy though, and does like cuddles sometimes! He has been refered to Portage and for speech therapy. I am really impressed with how fast everything has gone sinced I first voiced my concerns to my HV. Although it was still a shock to be told there was something wrong, I think I was hoping to be told I was imagining things. Also the more I have read, the more I think that my Stepson (he's 14) has some sort of ASD. He is also obssessive, was a late talker, and has a very sensitive sense of touch, taste, and smell. (Can't go within a mile of him with a banana!!) He also doesn't seem to know how to behave socially. (which is embarrassing sometimes.) I know DH's nephew was assessed for Aspergers as well, but never got a formal diagnosis. and his other nephew has Dyspraxia. Also think DH shows some of the signs!! Apparantly Kyle is exactly like DH was as a child. Anyway, think I have waffled on enough. I'm sure I'll have lots of questions in the coming months for you. Vix xx Share this post Link to post Share on other sites
nellie Report post Posted June 23, 2004 Hi Vix Welcome to the site. Good to hear you are finding it helpful, have a good scout around, but beware of the Batcave, if you don't know what that is, you soon will! You must have your hands full, I'm exhausted just thinking about it! You should find lots of support and advice here. Sorry, we can't babysit though. It's good they are picking up your son's problems early and putting things in place. Nellie. Share this post Link to post Share on other sites
niki Report post Posted June 24, 2004 just having a glance and realised i dont think ive said hello to anyone!! ooops! Sorry and a big hello to all members that i havent said hello to and i beg your forgiveness in my ignorance! niki Share this post Link to post Share on other sites
baddad Report post Posted June 24, 2004 Hi All, I'm Baddad AKA David, and I've been looking around the site for a few days now without actually getting round to introducing myself... I'm a full-time dad, looking after Ben (nearly 7) who's ASD, ADHD and absolutely gorgeous. We live in Kent, where, thankfully, things aren't too bad in terms of resources, but as there's just the 2 of us we do find respite a problem so can occassionally (often!) drive each other nuts. That said, the important stuff (ie. consultants etc) ARE available, if you push hard enough, so I know we're in a lot better position than some of you poor beggars out there... Before Ben came along I worked for 5 years as a professional carer, mostly with adults with autism and/or learning disabilities, so I have a good perspective from both sides of the fence - a bit of a double-edged sword which can sometimes lead me to push Ben a bit too hard, 'cos I know how grim things can be. A big part of my moving into care work was that my Nephew (now 15) was diagnosed with autism, and I wanted (and was in a position to be able) to learn more to help support him. Since Ben came along, of course, this hasn't been so easy, but i still do a lot of stuff with him when I can, and am always looking out for things that are relevent to him. Ben follows a gf/df diet, which has been very helpful to him and also takes EyeQ capsules, which seem to have helped with concentration and stuff since he got fully "dosed up". Incidently, after my 1st post someone asked about the "baddad" thing... Nothing to do with Adam and Joe (?), It came about when we were making a compilation CD for Ben's fourth birthday. We wanted a "Label", and came up with BADSound Reproductions from Ben And Dad. Sounded kind of cool, so it's been Baddad ever since... Anything else? Well as you can see I do go on a bit, but I'm sure you'll have noticed that by now if you've read any of my posts! Share this post Link to post Share on other sites
CarolJ Report post Posted June 25, 2004 Welcome Baddad (aka David) (ne Captn. C or Squeeky Pants), I am glad you have enlightened us ! Explanations as to the background of wannabe super dudes always help! I often feel the need to explain myself to help others understand why my ramblings are as confused and long-winded as they are! Ben sounds like a cool little dude with great taste in music! Before Ben came along I worked for 5 years as a professional carer, mostly with adults with autism and/or learning disabilities, so I have a good perspective from both sides of the fence - A big part of my moving into care work was that my Nephew (now 15) was diagnosed with autism. David, how ironic you choose this line of work and along came Ben! I cannot imagine how you must have felt when you realised Ben was on the spectrum. More power to you. Before my kids ASDs I had absolutely no idea of autism, although I knew a couple of friends kids who were ASD, I did not really know much about the condition. Ben is indeed a lucky little boy to have a dad like you. My other half tends to "ignore" ASD behaviour, he finds it hard to come to terms with and as yet is not "there" in terms of accepting possible long term implications of ASD. Other half tends to bury himself in football, which after last night's result gives him no comfort. Welcome again and welcome to Ben. [i still have this mental picture of a Mr Bean type figure in sodden wet shorts, impossible thin legs dangling down like threads from bottom of shorts, shivering and forming a puddle on the floor of the Batcave ......pls feel free to englighten us to the mode of superhero dress, perhaps to erase the mental image which is currently stuck in the twisted and confused mind of ASM Perhaps camoflage, in the style of Rambo could be more fitting, with action man haircut (tennis ball hair), errr of course any toys made in the image of Captn Commando would have to anatomically altered, after The Jester's small bits kept falling off and getting sucked up by the hoover - he's never been the same since. Poor Jester, he will be glad to have fellow (bloke) superhero to share his ramblings, medicinal brew and conversations of sports events with! He has been hoplessly outnumbered by the female superheroines! Of course we cannot count Banman (alias Kris) and his furry sidekick Robbie Superbunny who has tried on countless occasions to tempt The Jester to the Slightly Mucky Side, but to no avail! Will you succumbe to temptation? A word of warning (watch out for Blue Rinse Woman - do not be fooled by the sweet innocent mild mannered look of a mature, wise woman - as long as you dont sport Hush Puppies or Tweed Jackets with leather elbow patches, you should be safe (although there are no guarantees!). Take care fellow superdude and welcome again! ASM Share this post Link to post Share on other sites
CarolJ Report post Posted June 25, 2004 Where are my manners appeared to have disappeared along with a few million brain cells. Welcome, Autty, Carol, Vix, Chris and Kay. I hope I have not missed anyone out, apologies if I have! Word of warning, do not indulge in the The Jester's medicinal brew, strange things occur like being convinced you are the victim alien abduction (flashbacks of being in a large cave surrounded by soft furnishings (pouffees), and figures dressed in all manner of strange garb (and many strange goings on) - its the stuff of nightmares! You have been warned! Welcome one and all! Of course I am sane ......... Share this post Link to post Share on other sites
pookie170 Report post Posted June 25, 2004 Incidently, after my 1st post someone asked about the "baddad" thing... Nothing to do with Adam and Joe That would be me!! The wonders of late night channel 4have created the veritable mine of useless information that is The Caped Confuser!!! (me, in other words.....) I much prefer the real reason behind your name, though! Ben's a lucky lad, he has a Dad who not only knows his way around statements and such, but who is also wicked wit' da toons!...... erm..... I've embarrassed myself again!! Welcome to David, Chris, Vix, Kay and everyone else! Esther x Share this post Link to post Share on other sites
nellie Report post Posted June 25, 2004 Welcome David Please stick around, something makes me think you will fit in well here!! Nellie. Share this post Link to post Share on other sites
baddad Report post Posted June 25, 2004 As mentioned, bit of a double edged sword, but in the main I'm glad that I had that knowledge. Without harping on about it, i sometimes things "happen" rather than just happen. I think they call it synchronicity (pebbles and ripples'n'stuff), and the wierd stuff is just how many "ripples" were involved. Not far from truth - just add a few stone. To Quote Johnny Vegas: "legs of a skinny bloke. Arms of a skinny bloke. Bit in middle - A travesty of nature!" Being convinced? I actually am the victim of alien abduction, and I've got the scars to prove it! Why do they always want to probe there? Fly 50 million light years across the galaxy to do something they could probably indulge in at home if they looked on the right websites! And they think we're strange... Seriously, thanks for all the warm welcomes, and I will make my way to the batcave again soon, though in all honesty i feel I'm outgunned in all departments in there! Am at a serious disadvantage before we even start as my typing speed hovers at around 6 words per fortnight. Share this post Link to post Share on other sites
pookie170 Report post Posted June 25, 2004 I will make my way to the batcave again soon, though in all honesty i feel I'm outgunned in all departments in there! Am at a serious disadvantage before we even start as my typing speed hovers at around 6 words per fortnight. Don't be daft, I thought your first Bat-Cave entry was great! Made me laugh, so I expect to see you there soon, do you hear me young man???? I actually wonder about the synchronicity stuff....I typed a bit about that somewhere, memory fails me again! But I do wonder..... Anyhoo, nice to meet everyone, chat soon! Esther x Share this post Link to post Share on other sites
elainem Report post Posted June 26, 2004 Hi, I?ve been looking around the site for a couple of weeks now, so busy reading that I?ve only just go round to introducing myself. I?m Elaine live with dh and twin sons 3.5 years. Matthew is due have an ADOS assessment for possible ASD early July. We have seen Paediatrician many times who has always thought he isn?t ASD but she has been very helpful and finally referred us to Consultant Psychiatrist so we can get a formal assessment. Matthew has been by the Psych ? she said there was lots of indicactors that it?s not ASD, but nor did she rule it out. The child mental worker also came to observe him at home and playgroup. Main issues are his lack of interaction with kids and some unusual speech patterns. He has some echolia but it appears to be not too much at the expense of his developing ?normal? language. He started to speak at 2yrs 2 months and at 3.5 yrs can hold a reasonable conversation. He has excellent imaginative play, no obsession or routines. He seems quite bright colours counting can also recognise numbers and tell me the first letter (phoentic) of any word). He is sociable and loving with the adults he knows and trusts. The psych and the child worker have mentioned and are going to discuss further with us the benefits or not of having an actual diagnosis. They have also warned me that even if they identify some traits they may prefer to keep on monitoring until he is a little older. I think they will be testing for both HFA and AS. In a way, and I don?t wish to be controversial with my first post, I feel if there is a diagnosis I would prefer it to be AS. I feel really bad for thinking this but it is based on my belief that many people don?t really understand the autistic spectrum and only ?think? they know what ASD is. Anyway, the uncertainty continues, that is what I have found hardest in the 2 years it has taken to get us to this stage. Always examining every behaviour and thinking is it or isn?t it. When I?m not being a mum I work as an employment law consultant part time in the evenings and have lovely employers who are very accommodating with my hours. When I?m doing neither of those I drink too much wine and eat too much chocolate and sometimes try to remember what was like to have sex LOL!! I have read many informative posts and everyone seems really friendly. Oh well, I managed to waffle on as usual, never have quite got the hang of a short post. Hope to join in some discussions soon. Elaine Share this post Link to post Share on other sites
CarolJ Report post Posted June 26, 2004 (edited) Hi and welcome Elainem Twins eh! You do have your hands full. Welcome to the site, and feel free to indulge in long posts - I can never stick to a few sentences - I usually do 3 or 4 paragraphs of plain old tosh! I used to work for an Employment Law Partner. Perhaps having a legal background you feel the need to "pad out" the post so that the the client feels that they are getting value for money? Habits take a long time to break! Gosh how many times has a witness statement been re-drafted to say the same thing! Anyway, I digress, welcome to the site and dont worry, we don't charge for the time taken to produce posts! ASM Charageable time 0.6 Batcave 123.55697 0.4 (office - administration) 0.1 (toilet break) 0.2 (phone call to other half) Edited June 26, 2004 by CarolJ Share this post Link to post Share on other sites
pookie170 Report post Posted June 26, 2004 Hi Elaine, welcome to the site. I'm a habitual waffler too, you're in good company! Chat soon, Esther x Share this post Link to post Share on other sites
Kris Report post Posted July 5, 2004 Hi Elaine, Welcome to the forum Kris Share this post Link to post Share on other sites
DavidG Report post Posted July 12, 2004 Hi all My name is David. I'm 34 and a postgraduate IT student. More later, once I've slept and my typing has improved. Regards, David Share this post Link to post Share on other sites
pookie170 Report post Posted July 13, 2004 Hi there David! Nice to meet you! Esther x Share this post Link to post Share on other sites
Jester Report post Posted July 14, 2004 Hi Elaine and David. Elaine ... I'm confused...is there such a thing as 'too much wine and chocolate'??!!! welcome Jester Share this post Link to post Share on other sites
elainem Report post Posted July 14, 2004 There probably is such a thing as too much wine and chocolate for my ever expanding waistline Elaine Share this post Link to post Share on other sites
Einstein Report post Posted July 14, 2004 Hi there! I'm new! I'd like to introduce myself. I have a 5 year old son who has recently been diagnosed with Asperger's Syndrome. I am sooooo glad that I have found this site! It makes me really happy to be able to "talk" to people who understand and who can offer help and advice. I have loads of questions to ask so you will probably see me around the boards! Share this post Link to post Share on other sites
nellie Report post Posted July 14, 2004 Welcome to the site Einstein Lots of advice and support on here. Look forward to chatting with you. Nellie. Share this post Link to post Share on other sites
Gita Report post Posted July 14, 2004 Hi Einstein Welcome to the site. I know jus what you mean. I felt the same way when I discovered this forum & I've found lots of help & advise here. Hope you find the same. Gita Share this post Link to post Share on other sites
