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sawjd

adult toileting issues

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Hello everyone,

 

 

D is 18 years old and refuses to go to the doctor saying there is nothing wrong. For years now (most of his secondary school life) he has had some sort of bowel disorder. I do not wish to go into too much detail. Its not true diaroea but something very close to that description. I have asked several times for D to go and see the doctor and unfortunately never purseued this with the doctor properly when he was at secondary school. It was bad on and off but now that he is older its just got worse and he refuses to clean the toilet. I can't stop him eating certain things, but just wondered if there is any way i could get him to go to the doctor. I have even resorted to taking a picture on my mobile phone to show the doctor but because D is 18 his doctor won't see me.

 

D had a allergic reaction to cheddar cheese when he was younger and his joints and eye sockets swelled up and caused his skin to develop rashes. He was seen by Dr Brostroff who referred him to a lab where they found a low level cheese allergy. So i stopped D taking cheese. In the last two years D has taken to eating cheese again as he has had a pizza and did not have a reaction.

 

D just won't listen.

 

Any suggestions anyone, please help, got one child who can't stop and one child who can't go. (movicol) (K).

 

I have tried giving food that binds the stomach to D but that don't work either.

 

Many thanks,

 

sarni.

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Hi sawjd -

Don't know how you can solve the can't stop him eating certain things/won't go the doctor's side of things, because if he's decided he won't cooperate to help himself you've hit a brick wall before you start.

 

However - In practice this might not be 'runs' as such but the opposite - constipation. In younger kids (including my son), the 'liquid' you get is actually the outer layer of something much larger being gradually broken down and running off. (sorry - there's no nice way of saying that! :sick: ). The mass that's at the root of the problem doesn't actually get touched at all, but doesn't necessarily get any larger because everything 'new' finds it's way around it, iyswim.

 

With my son, he would have a MAJOR evacuation every now and again (Paul Shattock coined the term 'Seat Lifters' :lol: )and that would seem, in the short term, to fix it, but then the build up would start again. Big poos are quite common in autism...

 

For my son this was definitely related to dairy (you mentioned cheese :unsure: ), and he used to do some pretty spectacular heaving at the other end too. It stopped, very quickly, when he went DF.

 

That's not to say that it is dairy that's doing it for your son, but it's a good place to start and if some of the other symptoms match then the general principle might apply to a different foodstuff. As far as getting him to work with you on the problem that's something you'll have to sort out between you.

 

Hope that's helpful

 

L&P

 

BD :D

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Hi my son has had a bowel condition for years and has similar problems as well as really bad pain-he hates going to the Doctors as well but he does have tablets for it particulalry when painful. He was also tested by the autism research unit and they found it was proberly gluten intolerance so you could also look into that. Not sure how you can encourage him to go to the Doctors-it is so difficult when they reach a certain age-I'm dredding it! Sorry not much help XXX

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Are you buying his food? If so why don't you all try going DF and lower the amount of dairy in the house for a few weeks, if this makes a difference he may agree to see the GP, but tbh if he doesn't want to go there is sod all you can do xx

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I think if you can get him to clean the toilet, that might inspire him to see a doctor about it. Can you embarrass him into it by pointing it out in front of the whole family or something? If he wants to keep it to himself, he will have to make friends with Mr Bogbrush :)

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Hi sawjd,

 

From what you have said in the past, D is ASD. This is one of those things where you talk to two specialists and they will say two different things. There is a school that believe that IBS, and stomach disorders are closely linked to autism, or at least that ASD people are more susceptible, of course there is another school that completely disagrees with this. Frankly nobody seems to have a straight answer, but it seems a higher percentage with ASD do have these complaints.

 

I for one have IBS, I also have a 2 inch Hiatus Hernia, which is incredibly painful. I’ve had these problems since I was around 18 years old (possibly a bit earlier), and I can honestly say after seeing countless Gastroenterologists and having endoscopes shoved in all manner of places with and without sedative (without is not recommended), they are useless. I am no better off now than I was 10 years ago really.

 

Incidentally, I don't have any food allergies, so it isn't necessarily linked to that kind of thing.

 

IBS is a nonsense diagnosis, it is a collective term for “Yes, something is wrong with your bowel, and yes it looks like it hurts occasionally, but we don’t really know what or how to find out.”

 

I take a lot of meds to control IBS and my hernia’s symptoms. I can’t forget to take them because if I do I won’t be sleeping tonight (it has gotten much worse over time) and I will have a very bad day tomorrow.

 

I would certainly recommend getting D to get this kind of thing looked at early, but diagnosis is a pretty miserable experience; as is continued monitoring.

 

Zen

Edited by zenemu

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What we now consider normal, would have been considered as suffering from constipation by our ancestors. Our modern diet has left us all bunged up. How often do you go, 5 or 6 times a day is "Normal" well it was by the standards of three or four hundred years ago.

 

If you have ever had proper diarrhea, I never have, you would know about it. You have no control over your bowel movement at all and if not treated you will very soon start to suffer from dehydration, which ultimately is fatal.

 

It may be found beneficial to increase amount, the bulk to food eaten, low calorie high volume food, and increase the amount of roughage. Eat the high in fiber option. No white bread. Make them pizzas with whole meal bases.

Try to avoid as much "processed" food as possible.

I know that that may not sound to answer, but give it a go, it may take a while to stabilise, get worse befor it gets better.

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If it is IBS, it's normally recommended to eat less unsoluble fibre (roughage), change to white bread, etc. It's soluble fibre like that found in oats that most people find be helpful.

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If it is IBS, it's normally recommended to eat less unsoluble fibre (roughage), change to white bread, etc. It's soluble fibre like that found in oats that most people find be helpful.

Thats the point, if it is IBS. I see nothing in the opening post that says it is.

 

On allergy, just as we may develop new allergys, we may also become less reactive to one we already have, .

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If it is IBS, it's normally recommended to eat less unsoluble fibre (roughage), change to white bread, etc. It's soluble fibre like that found in oats that most people find be helpful.

 

This is absolutely correct for some people with IBS. I have had IBS for many years, been to hospital, seen dietician etc As well as medication such as mebeverine/colofac, I have found avoiding all diary products helpful. A little cream on the top of a cake doesnt seem to do much damage, but a milkshake or cheese sandwich is just instant diarrhoea doubled up with stomach pain dashing to the loo etc. Oats for brieakfast are good, but weetabix or shreddies, forget it!

 

After almost 30 years of IBS (They called it Spastic colon when I was first diagnosed and recommended weetabix), I have found that you just find the things that make you worse by trial and error, its not always the same as the next IBS sufferer. Emotions, stress etc also play a part.

 

As far as the cleaning of the loo is concerned, I sympathise. Altough he is too young to clean the loo, my 7 year old makes a fearful mess when he uses the toilet for a poo. Much more messy than his little sisters. I dont know why, but it doesnt bother him, he doesnt have the same sense of disgust that we do. He also hates going to the doctors too, as does my 23 year old.

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After almost 30 years of IBS (They called it Spastic colon when I was first diagnosed and recommended weetabix), I have found that you just find the things that make you worse by trial and error, its not always the same as the next IBS sufferer. Emotions, stress etc also play a part.

 

 

Wow thats the first person I have ever known call it the same thing! I was dx with a spastic colon when I was little and now due to knowing my body I can manage it quite well, raw onions seem to affect me most, but as long as I eat them occasionally I am fine I was told to eat Bran! I still recoil at the thought of bran nowadays

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