[JsMum]

A couple with a Ten year old son with AS who isnt get his Educational and menatl health needs met.

http://www.thisishullandeastriding.co.uk/n...il/article.html

JsMumx

[Enid]

Thanks for that J`smum, could have written it myself not so long ago!!!! how are things with you? we are mainly "coping" due to meds and careful handling, but still a minefield some days.

[Kathryn]

Very harrowing story.

Good to see you JsMum.

K x

[Shaunsmum]

The family were on GMTV last week, I didn't see it but my mum did. I hope they get the support they so badly need.

Annemarie xxx

[SuzyQ]

HI Guys, just hopped of my terrible rollercaoster to post, wish I had seen it!!

My DD now 16 has been in a 52 week school placement, but now moved to the 16plus team and they don't think it is meeting her needs as she is a self harmer and still occasionally doing it!!!
This is a nightmare about meeting needs, people who don't know the children make the decisions!!
It has taken me years for some one to finally say yes she has AS and on top of this she has had pyschosis and attention deficit and a possible borderline personality disorder!! she needs constant 100 percent attention when awake!! and they want to move her to an assisted living house!!

[SuzyQ]

I have read that repost...rare my a**e!! MY DD spent 10 months in a secure psychiatric hospital because she tried to hang herself in her bedroom and wanted to kill me!!
As I said she is now in a 52 week placement I only got this because I had to fight social services and say I couldn't have her at home!! my heart has been broken time and time again!!
She now eats glass plastic anything she can when in a destressed state ahe has cut her neck face legs and her arm is scared half way up with cut marks, it fascinates her to open the woulnds and see them bleed!! she has also cut on her body, she doesn't get psycho therapy as such but is in a better unti now and is starting to improve, and as I said now social services want to move her because they think her needs aren't being met!! She has only been there 7 months!

[coolblue]

A couple with a Ten year old son with AS who isnt get his Educational and menatl health needs met.

http://www.thisishullandeastriding.co.uk/n...il/article.html

JsMumx

What struck me was this quote from the psychologist:

"As it is so rare, it means there are very few services set up to specifically help the child as an individual and the parents and carers."

Let's get this straight. Psychologists, like doctors and teachers, are professionals, right? They are trained and qualified to use their skills independently. The idea is that if they come across a type of case they haven't seen before, they are in touch with other professionals who can advise them, point them to previous cases etc. The psychologist doesn't have to wait for a service to be set up, surely?

coolblue

[Enid]

Well no one ever seems to be able to give me any help with my son, new school struggling already, he left again last week and ran across a dual carriageway, head who was out looking said a lorry missed him by inches........

Good to see you suzyQ, and get an update. hang on in there.

[Mumble]

This is a comment on CB's post and not on the content of this article.

"As it is so rare, it means there are very few services set up to specifically help the child as an individual and the parents and carers."

Let's get this straight. Psychologists, like doctors and teachers, are professionals, right? They are trained and qualified to use their skills independently. The idea is that if they come across a type of case they haven't seen before, they are in touch with other professionals who can advise them, point them to previous cases etc. The psychologist doesn't have to wait for a service to be set up, surely?

You have mis-worded what is said. They did not say that they had to wait for a service to be set up, but that such services were scarce. I don't know whether what is being discussed here is rare, but let's for the sake or argument assume it is (or consider any condition that is rare). In this case, as in the case of anything rare, it's entirely appropriate that services are specific and as such will be small but very specialist. This ensures that the specialists can work together to develop their area and research new strategies and treatments. It ensures that best practise is shared and that expertise is pooled rather than several individuals working on the same in isolation and progress being much slower. Yes, I understand that it must be difficult if you don't live near such a service or they don't have the capacity to deal with every case but it has to be better that way than having a system where things are so spread out, people don't work together and we never progress.