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Guest Trinity

Does anyone have any advice?

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Guest Trinity

Hi eveyone I've just found your brilliant website and am posting this message for any information my son is 8years old I was told when he was 2years old that he was autistic but I thought that the Health vistitor was an interferring old busy body who was she to be saying these things about my son. I tried to carry on as normal or as normal as can be expected with this on my mind. I then had a healthy baby girl who was developing at the normal rate with speech and such, it was then that I knew there was something wrong, but for amny years I hid it I wasn't ashamed just very scared this was mental ilness I literally just ignored it until on day during the 6 weeks holidays I snapped and took Nathan to see my G.P and told him to help me and that it was totally my own fault. He referred me to a specailist and all my suspicions were confirmed as he was being tested he found it hard I have been to many specialists speech therepists, phsycologists and consultants but I can't get a straight answer out of them. They think aspergers syndrome, his school think he's completely normal and I don't care I want answers I am at my tethers end I think that at every stage of diagnosis you should be made aware of what is going on and I seriously haven't got a clue so if anyone can offer any advice, help or give any useful information it would be gladly recieved thankyou

 

 

Trinity :whistle:

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Hi Tracy >:D<<'>

 

Reading both your posts it sounds as though you've been through a really tough time over the past few years :(

 

I'm so glad you've found this forum. It's a great place for friendly support and advice.

 

Bid :)

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Hi Trinity - welcome to the forum. I can identify quite a bit with that you've said. I rejected the idea of aspergers for quite some time too in relation to my sons problems, not really cos i was scared but more that I didn't understand what it was all about. Since I've become more informed it has got easier to accept that this is something my son may well have - in fact it seems laughable now that I didn't pick up on it earlier. I also only really appreciated how 'different' my son is when I had another child and saw the developemental differences between them.

As for advice re diagnosis well I'm still travelling that road and what a long one it is! I have heard so many opinions about my son they have driven me mad trying to work out what's right and what isn't. But what i would say is do your research and have belief in yourself that you know your child best then be prepared to keep on and on until you find the right person who will listen to you. Sorry if that sounds a bit vague, but what has become apparent to me is that there is no one easy route to diagnosis. In the meantime take heart that now you have recognised the 'problem' you can start to tackle it. Good luck - Witsend.

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Guest Trinity

Thankyou Witsend, I am finding it a lot easier to come to terms with knowing that there is more people out there in the same boat as me all I know is that the road to diagnosis is far too long a by the time you have a diagnosis it is often too late do anything about looking on this forum there are people who have been waiting years for a diagnosis it's just not good enough, People are very ignorant when it comes to mental health problems and aspergers and ASD are where you find the most ignorance especially from schools thankyou again for your advice

 

 

Trinity..

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Wow I'm not alone

My son is in an SEN pre-school and even they don't belive he has AS even though we got an independent clinical psychologist to diagnose.

It's just ignorance - a complete lack of knowledge of Asperger. They keep flinging sentences like 'lots of children feel anxious at times'!

How many of these children put daily teethmarks in the arms of their mother?....

Posting tribunal case tomorrow...

 

Lesley

:angry:

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Hi Trinity, i have found so many people here who have saved my sanity at one time or another.

 

My daughter has also been considered to be 'normal' by all her teachers... until the diagnosis at which time they all decided they thought something had been wrong all along.

 

What i would say and this is just my opinion, is that a firm diagnosis doesn;t always help. It helped me realize she really couldn't help stuff. but I am no nearer getting any help with education... The fact that my daughter hasn't got a learning disorder and is actually bright works against her.

 

I really hope that you ge the answers you need, keep chipping away at people we mums really do know our children better than anyone else...

 

oops One other difference for me anyway now I have a diagnosis, is that when she kicks off like she did in the brewsters tonight over dinner, I can proudly walk through all those staring faces witha genuine smile on my face, as I know that this is temporary, she will come through it and those that gawp are far more affected by it than we are!!!

 

Keep your chin up...

 

Anne

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