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lisa2701

Please help!!

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A few weeks ago I posted about how my 7 year old autistic son was hearing voices. He is dx with classic autism, sensory hypersensitivity and hyperacusis. At that moment I was pretty unclear about what he really meant by that etc. I have alerted Autism outreach and the school about the situation but again had little info for them.

 

Last night, I managed to get my son to talk to me about these voices and I am now left very scared. I will try explain, but bare with me as it all make very little sense...

 

He says there are 6 voices. Each voice has a symbol (he says thats what they look like, but when I asked him if he see's things too he said no). There is 2 explanation marks, 2 question marks, and two full stops. He says the explanation marks are bad voices and always shout at him, and tell him to do bad things, like to pick his skin till he bleeds and smear the blood on the walls and doors, to break things, be rude to people (burp in their face) or to hurt people. He said they also tell him that if he gets a jag they will all go away, but if he gets two jags there will be more voices. I asked him where he'd get the jag from, and he said the vets. I said, the vets are doctors for animals and did he mean the doctors and he said, explanation mark said it was the vets! He doesn't say too much about the full stops or question marks, they don't seem to bother him so much. He said he likes the nice voices!

 

He said he has tried to get the voices out of his body but they won't go away and that they keep him awake at night.

 

I have called his Dr and I am waiting on her getting back to me, and I spoke to a GP yesterday who only offered to refer me back to the doctor he see's for his autism, but this was all before I got the information last night.

 

I am really scared for him, he seems frustrated with the bad voices, but very matter of fact about them.

 

Wondering if anyone has any thoughts or advice on this situation?

 

A family friend who is a psych nurse has told me to call CAMHs directly and talk to them if my GP won't refer me. Do you think they would even entertain me if I did?

 

Thanks in advance

 

L x

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Hi Lisa,

 

I've had a slightly similar experience - slightly - I was much older when it started - I had 3 "voices/personalities" and one of them was like the exclamation marks - the self-harming desires, the bad shouting and the blood.... Very very disturbing - I was about 16 when it started.

 

I wasn't really hearing them with my ears - but they were so loud and real it felt like I was, it wasn't until later that I worked this out though.

 

I'm not particularly comfortable discussing it further on the open forum - if you feel my experience is relevant, please feel free to PM me and I will attempt to explain further

 

Best

 

Darkshine

Edited by darkshine

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Ask for a referal to CAHMS, and to a consultant that has experience of working with young children on the autistic spectrum.

 

Or ask for Clinical Psychology - again a consultant that has experience of working with young children on the autistic spectrum - and they can refer on to CAHMS.

 

You need someone who specialises in this area, who will have had other experience of the things you are describing.

 

If you get referred back to the Paediatrician that diagnosed him you can ask them to refer you to CAHMS or ClinPsych.

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I am replying from my mobile so I will keep it brief for now.

 

A family friend of mines is a psych nurse (specialises in schizophrenia and dimentia -sp??) but I went to him for advice and he gave me the number for CAMHs and told me to call them directly as the gp wa useless.

 

The plan for Monday morning is to call gp back and ask for a referral. Depending on how that goes I will maybe call CAMHs directly. To contact the paediatrician that dx my son as I have her direct number and also to alert outreach to the new information as a friend of mine with an autistic son has suggested that they might have contact with CAMHs and could maybe contact someone??

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Just thought i'd update and let eveyone know that S has been referred to CAHMs. Anyone know how quickly they are seeing people. I have heard they are doing initial assessments are being done quickly but then its taking a long time to see someone after that??

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My opinion to you is please be very careful of camhs there are many sites where they have gotten things wrong or not done enough. I have been stuck with them for 4 years and when i finally had enough and tried for a second opinion they turned really nasty to quote my sons lady '' If you dont do what we ask you to do then we will MAKE you do!!'' I now know they didnt want my son to have asecond opinion because if it comes back he is aspergers then they AGAIN have failed. So they have used me as a scape goat and are trying to pin mbp on me which they have used to get my son on the at risk register to MAKE him stay at camhs. I find them very sneaky and underhanded. Your camhs may be different but i am not intouch with a group of parents all with exactly the same stories. And all being accused of the same thing. I hope yours goes well but please be careful xx

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