ADOS this Friday for DS
Posted 23 February 2015 - 06:05 PM
Posted 24 February 2015 - 04:00 PM
Are you sure the meeting afterwards is to give a diagnosis? And what kind of Consultant are they.
My son was seen by a Speech Therapist, a Clinical Psychologist and a Developmental Paediatrician. We had about 3 appointments/assessments over a period of 18 months. Then we got the diagnosis.
You can always phone the department and ask them who your son will be seen by and has he been referred to any other professional for assessment or for them to meet with you both.
Posted 24 February 2015 - 05:19 PM
Posted 26 February 2015 - 02:42 PM
I'm not 100% sure if they would diagnose just from that assessment. ASD is about a triad of impairments, which affect your child to a clinical degree.
We were first referred to a speech therapist by my son's primary school. She saw my son and played with him and told us to expect an ASD diagnosis just from his speech and social interaction. But she referred onto the communication clinic - which involved the Clinical Psychologist and Developmental Paediatrician. And a final diagnosis was 18 months later. So we would have appreciated a diagnosis earlier. If a child is more severely autistic from birth, then a diagnosis is often made much earlier.
After my son's diagnosis he was referred to an Occupational Therapist. After 3 years we paid for a private assessment and he received a further diagnosis of Sensory Processing Disorder and Dyspraxia.
Then we took him for a private assessment and he was diagnosed with around average cognitive ability, but with severe dyslexia and dyscalculia and difficulties with working and short term memory.
So there could be other things as well as an ASD.
Do you think he is on the spectrum?
Posted 26 February 2015 - 07:34 PM
Posted 01 March 2015 - 01:41 PM
From memory it is some questions and also some play to see how the child responds.
I think there is also an interview with parents where again questions are asked and parents can raise concerns.
I would not overthink it too much. I remember before our son's assessment I was worried that they would not see what his difficulties were. But they did.
It is very important that you don't coach him, or give him information about what he might need to demonstrate. I would simply say that the Doctor will have have a chat with you and with him and that there maybe things for him to play with there.
You can also ask at this appointment who else your son would be referred to.
He should be seen and assessed by a speech and language therapist because speech and social communication difficulties are part of the spectrum. And difficulties with these areas can impact on learning in school too.
If he has any sensory issues, being over or under sensitive, or having problems with modulation of sensory input, then he needs to be seen and assessed by a suitably qualified Occupational therapist. Qualified to diagnose and devise a therapy programme for Sensory processing Disorder.
For his Anxiety [and Anxiety is part of being on the spectrum, but some children get an additional diagnosis of Anxiety Disorder, or OCD, or both on top of ASD], he needs to be seen by a Clinical Psychologist [they usually devise programmes], and CAMHS Psychiatrist [who usually prescribe medication - but who may also devise therapy].
My son is on medication. But my position has always been that he MUST be seeing a Clinical Psychologist or CAMHS professional to devise a programme to be delivered at home and school AS WELL. Otherwise you are simply medicating a child to sedate them and they are not learning how to cope with and overcome their anxiety or OCD.
Let us know how the assessment goes.
Posted 03 March 2015 - 04:52 PM
Posted 03 March 2015 - 04:59 PM
Posted 03 March 2015 - 04:59 PM
Posted 05 March 2015 - 09:02 AM
I would get a copy of the SEN Code of Practice for Education and Health Care Plans.
Read through it as providing support is a graduated process. Ie. the school has to provide a certain level of support in terms of hours or delegated funding BEFORE you can ask for an EHCP. So VERY important to start moving through that process as it can take years.
So ask the school what level of SEN support he is currently on. I'm not sure if School Action and School Action Plus still exist? If they do you need to push school to follow that process.
Has the school referred him to an Educational Psychologist or Speech and Language Therapist? What is his speech and social communication like? Does he 'chat', or just speak to get things. Does he socialise and play with other kids?
If the school has said he needs OT input, what is that for and how will they refer him?
Posted 10 March 2015 - 09:03 PM
He apparently didn't score so high on his ados but very high from adi r for autism so was told without doubt he is autistic but possibly atypical. They were more concerned with his anxiety level haĺlucinations and aggression etc quite right too. They had a list of referrals but the first did shock me.
1. Residential family unit for all 3 of us ( gulp) for 6 weeks. Very intensive. Has anyone done this before ? Will have to wait for a space. They could further his diagnosis and clarify his autistic status SPD. OCD. anxiety, poss depression, sleep disorder
2. Neuro referral query epilepsy because he hallucinate colour changes?
3. OT but none in my area.
4. Camhs key worker
5. Social worker. Someone I had asked for in past but not taken seriously..
Quite a lot to take in
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