Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
annie

IMPORTANT - PLEASE READ re: medication

Recommended Posts

annie   

The Forum Moderators advise members not to give specific advice regarding medication and treatment.

 

We recommend that any member having concerns should seek professional advice.

 

Regards,

The Moderators

Share this post


Link to post
Share on other sites

:notworthy:

 

Question - By treatemnt, do you mean professionals like doctors, SALT, psychs etc or do you mean medical (prescription/over counter) meds??

Share this post


Link to post
Share on other sites
Kathryn   

Hi Tylers mum,

 

Thanks for asking that.

 

We certainly don't want to stop people talking about their own experiences regarding treatment and meds. In posting this 'warning' we were thinking along the lines of members suggesting particular drugs, change of dosage etc., where people ought to be consulting their doctor rather than just following the advice they read here. Obviously in the vast majority of cases common sense prevails and people do seek medical advice when this is appropriate, but considering the large numbers visiting the forum, we have to have our eye on the worst case scenario - where someone perhaps acts on advice given here without checking it out first. Where meds are concerned, this could obviously be dangerous.

 

Hope that clarifies things,

 

Kathryn :)

Edited by Kathryn

Share this post


Link to post
Share on other sites

Sorry to be pedantic but we have a whole topic devoted to medications etc.

 

What sort of advice are we not meant to give? Can we, for instance, say we advise people to see their GP but not suggest using prescription drugs, can we still advise over the counter meds?

 

Oops - posted at the same time as Kathryn so this probably doesn't matter now!

Edited by DaisyProudfoot

Share this post


Link to post
Share on other sites
Kathryn   

Daisy,

 

I think we were posting at the same time - I hope my post answers your question.

 

K

Share this post


Link to post
Share on other sites

Thanks for that Kathryn and I totally 110% agree with you.

 

I would never change amounts of meds given to my child just by having read to do so here. He an't on any meds right now but if he was, then I'd certainly be going with the doc on that and not recommendations. KWIM!

 

Thanks for clarifying and once again, I agree wholeheartedly.

Share this post


Link to post
Share on other sites
AUT1E   

The Forum Moderators advise members not to give specific advice regarding medication and treatment.

 

We recommend that any member having concerns should seek professional advice.

 

Regards,

The Moderators

 

This stance concerns me, to the highest degree. Most GP's have no meaningful knowledge of ASD, and I have first hand experience of GP's dismissing autistic traits, even when they cause significant problems. Despite the new autism specific legislation, there is still a void.

My point is that at the moment 'professional advice' on autism is of no use, or worse, and even the act of attempting to seek it can cause it's own problems. As an example, look at the definition of autism on the NHS Direct website.

Unfortunately, this kind of forum can be the only point of information or validation for those seeking help.

This stance may be of benefit to the providers of the forum service, legally speaking, but it is important to users.

Share this post


Link to post
Share on other sites
Tally   

This stance concerns me, to the highest degree. Most GP's have no meaningful knowledge of ASD, and I have first hand experience of GP's dismissing autistic traits, even when they cause significant problems. Despite the new autism specific legislation, there is still a void.

My point is that at the moment 'professional advice' on autism is of no use, or worse, and even the act of attempting to seek it can cause it's own problems. As an example, look at the definition of autism on the NHS Direct website.

Unfortunately, this kind of forum can be the only point of information or validation for those seeking help.

This stance may be of benefit to the providers of the forum service, legally speaking, but it is important to users.

 

Legal issues are a very real factor as it's important to stay on the right side of the law if the forum is to remain operational as a source of support.

 

Without a medical degree and access to your medical records, I'm afraid forum members are not qualified to offer advice on medications.

 

I'm sorry if you remain concerned, but this rule is non-negotiable.

Share this post


Link to post
Share on other sites
caci   

I think the MODS are stating this to cover any possible come back, claims for negligence etc.

 

I don't think they are asking anyone to change what they say, just asking people to use common sense and not do things "because XXX on the forum said it would work"

 

This forum is for help and support.

Share this post


Link to post
Share on other sites
philipo   

Obviously the wide nature of ASD/autisim/aspergers symptoms makes it extremely dangerous to reccommend /advise on medication BUT THE SIMPLE TRUTH IS THE NHS ARE MOSTLY RUBBISH AT UNDERSTANDING ASD'S.They spend more money and energy on gastric bands and their understanding of ASD's is not even worthy of a basic GCSE grade.Many people with ASD's do have a much better understanding of the subject ,particulary if they are parents,and good ones at that.Due do the ignorance of the NHS about the subject you'd have a slightly lower chance of diagnosis if you went to a vet.BUT ADVICE ON MEDICATION CAN BE DANGEROUS!!!!

If I were to reccommend any medication for HFA ASD it would be candied Angelica ,as used on cake decoration ,try it!It takes the edge off anxiety for me however absurd that sounds,followed in second place by alchohol,although I'd not reccommend this to anyone

Edited by philipo

Share this post


Link to post
Share on other sites

As a parent I know if I read about a treatment, conventional or unconventional that worked for someone else I would be tempted to try it on my son, as we all want to something to work and take away the stress and anxiety of seeing our children struggle each and every day with the basics of life...I also understand that each and every child is different, there level of Autism or any other challenge they face comes with a variety of different symptoms...A child could have an underlying problem that has not been picked up or he/she may have allergic raections to using treatments and methods that have been used by others and become the cause of medical emergancies....So I do understand the point of view of the moderators and would be very cautious with giving advice in regards to meds...but than again as adults, there is no harm in discussing what we have tried and how it worked or not worked, in the end one must be responsible for ones own choices and not create a situation were anyone would be held liable for our own misuse of general information... Great thread:)!

Share this post


Link to post
Share on other sites
trekster   

I've seen other forums with this rule, I'm sure we can suggest 'have you tried x medication?' but avoid mentioning which doses or adjusting without GPs advice. I react paradoxically to meds and some meds weren't worth the side effects so I tried something different.

 

The best medication for me has been a change in what I put in my body or on my skin, ie an environmental change. I have found many aspects of my life improve by going gluten and dairy free including subsequent HMS/EDS/fibro diagnoses which without pain perception I would have been unable to express. I really dont understand why there was a publicity stunt at the Olympics to save the NHS, I feel it is a complete mess especially when you're unable to get diagnosed with anything primary, secondary or feel ignored by doctors.

 

Then there is the bigger picture and how society treats people it considers to be naughty or different.

Share this post


Link to post
Share on other sites
sesley   

i think it very dangerous to recommend any medical treatment to anyone on here.This is a anonnymous place and any medication ,should be advised

by a qualified doctor on individuals personel need through face to face contact.

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.

×