007paul007

I have already spoken to the person responcible for school transport , she had a right go at them last term and since then , like today's incident , if they say they came and sat early and waited 10 minutes like they say they did today , the lady cannot do anything about it cause they say they have been , they could be lying for all we know . i have been in contact with my GP who is a doing a letter to say how streesful things are in the morning , and also how much more likely my son is due to have a siezure , as all the ones he has had have been when waking up, because of this we cannot go out with my daughter and because of her special needs , it would be unwise to let her stand there on her own, also the firm change drivers willy nilly and she gets differents drivers each day.

I asked that already kazza and they cannot do it , for some unknown reason .

thanks for that i have just read it , is it worth quoting to the LEA or not ?

what is the site address for IPSEA then I might give it a look .

Sorry but I need a rant , just to let off steam but if anyone can give me any advice it would be a appreciative. Firstly I have two children, my first child is 16 and is on the severe end of the autistic spectrum and currently has transport for school , which he still goes to. My second child is 14 , has a statement of special needs , has communication and understanding/comphrehending things, she started secondary school 2 years ago , it is a school which a special language and communications department within a mainstream school. We had to fight to get transport for her as she was on the border of the mileage being away from the school and we have no transport. Anyway we got transport awarded for her and there has been nothing but problems, for example the taxi pulled up in the car park this morning and apparently waited there 10 minutes and pulled off, we can not see the car park from where we are as it is blocked by houses and also we have our hands full getting the oldest ready, normally the the old excort we used to have used to beep their horn and out my daughter went, but this one won't and says it is against the law. My daughter had to have the day off school , the taxi firm want her to stand alone in the car park or us to stand with her , when I have already explained that we have our hands full with the eldest. The council say they cannot do anything as the firm say the driver sat there , they want us to leave our daughter alone in the car park and yet the driver of the cab cannot leave the kids on there own. Frustrated or what anything you could suggest I could do.

Well fingers crossed it will not happen again, one thing I cannot understand though is that most Farmers , i might be wrong here , use deisal and get levy for it . We don't have a car or anything like that , but my children go to school by school transport with an escort and last time it came very close to them running out of fuel, the protesters unfornately do not think of things like that.

Hi lisann Welcome aboard , i will be posting the chat hours next week after my kids have gone back to school, so keep checking the group for an announcement.

Yes the live chat hour will be starting next week for thos ethat don't know so come along and take a look

My daughter is also disabled , we get the DLA for her and the ICA , doctors think it might be Aspergers but I am not too sure , she has a statement of special and is classed as having a disability , she has communication problems as well to boot, so I still had someone with me with a disability. I have finally contacted them and they have said that if I contact them a week before then they will make the team on the floor aware so they are ready for the for us, its a shame cause places like Chessington and Legoland will stamp your hand and you can go straight to the exit and be let on the rides without having to queue, at the end of the day it is not the child's fault that they don't like crowds or get stressed do to their autism. If it was me that wanted to meet the celeb and my time to stay there was up I would leave it and go home not worrying about it , but my daughter has enough to cope with , not only her special needs but the severe special needs of her brother which she struggles to cope with and understand at times.

Thanks Elefan I have taken the company name out if that is ok , but a little follow up with this now after a few pushing and shoving and humming and harming something might be set up soon , i will keep you informed. I am pushing for things like several theme parks do.

I thought I would start a thread about events like fairs , circus's or anywhere that you could take your children to and whether they were helpful or not to any requests. This thread can include things like holidays , travelling or anything , but me personally I am getting sick of places saying they can cater for the disabled and when you get there they cannot cater for children with autism. They are like most firms that when they say they cater for disabled they are actually , like most people , think of a wheelchair. For example , I take my daughter to a thing called Collectormania at Milton Keynes, where they say they cater for disabled . It's a place where you can pay a small fee , meet a star and get their a personalised signed photo. To keep the queues down they give you a ticket and you wander around until your number is called, well, I cannot take my son as the crowds are just to distressing for him , so I take my daughter and we really are on limited time when we are there , as we have to get back to home to look after my son. Well my number was like 10 out out and there was only two people in the queue I asked the guy if I could go into the queue as I had to get back , the autograph was for my daughter , someone from Harry Potter, well he said no , I had could not wait up til an hour for the number to change as I had to be back , I have since emailed the organisers and they have not even had the bottle to reply , I thought that others should know and that this thread is for other people to name and shame or praise certain groups !!

The chat hour will be starting in 2 weeks and will be up and running as normal again soon

Hi Koala Just to say I have been through what you are going through now , in fact about 2 years ago , and my son was 14 then , turned out after putting him on respiritone , that my son was developing Epilepsy at the time and because he could not convey this to us , hence his behaviour was up the wall . Usually we can put his behaviour down to something that we could put our finger on , i.e. holidays , break of routine , illness but during that period I have mentioned I could not fathom it out at all , but I know its hard and that it is difficult , but there is light at the end of the tunnel , we made it through our darkest hours and have become better people and parents for it , its never gonna be easy , just try and hang on in there .

Tux Welcome aboard , you should of had the reply by now , I am sure you will become a valuable asset to the group , like all the members that are there !

Hi For those people that have joined the group or are interested in joining , the chat hours will return to normal after the 6 week holidays , like most people we are finding it hard at the moment, the chat hours are a bit spasmodic and are available now and then but they will return to the twice a week mode soon !

Here it is in case you cannot find it ! http://groups.ebay.co.uk/forum.jspa?forumID=100010794

Has anyone got Autistic card from NAS , I've found that pretty useful as well and don't forget the group in ebay that is welcome to people, it's called Autism , I have posted a link on another thread , so pop along and give us a try !

Hi Elaine did you manage to join the group in the end ?

Hi My name is Paul , that was hard wasn't it lol, I have 2 children with special needs , my daughter who is 13 has mild learning difficulties mainly to do with speech. My son who is 16 has Autism and is at the severe end of the spectrum , having no speech etc, just recently he has been diagnosed with Epilepsy and could also have Irratable bowel syndrome. I live in Bucks and I am always badgering my local councillors and MP's trying to get them to do things for children with special needs in the area. for example I am trying to get the local swimming pool to do a special hour for people with disabilities and was told by a town councillor to hire the pool , so that is one fight amongst others that I am having. I am also a member of a group called Autism on Ebay , which is for parents and professionals alike who can post topics and discuss various things based on their experiences , granted it is not as big as Krism but we have only been going 2 months and we always welcome new members , here is the link if you are interested http://groups.ebay.co.uk/forum.jspa?forumID=100010794 I think that should say it all for now .

Hi I used to have bad vibes and feelings about social workers and was very weary of the social worker when we had one turn up , i soon got up tight at a social worker turning up saying this that and the other and said what I felt , now we have one of the best social workers around , she is even brilliant at just shouting down the phone to if you are having a bad time , but we have found that she has been a great help to us and we truly would of gone under without her help. Social workers also have a golden rule at the end of the day , the thing they always want to do is keep the children with there family and not split them up , it has to be something really really severe for them to remove the children from their parents . I just get annoyed that they are so underfunded like everything else and just wish that they could help everyone that needs it .

I have asked about that as that was brought up before and apparently alot of the people who have this syndrome are quite big and have trouble with obesity as well , my son is as thin as a barge , bit like me there in my family we can eat anything and not put it on LOL

Elaine did you go through the link I gave you or did you go into Ebay normally , don't know why you cannot sign in , sorry.

Hi Tyler no you did not offend me in any way , I have big shoulders and am not easily offended , like most people who have children with Autism I think we have more things to worry about than being offended , my opinion only people , by the way I am sorry if I may of offended people by an earlier post by using the word sufferers , I am sorry if that was the wrong word to use and did not mean to cause any offence to any but it was late when I posted it and as ever my mind was doing several tasks at the same time . Thankyou Tyler for bringing that up though about being weary , hopefully it has given me a chance to put people like yourself at risk and welcome to the group by the way , I hope you find it helpful and i am sure that if you ever decide to post that you will help other members with your experiences and advice. Sorry to hear Tux about your dilemma and hopefully one day you will be able to join us in the group, thankyou for your kind words.

I was wondering if anyone has the same problem with there child that we do ? My son is always eating and he doesn't eat because he his hungry , if he sees food he just has the urge to eat it , I mean we can be walking out side with him somewhere and if he sees a sweet or something like that he will pick it up as a quick as a flash if we are not careful and eat it. We have to watch him all the time when we are out as he is very very quick and seems to have an eagle eye. The problem we have at home is my son will often into the bin for left over scraps or looking for food in there , we have to put the bin outside during the day and as soon as he goes to sleep we have to bring it in due to pesky cats ! I was wondering if anyone else had this problem and if there were any useful ideas to get around this ?

Thankyou lorry and Meemo for your kind words and thankyou Waccoe for the message, I will take that on board, just need to find a word to replace the other one .