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Enid

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Everything posted by Enid

  1. mine made his today!! he is just 9. his understanding was that he can now take communion instead of a blessing, that it was a very special day, we had a huge family buffet afterwards, and he had all new clothes, as you do! and that he is now a fully fledged catholic, he went for " lessons" for a couple of months prior to this and goes to a catholic school, to be honest I havnt really questioned him on what he understands, he is my fourth and last to do it. phew.
  2. this is terrible, I think you need a solicitor. my only advice is to do everything they say, and always always keep the contacts, dont miss any. they will eventually extend the contacts, and I am sure you will get home visits beofre very long, J has behaved the same at school as he has at home, schools couldnt cope with him, they are having the honeymoon period now and will see the real j before long. So feel for you, I was terrrifed when my J was at his worst and was in respite for 4 weeks, the first 2 he was a saint!! then he showed his true colours, and they couldnt cope with him. reallly feel for you, sending all my support. much love. xxx
  3. have also pm`d but just wanted to send my support on these boards, seems mad dosnt it when a year ago you couldnt get support, remember he is still your boy!!! it was a means to an end but you are still his mum. much love and support from me to you. xx
  4. would be interested in the replies to this, my youngest just been diagnosed, he donst flap or have any noticable habits, but he is quirky and a bit old fashioned, I wish I had never had him diagnosed as I think his friends will view him differently once it becomes known, so like you I am not sure how helpful it is, only time will tell of course.
  5. Puffin thats a great link, not just for granparents but for all family members. thanks for that. x
  6. Gosh,that sounds better than the news last time I looked!! so pleased for you both, hope all goes well.
  7. Hi, how about a pet? a dog would be ideal as it would get you out to walk each day and meet/talk/chat to people, I know it costs money to feed, so perhaps go to a rescue centre and walk the dogs? they would be thrilled to have a regular walker. Or how about a cat? or if you live in a flat where you cant have animals how about fish? if you are not an animal person then how about you just go for a long brisk walk each day, just getting out will make you feel soooooo much better. hope this helps. by the way very scary user name!
  8. Hi, so sorry to hear you are struggling, its bad timing him coming home with the bank holiday looming! really hope they come through with the money for the placement. good luck xx
  9. Ask your GP for a referral to CAHMS or depending on where you live a child development/assement centre. good luck/ x
  10. Hi, as he`s 17 would this school only be for a year? and then what? The way I would look on it is this, many children leave home at 17/18. my NT son moved into a flat with friends at 18, he`s 22 now, its a natural progression, you have done soooooooooo well to keep him at home this long.
  11. Hi. replied to this but cant see it! so will try again. I dont think you have any choice but to try to encourage him to go back to school, if it dosnt work at least you will be seen to have done your bit!! hope he starts taking his resperidone soon because if they work like with my J it makes such a difference, he still has his moments, had to get him from school only last friday! but on the whole copable. lets us know how he goes on
  12. Gosh J`s mum, that is REALLY bad, thought you just meant the usual "Mean Girls" stuff.... that is serious stuff there. you are having such a bad time of it at the mo arnt you? you are on the dip of lifes roller coaster!!! but it alwyas comes back up again! so hang onto that thought. Hang on in there. much support as always. Enid x
  13. Yes agree with the above replies, the only problem I had was when mine changed his password! so I couldnt keep an eye out for a bit. surely there is some way of removing photos that have been taqgged? ask in the tech part of the forum but I am sure you can set your account so that you cant be tagged without your permission.
  14. Hi, just logged on to see how it was going, would you say it had been successful? at least it given you a breathing space. worrying about the furture isnt it, mine is 15 now, was excluded from his one night respite as they couldnt cope, so cant see how a residential setting could? but will need some help when he`s left school! keeping my fingers crossed for you both. Enid xx
  15. You can crush the reseridone between two spoons and add it to a spoon of honey, or a yoghurt etc etc, when my J was at his worst I used to put it in a hot chocolate drink without his knowledge, and before anyone has a go I did report that I did this to the relavant people, needs must sometimes. so glad to hear things are calmer even for a short time, it really grinds you down dosnt it the endless, just endless, worry of it all. much love and support coming your way.
  16. OMG.... So very sorry to hear this, I know how we have both struggled with our boys over the years and some nights I want to beg people to take him!!! but only for an hour or so, not like this, so very sorry to hear you have this hanging over you. re resperidone, as you know my lad is on it, without it life is impossible, things have been pretty good lately so we are lowering the dose bit by bit, already I can see the odd and inflexible behaviour returning, which is very worrying, the only side effect, that is apparant, is weight gain, keep strong, am thinkning of you, dont post often as life is busy and not as terrible as it used to be! Enid xx
  17. Thanks for that, yes I learnt the hard way! Its if the assessor dosnt accept that they cant, like oxmum, so hope I can make them see sense. Enid
  18. oxgirl, my son will be 16 this year so will be in that position shortly, how has it worked out him having his own money? mine gets middle care and low mobility, I wouldnt want him to just fritter that away and he would!! I set up an itunes accout with him, he spent £250 in in one day so I had to cancel it! How do you police what your son does with the money or cant you?
  19. Hope the weekend goes well Jeanne. will be thinking of you, <'>
  20. Joybed and LOULOU!! also only been on a couple of times in last two years, so hi, and Loulou hope things are calmer.... Joybed my 15 yr old is exactly the same, and I know just what you mean about the hands its gross!!!!!!!!!!!!!!!! he goes and lays in a bath everynight but dosnt wash, it sends me mad, but as we have has a calm 18th months, dont want to rock the boat, we are having a rough time again which is prob why I am back on the boards, he goes to "resi" one night a week, this week I had to go and get him at 8pm cos they coulnt cope, defeats the whole object really!!! anyway, I am going to try those toilet wipes and also leave some handwipes or gel out for him to use, see if that works, its a game isnt it
  21. Hi, Dont come on much these dyas, but I remember your story well, hope today is going better for you all, sending you huge support. advice? well pick your battles let him wear ben 10 or sportacus or whatever else he is into, then you get the day off to a good start. Shop online!! then if you need things during the week just pop to nearest shop for milk/bread etc on way back from a walk etc. Do what works for you,him and her. Visual timetable is great if not I always tell mine, 15 now, what we will be doing the next day and them run through it again in the morning. Good luck Joybed and Happy New Year. Enid
  22. Thanks all. he is only a tiny thing, wears clothes for a 4 yr old. school have no problems with him, so far, and he is a darling at home, so for now, I am just going to "park" his diagnosis. xx
  23. Hi, put his assessment off twice, but went today, they told me there and then, after a 2 hour assessment he would/does fit the profile for aspergers, even tho I knew it was still a shock an def wasnt expecting it today. hes 8, here we go again, eyes down for number 2!!!!!!!!!!!
  24. Well done you for fighting for it, sooooooooooooooooooooooo pleased. lets us know how it all works out. keep strong. xx
  25. That is strange J`s Mum, dont know why they would think like that, I couldnt bear to go back to my posts of 2/3 years ago, prior to medication.
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