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sadmum

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About sadmum

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    Norfolk Broads
  1. Thank you all for the replies. My local carers centre did a carers needs assessment last august and when we rang social services 3 weeks later to ask about it we where told by SS that it had been closed within 24 hours, and they had no intention of telling us. The only reason they started the core assessment is because I started the complaints procedure. The worker that came to my house yesterday didn?t even know the meaning of SEN or CAMS or any of the well know local child services. She told us she came from adult service and was only learning..... That was all I needed. She kept going on about how my daughters needs had to be met, and my husband lost it with her and told her that my daughter is fine, she hits and kicks and shouts through life, and doesn?t really care about much. It's her brother that is stressed and can't seem to get a normal childhood, and everyone supposing to offer him services leaves him hanging. She seemed shocked by that response. My husband walked out and left it to me to try and talk some sense into this woman. She offered me "parenting skills" classes. I was stunned. I had this said to me so man times in the last 4 years and I have been on so many courses I have "positive parenting? running from my ears. She asked how come school seems to cope fine with her. My answer was She is in a special needs unit with 10 student and 3 support workers. When she was in mainstream she used to fling any thing from tables to dishes at staff. She was in and out of 2 schools before she was 6. Obviously I wasn't the only one having trouble with her. How am I supposed to work with someone like that?
  2. HI Guys, l had a social worker come round today to start a core assement. l asked for help for a support worker, only for few hours a week. She told me that the goverment pays me DLA & carers allowance to look after my daughter, and if l can't do it anymore, l should use the money to get agency in. l have never heard this before. is this true? She also told me that, eventhough, she can do the core assesment, if she refers my daughter to disability team, they might refuse my case. Plus she told me if there is services that my daughter needs, that its up to the top boss to see if he will allow it with his budget.... Seems allot like another council working keeping her hand on the budget to me, but I could be wrong, please advice me
  3. I have started providing our local Disability register coordinator to file all the usefull websites in the quarterly newsletter some things we have posted are; http://www.saynoto0870.com/ alternative phone numbers for the 0870 numbers http://www.transporters.tv/ Website with thomas the tank like characters that was created with help of the NAS to help kids recognise emotions http://www.freecycle.org/groups/unitedkingdom/ A linked email based where people post things they are no longer use, for any one to come and collect. www.mencap.org.uk/willsandtrusts Team planning ahead http://entitledto.co.uk/ helps you to calculate exactly what benefits you are entitled to. Hope it helps
  4. sadmum

    any ideas

    B&Q sells a clear roll cant think of the name, but its like cling film l put on my glass windows, because my daughter did the same thing, its like an anti-break for your glass. have never had a broken window since, fingers crossed. sure start told me about it, plus they fit it for young children plus saftey gates,& fire guards. hope this helps, and good luck
  5. just wanted to say my daughter 9 this year, she still wear pads, she poos and wee, keep at it
  6. Just wanted to tell you all, my daughter is in a special needs unit & when she started at the school they gave her a taxi service, the taxi's didn't work out as the drivers were late, rude, etc, anyway, l have been bringing her myself for a few months now. l ended up talking to one of the mini bus drivers last friday at school, he ask me about my expences. My reply; "what expenses". He told me the council pays for monthly mileage. l rang the council & yes its true, they just dont tell you. plus they re-imburst bus tickets. the Council sends you forms out, you need to bring them into school once a month to get the secretary to sign them. the Council is going to back date me from september, It's only 12/13P per mile, but every little helps. hope it helps
  7. sadmum

    help please

    the first doctor said asperger, dyslexia,adhd,cognative problems, wetting, soiling. them we moved doctors she said she going back to the begining,testing her again its been going on for 4 years now
  8. Hello everyone, my daughter started primary school, age 5, still wetting & soiling herself, hitting& spitting kids & teachers, school got in touch with B.I.C team, one of the kids my daughter hit parent came to my home started shouting & hitting my hubby, l rang the police, the other parent was giving a fine, l went into the head, told her what happened, she told me it would be best to take my daughter out, with her behaviour, & soiling, l went to my GP with the soiling& wetting they told me l didn?t potty train her properly, put me on a toilet programme, l went back it didn?t work, they sent me to Alderhey, anyway l went on the net the next best school in my area, ring them told them about wetting& soiling, they were fine, she started next week, school got in touch with town hall to ask for extra money to support, town hall said no, so school head told me, my daughter not aloud on school property with me, so mon-fri 845am-3pm l had to say at school in case my daughter wet r soiled, 7 months later, she went into Alderhey, they put her on a reward card, guess what it didn?t work, when she was in school she didn?t make friends, other kids took the mikey, saying she smelled of poo. she was soooo sad, l did everything l could, she was now in year1 she could not read or write, l went to have a word with the SEN, l asked for steps to assess her, they came back saying she has problems with words sounds, reading writing, they give school a programme to work with her. it was a nightmare. l just had an enough, l took her out of school, Alderhey put her on ADHD programme, but because she was out of school, they asked me could she go back into Alderhey, l said yes. so they told me it would be for 2 weeks, they noticed thing l didn?t, like see only sleeps a few hours, she constantly brushes her fridge, and the violence to me & her dad, other parents started to complain, about her, so the pedestrian, said she has seen enough, she can go home after 4 days in hospital. the pedestrian said she was showing signs off learning difficulties, aspersers, was asking the BICS team to test her cognitive ability, reasoning, visual learning, it went ok, got the results back and it said, she was below standard, on everything, she got a special needs statement, she was giving a place in a special needs unit, she meet the new paediatrician for 10 min in school last April when she first started the school, l found out about about the meeting in a review meeting, l was really upset that the school or the paediatrician never told me before the meeting, don?t get me wrong l didn?t mind, as a parent l would of liked to have been in formed. l have never had a meeting with this new paediatrician, last year she seen my daughter for 10 mins that was that. l has rang her office that many times me & her secretary are on first name terms. she is 9 this year, what do l do please help , l feel l have just left to get on with it, her doctors not ring back my daughter still not sleeping still hitting me and my hubby, my life upside down were can l get help please
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