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Hi, Thanks for the response! Sorry about the confusion, the soft markers we were told of, didn't specify Autism, however I have read on other sites that other reasearch about CPC's maybe linked with Autism, and circumstantial evidence in our family pointed us to think this. Probably just worrying too much!!! T.Scrumptious.

Hi, Thanks for the response! Sorry about the confusion, the soft markers we were told of, didn't specify Autism, however I have read on other sites that other reasearch about CPC's maybe linked with Autism, and circumstantial evidence in our family pointed us to think this. Probably just worrying too much!!! T.Scrumptious.

Hi, does anyone know of a link between choroid plexus cysts (in prenatal scan) and ASD/AS? My DS (B 3yrs - dx ASD) had 1 cyst noted in prenatal scans, we were told that this shows soft markers for various conditions. We had to be re-scanned on numerous occassions, very worried at the time; although my sister in law had been through a similar thing 4 months earlier, so it was 'old news', and was born with no health problems. 3 years down the line, my DS has been diagnosed ASD, and there are concerns that my nephew is AS. We have just had a second son, 18 weeks ago, he had two cysts showing on the scan, but 3 years on, they don't re-scan - and say it is very common; we however, have major concerns. We mentioned this to B's neurodisability Paedy - who said that it was un-related, but a web search on CPC's rings alarm bells.... Has anyone had a similar experience/concerns???? Truly Scrumptious.

Thanks for all the advice guys. Toots!

JsMum, What is Comorbid? I typed into search, got sidetracked with a thread on ADHD Quote Bard " Key ADHD symptoms: Difficulty in following instructions and completing tasks Difficulty in sticking with an activity Easily distracted and forgetful Often doesn't listen when spoken to Fidgets, is restless and can't sit still Interfers with other children's games, activities or work Can't stop talking and interrupts others Runs around at inappropriate times (as well as appropriate!) Blurts out answers without waiting to be asked Has difficulty in waiting or taking turns, eg in games. Acting impulsively, without thinking of the consequences." ....Think B suffers from all of these also, but thought that these were ASD traits. However - that is covered in other threads. C.Potts

Thanks Sue, & JsMum I think we will have to keep a diary or similar. (just wrote this whilst you were - great minds think alike!?!) and make a real effort to try and observe what may have triggered him. Most of the other symtoms you described for your son - he also portrays - but as yet not all at once. I now understand why THAT would be meltdown! Thanks again. Caractacus Potts

Hi all, My 3yr old suffers from ASD (dx), and his comms skills are pretty limited to 'tape recordings' i.e, clips of speach. Just recently on two occasions, he has had a major panic attack type thing. He is normally very happy, has no sense of danger/fear, and wether he is in his own world, or ours, this has always been the case. At new year whilst visiting a relative, he totaly flipped out, clutching hold of my wifes neck, wouldn't let go, scared to death, unconsolable, could not communicate his problem, repeatdly asking for the potty - but wouldn't go, wouldn't let the toilet door be shut, wouldn't let anyone but my wife be in the same room etc.. for about 30 mins before she could assure him that mum was there and everything was ok. - by which time she was also in a state. I was at work, but put it down to being in a strange enviroment, Since then he has suffered again - pretty much exactly the same - but this time at home, in the living room, where nothing was out of context for his normal daily life. Does this sound familiar? is this Meltdown? or something else? Any suggestions on how to bring him back? - or do we just ride it out? Thanks, Caractacus Potts & Truely

Hi Krystaltps, Thanks for the welcome in the other thread (my wife - Truly Scrumptious), I have just downloaded the DLA form. I agree, it seems VERY repetitive to answer all the questions from an ASD perspective (as apposed to a physical disability etc..). I have highlighted all the 'suggestions' given with each question, and built a paragraph for the 'more info' box out of these. I will download a new copy to fill out correctly. I didn't think it would be particularly upsetting to fill out the form, ...guess i was wrong. You don't realise what impact it has on your life until you write it all down, you just seem to plod on, add it to the list, etc.. filling this form out - even a first draft - has justified (to me) my impending claim. My take on the DLA/benifit moral argument is, that there is no such thing as a free lunch - and having a child with AS or ASD - no matter to what degree, puts you in credit, the DLA merely compensates (a little...). Like you, my son has good days and bad, on his good days, it would be fair to say that he wouldn't/shouldn't receive DLA - going by the questions, but the fact remains that good days are few and far between, you can't plan them in to your calendar and you certainly take a lot more 'rough' than 'smooth'. - take the good days as a bonus! There must be a whole host of applicants in this forum that could now put together a 'stock answer' - not individual based as obviously each child is different; but for example - care outside - if you have a child like mine that has absolutley no sense of danger, no fear, and would happily play in the road - there must be a standard response, quoting the buzz words they want to hear???? Maybe this forum could make some kind of 'workbook' allowing previous applicants to copy in suggestions/key phrases/buzz words to the individual questions? - This is my first night on here and i have yet to explore all the old threads, something similar may already exist? Anyway, I guess the more help we get the better! Regards, C.Potts

Hello there, this is our first post, My husband and I have just had our 3yr old son Dx'd, we also have a 17week old son. Would just like to say that I wish i had a pound for every drink we have had to leave as my husband got back from the bar.... At times i wish we all (family) had Tshirts with "Yes, he's noisy, Yes he Autistic, No i don't care what you think!" on them. I know of one mum who used to hand out a buisness card explaining the problem to sour faced staring people.... 1 nice thing that happened (although i nearly died with embarrassment - My Hubby liked it though) - we were in Asda before Xmas and my 3yr old sang full volume a whole rendition of "deck the halls with bells of Holly" - Barney style. Everybody in two isles stopped.. some were staring at my hubby and I with disgrace written all over their faces, from the far end of the next isle, 1 man put down his basket and gave my son a proper, arms out wide, standing ovation. My son didn't get it, but it made the two of us feel just that little bit better... - who ever you were, thank you. Truly Scrumptious