jo jones

reviewed again????? she has just rung and said he goin on summin else from mon,,,,,?????????? she said this one should be quicker acting cos the phenergan is not acting quick enough??? i should say 7 hours roughly!!!!!!! bring on more sleep deprivation till then ,,,watch this space innit !!!!!!!!!!!!! x

well psych rang me again mon to review,,,upped the dose to 15ml and said give it to him at 6pm??? still dont seem to have an effect except make him hyper????????? gonna review again tmrw,,,he is still not sleepin till bout 12,30,,?????????????? dont know what they gonna try nxt?? jo

hi lizk and yes he is hyper on it ,,psych rung me back thurs and upped the dose and said give it much earlier??? 7 pm,,,,still no difference he is still flyin around the house at 12 ish???? im waiting for their call as they were going to review again tday and possibly change to something else??? i hope so,,xx

bikemad we use these for day services,,buy a diary and send it with him,,jo x

i totally agree with u baddad,,,i let nature takes it's course and have worse flatulence than the hubby ha ha or the dog for that matter!!! ha ha,,because every woman does even though most wont admit it ,,dunno why???? xxxxx

same difference,,,,,used for same purpose,except paracetamol in medised so helps with pain relief,which phenergan does not,,,i think i will stay with the bma,,

we found it really hard,but got there eventually, we are still waiting for reply though as they have requested the consultants report,,,dunno how long that will take though,,probly next year????

hi annie,,lots of us on here have the same issue with the professionals and will give u good advice,,,after nearly 3 years of tellin them that the little one had problems have they decided to believe me???they basically told me that because i work in autism i was lookin for it?????,it has taken lots of pushing to see the correct people and is sooooo frustrating because we as parents have to live with it daily and not just for a half hour visit at clinic!!!!!,but at last we are getting a teeny weeny bit of help!!! so keep pushin and u will get there xx jo

ha ha ,my example maybe a bit harsh but it does happen innit,,can u imagine?? i just get screamed at lol,and im goin tnite,,,ooohhh nooooo xxxx

i agree ,,this is why i always refer to bma for any medication,, for us or service users,,,

we have the bma book in work,,we use it as we administer drugs to service users,, and we always double check in the bma as it gives u more info than what is on the patient info leaflet,for prolonged use and contra-indicators and so on,,so i looked it up as the generic name and the brand names then are shown also,,,very informative as then u know what u r buying over the counter,,,if u are eva concerned about medication and need info please feel free to pm me and will look up the relevant info for u,,i dont think there will be a link for the bma unless anyone knows as we have to purchase the book via company policy,, jo x,

basically the same stuff though i ad look in bma in work,,,,promethazine,,,,,brand names- medised,night nurse,tyxilix nite time the list went on,,,,x

bikemad was i about right on the example of s/s??? i hope so,,,,,,

aro,,phenergan is the main ingredient in medised which we use when he is ill,,and it does work for him and he is gone in bout an hour,,,what confuses me is the dose she has given him is 5ml,,but yet if he was havin medised he could have much more??? i will see what she says tmrw cos i dont want her to up the dose and he be awake even longer????? ohhhhhhhh noooooooooooo,,,,,, x

gem ask for referral to o/t for input xx

mad innit cos the one that u buy over the counter with phenergan in it,starting with M i have in the house anyway because if he is ill i swear by it!!! and that does knock him out,,,but obviously i dont want to use that if he isnt ill?? so i will have to see what she says???????

he has been prescribed meds aswell now but they makin him hyper???? will speak to psych tmrw hopefully,,,yeah when o/t tried this therapy she used a weighted blanket over him and told this story,,in a very monatone voice i may add(i nearly fell to sleep ha ha),and ever so slowly,,this story he had to imagine he was an ant???it was almost like he was hypnotised??? because we have same problems and his sleep pattern is roughly 1-2 am,,and it is killin us,,,i will get back on to her and find out if she has'nt got in touch soon as she knows how desperate we are,,,also in spacekraft catalogues they have all different types of meditation stuff ,,but they are dvd's so unsure how that works???

hi ,,we went to o/t few weeks back and she tried using a book which is meditation for children,,,there was music on in background aswell,,it did work he was chilled out in about 10 mins,,didnt go to sleep but it was the middle of the day,,o/t is going to send the info on where i can get this book,,i will pm u when i know if u like jo

i know innit ,,its a bloomin nitemare!!! thanx again for info x

i will do,,,he dont need to be any more hyper at 2 am than he already is,,ha ha

bikemad,,will pm u on fb k jo

jsmum,,i have just rung and psych not in tday so will try tmrw,,i asked them to try melatonin first but they said they want to try others so im not sure,,when we went to o/t few weeks ago she tried a weighted blanket and used a meditation storybook,,omg he was chilled out,,but she said she will resource the book and let me know??? im still waiting???because we will try anything to help him,,the books he reads now he says are exciting,hence keeps him awake,,and the story the o/t read was sooooo boring i was nearly sleepin ha ha,,so that will be the way forward i hope..i am definately interested in anything that will calm him so will look in to getting it,,and thank u,,xxxx

thanx moll she said she had 2 meds in mind before trying melatonin ,so i guess maybe she will try him on the other one first,,i hope??? drives us mad it does,,his sleep pattern is roughly between 1 and 2 am????? but only because they think im having a nervous breakdown are they willin to try anything,,,,yes sleep deprivation is awful and is makin me ill, but will soldier on and try what they give him,and its not even that he is calm because he is flyin anyway without the meds!!!!!!but o/t has said its because he cant shut down sensory and is sensory seekin??? they have ruled out adhd?????

i have an acer and have had no probs with it,,,would recommend them,,

sorry mods for starting this here i tried to put it in medication and wouldnt let me??? dunno why but im sure a kind mod will move it for me thanx in advance,,anyway last week boyo was given phenergan to help him sleep,,only now they deciding to try something cos im at my wits end!! the psych said 5ml to be given at about 9 pm ,should take half hour to work then he should drop off???? omg was totally flying and walkin the walls??? she did say he may react the opposite,,,we have done like she said and tried for 3 nights but it just seems to go the other way??? has anyone else used this and would this need to be used over time for effect or should it work asap???? psych told us to ring her and let her know but i dont want to be on the fone to her only after using it for the first couple of days!! any advice appreciated thanx jo xxxx