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Sooze2

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Everything posted by Sooze2

  1. That is the thing, when he was small he had a heart murmer detected (only once at 18 months) he also has a small hernia. Both things are mentioned on the leaflet that comes with it. It also mentions that anxiety, tension, or agitation are a big no no for taking the drug! He has all those in a big way without it! I'm going to take him to the docs to get his heart checked out and hernia looked at before I start him on the meds. Its meant to be on Saturday so hopefully the doc will see me before then. Looks like school have been struggling, last Friday he was taken out of class. He had been told 3 times to stop swinging on his chair and making it go back as far as it could go so he has been warned that he would sit on the floor if he didn't stop. He ended up being sat on the floor so started head banging the wall in rage! Nice. He is arguing with the teachers and has majour problems with any teacher who hasn't actually tought him in the past - he only likes the ones who have taught him! I will have a read later. Thankyou. Sue
  2. I think that its our job as parents to point out these things to the teachers rather than the other way around really. I know our school really accentuates the possitives and is very reluctant to say anything negative because that is their policy. Also a lot of parents refuse to see that their child is less than perfect, I heard one parent refusing to take their son for a speach therapy assessment and even ripped up the letter even though the teacher thought it was needed! Usually its the GP's who do the referrals isn't it? I was luckily because I did it all through school (rubbish gp!) but it did take a lot of hassling on my part by me going in and saying what a nighmare he was at home and told them what he was feeling about going to school etc etc. The teachers are there to teach, our class sizes here are huge - my son has 37 in his class - so the teachers have a lot of kids to deal with without noticing what individuals are up to all day long. I feel your pain but can also understand why the teachers don't pick these things up. Good luck what ever you do - go with your insticts.
  3. Just wondering! He's going to be on 18mg at first.
  4. Sooze2

    Hello Again

    I wonder if anyone remembers me? My internet has been down for about 3 months so its quite nice to be able to come on here a read again. My son is 9 and has ADHD and Autism. A lot has happened over the past few months, we now have DLA for him and the school have just sent off the first stage of the Statement application thingie. Even the Ed Phyc seems to be on side now and her last assessment of him is going to help the statementing cause in a big way. Nice to be back again. Sooze xx
  5. My son is 9 and still uses his fingers, we tell him to use his knife and fork a fair bit during each meal and say that if we went out for a meal it was totally compulsory so he needs to get used to it! Yesterday DH was watching him eating baked beans with his fingers despite promting to use his fork. He was given a special set of cutlery with easy to hold handles a couple of years ago by an OT but he refused to use them saying they were for babies. Its funny though, he learnt to feed himself with a spoon and then a knife and fork very very early because he wanted to be independant and would never let me feed him but he lost those skills graduallly it seems! We just keep telling him to pick up his knife and fork but he has even been known to almost stab himself in the eye with the knife while holding the knife and fork but still trying to use his fingers!!!!!!!!!!!!!!!!
  6. I took a load of fidget toys in for DS after I found out he was using blu tak and said they should roate them or he wouldn't be interested after more than one session at a time, they thought it was a good idea but promptly gave them to a load of kids in his Social Group who apparently "found them really great"! Its good that they worked but - Ehem - they were not for the other kids they were for my son and since I bought them #I would rather they stayed in the class room forhim to use! I'm not sure if he uses them or not now I think about it.
  7. I havn't seen any nastiness here, I don't know about the last week or so because I havn't been here. There have been differences in opinion but you will get that anywhere - compared to the school playground where I am when the adults are waiting for the kids to come out this is like a lovely fluffy pink blankie I can tell you. When reading posts I work on the basis that if I don't like the content I stop reading and go on to the next one.
  8. I wouldn't like it either, not at all! You could pretend to be ignorant yourself and say something along the lines of "so, can I die from Aspergers Disease then!!??" This my make make him realise that one little out of place word can have a huge effect!
  9. Thanks Jb, yes I think is time to see the GP again, I enroled with a new one a few months ago but havn't been for an appointment yet due to GP fear caused by our old one! How sad am I! He will talk during the night but he is talking the dream, it isn;t reality, he will talk to me but only if I can pick up on what he's on about. Yesterday he was looking for someone or something called Henry and would only settle once I told him that They had found Henry and he was ok now so you can go and rest now and relax - seemed to work! So do I ask to see a neurologist? I was reading about EEG's the other day, should I ask for that? I know I seem to lack confidence but the old GP just wouldn't listen to me and in the end I felt I was just making it all up!
  10. Chris, my hubby is like you and can't see the need for anything electronic other than a TV, he won't use the computer etc etc. He will use the playstation with DS now though. We didn't even get a CD player untill about 7 years ago because DH didn't see the point of them and only gave in when I couldn't buy a tape he really wanted for his birthday and I told him how embarrassed I was when the person in the shop laughed at me when I asked for a cassette!!!!!!!! Our Wii is going to be pressie for the whole family, things that cost that much will be shared by everyone and I am the the horrible person who will have to lay down the rules for it - which I hate!. My boys DS which he got last year has meant that I can now have a conversation with my parents when he's there and travel in the car without all hell breaking lose and me nearly crashing because he is so terrible to the others in the car due to him not being able to sit still and do nothing for more than a milli second.
  11. Cat, he has no idea at all. He never remembers that he's been walking or had a bad bout of night terrors when I ask him the next morning, I don't always mention it to him because he was starting to get quite upset about hearing he does things in the night that he doesn't know anything about! A couple of months ago I din't get to him when he first got up because I had fallen asleep, DH eventually got up and DS was in a real screaming state and running around the house crying hysterically looking for me. DH thought he'd calmed him but each time he put him back to bed he got up again which went on for hours. He wasn't awake, DH couldn't have a conversation with him but didn'y know what to do and say to get him out of it because he's never got up with him before. DS remembered nothing about it in the morning! Oh well perhaps a trip to the GP is in order. Ive not really been overly worried before I am so used to it and especially because my old GP always dissmissed it but I am concerned that maybe he's having a seizure and that is what makes him get up!
  12. Thanks Elouise. He has always done it, since he was a baby really and once he was in a bed that walking started in a big way andhe did it every night. But this one was different. To be honest it really doesn't worry me anymore because I'm so used to his weird nightime habbits. He's been on Menatonin for 3 months which has helped him to get to sleep and did help him stay asleep too but recently he has started waking again. He's never shaken this violently though so I am concerned that something else is going on that makes him wake up in the first place!
  13. DS has just got out of bed roaming around, he came downstairs and was shaking but doing his usually sleep walking thing. When he got back into bed he was shaking violently - the bed was shaking with him! He does shake when he's roaming and lieing down afterwards but never like this, also he seemed to be more awake than usual and was able to answer my questions about what he was coming out with. He has no temperature. Do you think he is actually fitting or something? I woke DH (I don't usually) and as usual he was dissinterested but did come down in the end but said "yes, stange isn't it" but went back to bed like it didn't matter. So nice to see he cares about his son isn't it? Does anyone have any experiec eof this?
  14. Yes, I have taught my children about playing games and that the fun is in the playing and joining in rather than the winning, it worked on 2 but not on DS who really thinks that all games were invented for him alone to win and everyone else who joins in are there just to be beaten for his amusement - if he doesn't win the world collapses around him and we will all be punished for our disrespect! The Wii sounds great though, I don't think there is much chance of us all being able to play it together andwill more likely be him and his dad playing OR me and the girls. The more I think about it the more I realise that I was living in fairy land when I dreampt of us all playing happily together on it like they do in the adverts. I am a marketing mans dream.
  15. Sorry I just wanted to add that I didn't mean the above in a negative way, just in case it came across like that. He's having a ball and very happy which I am loving, we seem to have all accepted things and each other lately and possitivity seems to be soaking through the house. Its great.
  16. To have an intertest that keeps you occupied for every single minute of the day............. Don't you think? It was so brilliant to see him getting out the k'nex that he got for Xmas 2 years ago and had to buy extra wheels for the first time since a week after he received it, he's making cars with it rather than making them with lego or playing car games on the PlayStation or watching top gear or even talking about cars. He's a bit upset as I type because the girls are playing with his magnetix (which he never uses) which has 4 wheels in amougst it and they are daring to touch said wheels even though he's not playing with it and never has! What a great way to be. Love him.
  17. Yes, I usually feel that I have tripplets rather than twins because he usually acts the same age as them or younger. When crossing roads I make my more sensible twin hold mine and Ds's hand to make sure he actually crosses otherwise I look back and he is still at the curb looking at the cars behind him! Hey ho, nice to meet another twin mum.
  18. <'> Same in this house I'm affraid. Not with Boy this time though (he's being good) but the twins. They are 6 and there is a real power struggle going on at the moment so if they aren';t arguing with each other they are giving me verbal, dirty looks and generally acting like stroppy teenagers partly copied from DS and partly from school. A few days ago a tv arrived for their room which they clubbed together their birthday money and money box money to buy for themselves so that their room was to become a kind of sanctuary they to go to to get away from DS. I removed the extention cable for the tv and thier cd player from their room today and told them they weren't getting it back till they could act civily towards me. They were horrified and extrememly upset (to say the least) as theyve only had it 4 days but nothing is working on them, looks like they want to learn the hard way! Do you remember He-Man's favourite phrase "I HAVE THE POWER!" It feels good right now They forget that I have lived through much much worse with DS so they will never beat me.
  19. LOL MelowMeldrew you sound like my DH who still won't use the PC. Our local Blockbuster video shop sells loads of second hand Playstation games for only �3.99, we got the Eye Toy with a game for that price the other day. Sometimes they are on a by 4 for �10 offer too! I am hoping that it will be the same for the Wii games as well soon because they are so expensive to buy new aren't they!!! Thanks a lot for all the replies, I'm glad to see I am not the only one thinking about this because I thought I was probably thinking too deeply about it - as I often do about most things really
  20. Hi Sean Thanks very much for showing your video, I have just told my son he has ADHD and Autism today and I have shown him your video because it is so positive and you are so lovely! My son thinks you are just like an average guy and you have made him feel great about himself and his differences. In my opinion your video will make a difference to anyone who is touched by autism in such a great way. Thank you.
  21. Thanks Warren, thats exactly what I was wondering. He gets very frustrated when playing on the Play station with anyone exept his freind, I can't play it with him and he tolerates his Dad playing but will turn it off or get angry if he thinks he MAY lose half way through the game even though he really wants his Dad to play with him. Add to that the fact that he will be standing up holding a weapon - I mean a controller and waving it around and we could have a war zone in the front room! Thing is that I know me and the girls will like it and he really wants one. Dad thinks the whole idea is terrible partly because he hates technology and partly because he is worried about what will happen when we turn it on and whether it will be in one peice at the end of Christmas day! I recently bought the Buzz junior game for the playstation which four of us played (all children) which resulted in a very stressed son. I thought the eye toy would be a test of how he would cope with the Wii, he has used one before so I thought it would be ok! Can you play the Wii like a normal console if you want? If you can he could do that and me and the girls could do the team games together couldn't we? I can't beleive I am talking about this because it shouldn't be causing concern really but as we all know here these are the things that are hard to cope with and with it being so expensive I am now quite worried it will be too much hassle to use it but I think it is now too last to take it back since I bought it last month on a special Bundle deal! Blimey, what a bore I am.
  22. Erm nope! Today it was freezing here, DS couldn;t find his warm winter coat because it turned out that he'd left it in the car which was parked too far away to pop to. He had to wear his water proof so we could walk the dog, I told him to wear a jumper too because it was freezing outside (just stopped hailing) he had a megga tantrum over it and it took about 15 minutes for him to get ready to go out with the dog! In the mean time the dog was going crazy because she doesn't understand that simply putting your coat on and getting the lead doesn't mean we are leaving right away when DS has to come along too He also won't wear long sleaves, must always have his hood up and tabs velcroed tightly around his neck but zip fully open (looks crazy!) hates ande won't wear jumpers to the point that he loses them on purpose. Won;t wear jeans but thankfully I have at last found some long trousers that he will wear in the last week. The only long trousers he used to wear looked terrible and ancient but hoorah for Primark and their lovely softly lined trousers which actually look quite trendy - they have saved me the "your poor child looks freezing in those shorts, it is December you know!" looks that I have become accustomed too over the years. Shoes are another matter, he takes ages to put them on due to the velcro needing to be so super tight that his feet are practically falling off due to the lack of circulation, it can take a very long time to get them just right! Sorry I have no solutions. But you do have my sympathy.
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