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Jannih

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Everything posted by Jannih

  1. Go for an appeal. Always describe how you are on a BAD day and give examples, noting the effects on you and others. Get assistance with the forms eg CAB, disability rights organisation, social worker etc. Certainly mention the mental health disorders that have been diagnosed. Who cares if they think "You're nuts." It's confidential and you will probably never meet them! Unfortunately, you are one of many, you are to them a statistic, so don't worry about telling them everything. ESA is for both physical and mental conditions. All the best. Jannih
  2. I will be coming in from Waterloo Station. I will see you by the South Bank sign. I have noted the phone numbers, if any probs.
  3. Hi All We need to decide, where exactly, we are meeting up tomorrow. We know it's 12 noon on the South Bank, Royal Festival Hall, but where exactly? As I am not familiar with the area.
  4. I agree, Waterloo Station is a better option than Embankment. We will still need to be specific as to the exact location, where we meet.
  5. Hi JS mum, I am so sorry to hear this. Hopefully, it won't be for long and it will allow you a bit of "me" time, so you can recharge your batteries. Jannih
  6. It is on. We have agreed on Pizza Express, near the Royal Festival Hall on the South Bank. Saturday 26.2.11 (I can't remember the time but it was agreed, I will have to look back at the previous posts) The names so far : Jannih, Mumble Tally Dana. Do we have anymore to add ?
  7. Pizza Expres 26.2.2011 List of names so far: Jannih Mumble Tally Justine Dana Anymore names to add ?
  8. Pizza Express in Covent Garden, where we went last year.
  9. I'm not the best organiser in the world. Far from it. I couldn't organise a p**s up in a brewery. So, I suggest, Saturday, 26th February at Pizza Express. Is everyone happy with that? It will give us all enough time to organise time off for ourselves. I hope ! Jannih
  10. I did the same as you; I copied the triad of impairments, then underneath each one, provided examples of my difficulties. They were printed in red. Do persevere with getting a diagnosis, because you can confidently move on and address your problems more effectively. Let's face it, I was convinced I had Aspergers. If I had depended purely on self diagnosis, I would not get far, as it turned out my problems were related to a different condition which requires a different approach/ treatment etc. BTW. My premliminary diagnosis report hasn't arrived yet, but I am told is in the post. Will keep you informed.
  11. What about a Saturday in February. If those who are up for it, tell us what dates you are free, then we can work from there and then discuss where we are going to meet. I am free 5th, 12th, 19th, 26th Feb. I like anywhere, where there is food ! All are welcome, including Mumble
  12. There is something called "brain fog" which is definitely linked with ADHD. This is a layman's term.The medical word for it is, cognitive dysfunction. I've pasted a link for wikipaedia on Inattentive ADHD. http://en.wikipedia.org/wiki/ADHD_predominantly_inattentive
  13. Gosh Nixie, I thought I was reading about myself ! I also thought I had Aspergers and went for a diagnosis. I don't want to confuse you any more but I was recently diagnosed at the Maudsley Hospital with ADHD (the inattentive form of it).They acknowledged I had autistic traits but felt I could not be diagnosed as I maintained good eye contact. What would happen with me would be that my eye contact would just wander off. eg. at work I will be interviewing a customer, next thing is that the customer will look over his shoulder, because he thinks I have seen something more interesting going on ! The Psychiatrist felt that this was an attention deficit. Certain things you say may point to this : <<I zone out a lot. I just go into my own little world. I try to stay in the real world but I dont really like it a lot of the time. Life is so unpredictable and scary and I would rather be in my world and think about things I want to. I zone out in conversations and when I come back in I have no idea what they are talking about or if someone says my name or asks me a question. When I was a child I was always called a daydreamer and everyone says Im on my own planet>> <<If people ask me things it feels as if my head is full of mist and I cant see the answer and trying to get it is like wading through treacle.>> <<My head is on overdrive all the time. Its like there are several people in there, theres always at least 2 but they are all me, and there is conversation going on all the time even when Im trying to listen to other people which means I lose track of what they are saying. The only time it shuts up is if I am reading a really good book, like Harry Potter, or if I am repeating something in my head, or if I am listening to music I like.>> <<I can just pace up and down or sit on the floor and trace things with my finger for hours >> Needless to say I think that Autism does overlap with the other stuff eg. OCD, ADHD and so it might take a formal assessment to see where you are at.
  14. Jannih

    confused

    Similar problems exist in neurotypical relationships. If one half of the relationship wants to pursue things at a fast rate, whether it be emtionally or physically, the other person will often back off, as they can't cope with the intensity coming from the other person. The Aspergers might play a big part in his behaviour but also acknowledge that this happens with neurotypical couples as well.
  15. Jannih

    Sad Day

    Sorry to hear about the loss of your grand dad. BTW. If your dad was formally adopted or named on the birth certificate as the father, he will have the same legal rights as the "real" sons.
  16. I get the impression that it is quite common for females with ASD, not to be interested in make-up and wear "Tom-Boy clothes" As for me. During the day and at work, I never wear make up, but I do like to look reasonably feminine. Until recently I used to wear loose, float, slightly eccentric but stylish clothes. As I have got older, I have started to wear clothes that show off my shape but are still comfortable, but nothing tarty. If I go out anywhere nice in the evening, I do wear make up and enjoy dressing up.
  17. Hi Bloodheart, I tend to agree with Chris and Tally, that organisers need to know about new people coming into the group, for such reasons as,the vulnerability of the members. Also they need to prepare the others for a newcomer, coming into their circle. Those with ASD are as diverse and different as any NT person. You cannot compare yourself with others. What you do need is an assessment by professional medics. I sort of know you feel, being a person who lives independently and works. I have often wondered whether I was making a mountain out of a molehill. Why didn't I just get on and try and merge in with everyone else instead of trying to get a diagnosis which provokes a lot of scepticism in others. My answer to that was, that in order to go forward and alleviate my difficulties, I had to get a diagnosis.
  18. I did the AQ Test and scored 32. I know I'm borderline so that might be another reason for not picking it up. However, I am aware that the Maudsley has a good reputation and the doctor congratulated me on getting that far!! I will wait for the written report and then decide what to do regarding a second opinion. Until then I will keep an open mind.
  19. Unfortunately there are those people who are incapable of work but cannot get ESA either and it easy for them to fall through the system. It's good that you are going for a diagnosis. Contact NAS about finding a support worker who could go with you, when you sign on. Ask to be referred to the DEA. If you have a phone phobia, they should not be "forcing" you into call centre work. Re. Joseekers Agreement. Think about your skills and the things that you enjoy such has hobbies. Think how you can then transfer those skills/ hobbies to a job. You might, say, enjoy amateur photography, then you could put photographer on your JSag. Hope that helps.
  20. I was recently seen at the Maudsley Hospital for an assessment. I was in a similar position to you i.e my mum is dead and my father of 92 wasn't aware of, or able to answer questions regarding my childhood. My sister who is 18 months older than me, had to help out with the questionnaires relating to the years between 5 and 12. A close friend provided the information for the questions relating to the last 6 months. The consultant who saw me was OK with this.
  21. I have given it lots of thought over the weekend. To qualify for an Aspergers diagnosis, I would have to have problems with things like eye contact etc. which is one of the triad of impairments that has to be present. I maintained eye contact and I used my hands when trying to explain something. I think this is what disqualified me. They accepted that I have problems with small talk, empathy and social imagination. I am beginnning to see why they felt that I had what they called an attention related disorder, which needs further investigation. I was straight on the internet when I got home. There are sub types of ADHD I think I might have the inattentive one, or the one that goes with impulsivity. I have never seen myself as hyperactive. If anything I needed a rocket up my backside to sometimes get me going! It does not apply so much now but I used to be a bit lary and over the top, usuallly over compensating for my social difficulties. For a long time I have always assumed my sister was autistic, and still do,but it's interesting to note that her problems were noticed due to hyperactivity at school. She could not sit down to listen to a story and would dance to the hymns in assembly! This was in the 1960s. She reminded me that she used to run everywhere and not walk. This is something I used to do as a child / teenager, probably well into my 20s. I am not going to challenge it because I'm beginning to think they may have a point. I have had the time to digest what was said and I will wait for the report. It should come through in a month.
  22. I am under the impression that ear infections are very much a Fragile X thing. Could be wrong. Look it up !
  23. Yes it certainly was a lot to take in. I had no idea that I might possibly have problems around ADD/ADHD. I am keeping an open mind, but the first thing I did, was look it up on the internet. I must admit there are things that fit but also things that don't add up. I will go for the in depth assessment, if one is arranged. Now I'm not on the spectrum, can I still hang around on this forum ?
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