rainbow queen

right well ive tryed ringing her and shes not been in i spoke to her partner on msn -and he cant see what the fuss is about saying they will get used to them and all that my 5 year old is alot more able than my 6 year old but even he isnt what id call the norm...if that makes sense -he copys alot from his older brother ive found out they are the micro type ones and they are flashing and from argos costing �20 each thats alot of cash -if they wont even set foot on them. i just cant see it happening with my son [asd],he also has probs with balance walking -even has problems with different surfaces of ground, im still fuming -its been getting at me all day 1/i dont want her to waste her cash 2/they dont listen to a word i say 3/ fancy leaving it till right near xmas day to tell me

<'> >< <'> >< <'> >< i have stayed indoors today with my 2 as cant face taking them out anywhere............... today most of the day has been took up with stopping fighting/and trying to disciplin them,and stop my 6 year old manipulating and controlling my 5 year old. ive spent 30 mins this morning in my kitchen with my 5 year old...trying to get an apology and just now have spent an hour sorting out 6 year old for giving me abuse -hitting-calling names ect........hes just calmed down now seperated them both -ones in the bath...other watching tv............... as i sat there waiting for my son to calm down ...i thought to myself .............what an effing life this is.............. :whistle: :whistle: xxxx

well so far the replys have been very postive and promising................maybe im looking on the negative too much...........xxx

i only found out last night my sister has bought my 2 boys a scooter each for xmas....without letting me know first... im getting my 5 year old a bike for xmas with stabilsers but my asd son is not having one as he cant do it-ive spent much time in the past trying to do it and it all ends in tears so he was happy just to have pc games this year ect now i feel really bad as my sister is on a tight budget too with cash -i told her to get them bubble bath................ and i swear ive told her in the past about my asd sons balance ect --it falls on deaf ears............. now im going look really ungratefull-and im unsure about telling her it will be no good. have any of your children ever mastered to use a scooter ?? going ring her up in a bit to try and explain..................

MERRY CHRISTMAS TO ONE AND ALL XXX

im very glad karen gave me the link to these posts -the infomation on this thread in invaluble to me at the present moment in time as im sure it will be for others having the same issues.

thank you karen those are perfect examples -i will be printing that off

ha lol.............. i can think of several people to send it too

well i dont know what to say about this- is there any legal advice available about it? <'> <'> <'> it looks like your doing all you can and trying your best....

oh my <'> <'> <'> we had the very same bug last xmas-all 3 of us and could not even eat the xmas dinner-in fact ive had it happen twice to me at xmas. this year tonsilitis is doing the rounds and chest infections-ive been drs already i asked her for antibiotics in case i get ill at xmas and u cant get to see dr-my youngest has been ill with virus all last week then i did start so ive started the antibiotics. my son never goes to the loo either-i put towles all over the floor now around the bed -helps a little take care <'> xxx

thats excellent news glad to hear your getting the right help xxx

hello suze- yes i still am going to the group when i can -last one i went to had paul shattock there. first thing i will do is write to camhs about it all-they discharged my son not long after dx he was ment to be seeing a behaviour lady but nothings happened -ive been given visual time table for at home -through data team -they did go into school to outline things to help him before he went back in sept....i really dont think this enough and its not really working. i get help 2 hours a week through the chat team and i have told his social worker about problems im having but nothing seems to happen. people keep mentioning casdat to me but no i have not contacted them -could you pm me the number? hope you and your family are ok? merry christmas to you <'> xxx

is there any links or info i could print off about how some asd children bottle everything up and unleash it at home? and also stuff about -being clever -like in subjects but that dont mean they need help...............sorry if that sounds daft i mean i want stuff to print that shows even if your iq is good -its all the other stuff that suffers..........ie -the changes in a school day ect-playtime/friends/aniexty. xxx

you are not alone <'> <'> <'> im also dreading it, me and my boys and my mum and dad are having xmas dinner this year in a pub-which will be a nice change for my parents as they have always cooked the xmas dinner-i know its very certain ds will play up -but ive given him loads warnings and told the pub staff.............everyone will just have to put up with it -im going try to enjoy it anyway. i dont have many family round anyway -except my sister comes round and theres always meltdowns when someone comes or goes. i actually bought some board games in a 3 for 2 offer -yesterday i took them back -dont know what the hell i was thinking there-it would just be another battlefield-ds hates game rules and hates loosing.[it was wishfull thinking] its going be a mamouth task getting him out of house on xmas day for the dinner I WOULD LIKE TO WISH EVERYONE A HAPPY CHRISTMAS-AND EVERYONE TAKE CARE OF THEMSELFS XXX <'> <'> <'> <'> <'> <'> <'> <'> <'> <'>

another question-? should i write to camhs and the salt -data team who dx him...and tell them im going to apply for one -they were helpfull to me-in fact they asked me if there was anything they could help with....this was back in may derrrrr why didnt i say then about a statement. shall i tell them and ask them for there help as well ?

Before a statement is written, the local education authority (LEA) will ask your child?s teachers, a doctor, social services and an education psychologist to examine your child and write reports. You will be asked for your views too. This is described in our booklet Asking for a Statutory Assessment. In this booklet we describe what happens when the assessment is completed and the LEA decides to make a statement. My child is getting a statement Step 1: get a copy of the SEN Code of Practice questions about the above?? which dr do they use -your childs? social services -ewill they be asking the ones that are already involved with you? my son has a social worker. if it is your own ect then i belive my drs and my ds social worker would back me up. not sure about education psychologist-dont think ones ever seen my son -but could be wrong maybe when he first started school -not sure on that one

hello all well ive finally had enough- i am planning to try and get a statement in the new year...............though i have no much clue about it all the school think my son is doing ok at home his behaviour is really going down hill- i dont think the school take what i say serious at all. whenever theres changes at school i get it in the neck-and its stepping up a gear now-and im seriously having trouble dealing with him at home -and when we get down to the root of it its always things at school. i dont know what evidence i have to prove this i have his homeschool book -which i was going to photo copy-im saying on nearly every day whats gone on -and half the time they dont reply or when they do its just to say they see no problem. what other proof do i need? i have a report from salt saying about him dealing with changes ect ...and anixiousand his dx the biggest proof i have is he is making my life hell -trying to get him to school-and i think the ###### teacher thinks im putting it on........... and now hes playing up in mornings -when i pick him up and now at night before bed.theres no end to it really. they are ment to do a visual time table with him ect -but as this is all just points that was put across to the teacher after he got dx -its not a statement. he can not manage when she is of sick -how the hell is he going manage in juniors or high school. can anyone give advice to me - im leaving it till next year-when im gered up im going do it................ ive read lots of your posts and relise its going be a struggle -i have not much other help so i hope you will all not mind supporting me in this?? love rq xxx <'>

i got it sorted - i got someone out to it -it was something to do with the wirless router and needed updating ....... its something i wouldnt of been able to sort myself .as im not very techno on pcs.

hi a similar thing has happened with my nephew whos in his 20s my sister asked for respite /or asked about something else and they were met with this reply too -he is dx aspergers -where as yes he is intelligent ect but he cant make a cup of coffee proper ect or look after himself. i can not remember fully word for word the reply but it had to do with well he has not got a learning disability-so like he does not fall into that class type of thing..............it sounds like red tape stuff and it seems this is the genearl thing they say -it is not right at all. same thing with my 6 year old who has no statement -he is doing really well in his subjects-in fact his reading is staggering-yet ask him if he knows what hes read thats a total different thing.the school think hes doing excellent -yes he is but hes not in the other hidden areas....like basic skills-ie washing himselfect....or making any friends .

i do like your avatar bid

i can see both sides of the coin here with this toothbrushing is nightmare here too.

thank you for the replys everyone well weekend is nearly over and ive just about survived.i guess i should lay of him a bit ,and stop nagging him into things,as you say it just makes it all a whole lot worse,i think ive had a cold coming on me this weekend so ive felt a bit weepy.i think all the christmas stuff has effected him too-and he worked really hard to do 2 performances for the christmas play-he had a line in it but hed worked himself up about it long beforehand. i need to learn to relax more and chill out ...lol

well id ask the teachers for a meeting regarding the iep to discuss whats on it and what targets have been met and when it will be reviewed again-you yourself are ment to sign these ieps[though i didnt know this at first ect -as they try keeping you in the dark] regarding the discharge -i would write a letter expressing your concerns and also state about what the salt has said. i know its alot of repeating things -but it seems this has to happen to make them listen also about your dd-i would also write letters demanding some results ect.....and even put in the letter you want a 2nd opion if nothing gets done. have you got notes about all the things your children do--if not its a good idea to write it all down like a case history ect so you have stuff on paper . <'>

wishing you the best of luck <'>

hi all im feeling low weekends seem to have gotton really bad -along with school mornings everyweekend is the same -constant arguiug back at me when ever hes asked to do basic simple things................. he also will now start carrying on if i mention we need to go the shop i do all my food shopping in the week when hes at school-weekends visit to shop is for a paper only and now im finding that a major battle in fact my cat has has done a poo and wee and my rug-i used white vinegar on it -and read on the net bicarbonate soda to get rid of the smell -thats why i wanted to nip the shop.this is 2nd time -my own fault for letting it stay in overnight-im gutted -rug is a wool one id treated myself too. theres deffo a pattern to my sons behaviour -i end up putting him in his room -which he objects to -i let him stay in there while he rants-then he calms down and comes out-tells me hes calmed down ect -gos downstairs -but then it starts up again - more often than not arguing with his younger brother or if i ask him to do something it really is getting me down -i cant even get dressed or have a shower or even get my breakfast- in fact i cant do anything-when i attempt to do anything it all starts up again. it makes me feel really trapped and sad that we have not much of a life . sorry for ranting-its just getting at me . i guess theres not much that can be done about it.