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rainbow queen

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Everything posted by rainbow queen

  1. well i just wanted to add i split up with my boys dad when they was very young since then ive had 2 relationships -both ended on account for the dealings with my children.....mainly my asd son...ect so can understand where you coming from its very hard -i dont have any advice really <'> >< <'>
  2. hi i also had this problem -my son had just started last sept in year 1 at old school. i had put it off for ages thinking that it would really mess things up..........after a big row with the headteacher things came to a head and i decided to go for it..............i got him transfered in the oct i can say it was best thing i did............. he settled in well...and the school was much better for him ...and in his work hes really come on leaps.... so while it may feel like a major upheaval......sometimes you need to go through it if its going be of better help in the long run for your child. i wish i hadnt put it off for aslong as i did .
  3. im feeling really down after struggling along with my 6 year old who was dx in may my 5 year old is now being really really naughty- he is being seen by camhs whome thought it may be like adhd -but all school reports came back ok..... im seeing them again next week im at a loss with it all really...whos gone really aggresive and abusive........... i know hes had alot to deal with cause he gets lots of manipulation and controlling from my 6 year old....and he sees his brother being taken out -day trips ect cause of the way he is ect....and over the years alot of my times been spent on sorting my 6 year old out it really feels abit like payback time---im very scared thats its going go worse -hes alot stronger and bigger built than my 6 year old and harder to contain. ive just written a letter to his teacher to tell her about whats going on......and to ask her to speak to him aswell. anybody else had this problem?
  4. yes -i dont go far in my car with my sons in it.....hence ive never driven on motorway or places a way off.....i think its worse going to school because its a rushed thing...and also maybe his anxiety about the school day ect... but yeah i wont go to no places that i havnt already driven to and basically thats just our town really.....
  5. well ill just second whats already been said just come back from parents evening-not a mention of any probs,i suppose i should be glad that hes doing really well in his subjects ect....but its all the other stuff that worrys me -i tryed raising some points only to be put down with the -well theres no problems at school....i even asked about a statement but she reckoned no chance as hes doing so well i belive my son is starting to notice the difference in him to others or rather the others are seeing that hes different and he only has one friend he plays with at playtime and hes got sen. ive got a report from salt saying that he actually does not truley interact in the playground-but then shes trained in asd,so these reports must stand for nowt then -cause no one seems to take any notice of them. i said about the getting him to school ect ordeal i have and in the car too.....presents a danger while im driving-cause he hates me making noise ect and her suggestion was asking a policeman to talk to him about it like thats going do anything when its a sensory problem..............and wriitten again in a report is a mention about my son even was said to of asked me to stop breathing once cause it was getting on his nerves. they do seem to like have been told to be over the top positive with me-i reckon its cause they dont want me asking for a statement and they are all told to do this to stop your efforts ect
  6. hes on school action plus-there was ideas given to his teacher from the salt/asd lady as to how things could help him back in sept that was but u have no idea really of whats been done for him as its not like specfic 1 to 1 stuff last year at school he was in a little group every week -and he loved this and often talks about that now -i think its because he had more 1to 1 then.
  7. hes on school action plus-there was ideas given to his teacher from the salt/asd lady as to how things could help him back in sept that was but u have no idea really of whats been done for him as its not like specfic 1 to 1 stuff last year at school he was in a little group every week -and he loved this and often talks about that now -i think its because he had more 1to 1 then.
  8. hi all -i have already done a post in advice section about transport to school without a statement i want to ask these few questions does getting a statement have to depend on just the education side? can i not ask for one on other grounds also like the trouble with sensory overload and getting my son in school and home plus the playground is another one- im getting feed back of my son that he only plays with one person -and that person also has sen-he is becoming more and more seggreated or so from what hes told me -teachers would say different im sure but i think hes noticing it himself -that the others dont want to play with him-they even told him this ect... i do have some reports from salt and it says about him having some anxitey and poor social skills and him playing in playground on outskirts of children but not truley interacting. then it goes on to say that its not effecting his learning ect..... ive read lots of everyones posts and from what ive read it looks terrible trying to get a statement,im unsure what to do....but deep down i feel my son is suffering at some level-and as they get older i think it would go worse and show up more ,but as it stands i am not sure what grounds i have about it all. p.s i am really rubbish at communication too-and everytime i speak to teachers ect i do not get my point across very well.
  9. thanks clintess -added you no he has no learning difficulties but has just completed a social skills group run by speech and lang at local hospital -and they said he would get ongoing salt at his school-had this a while ect.... he was dx with global developmentally delay when he was 2 and a half. in hindsight i really should of pushed for a statement back in nursery before school i guess.....
  10. thanks for replying-glad to hear other people are having same trouble....the outlook is grim then-do your children comply when they are at school then?..... my sons been same to since he could walk im not sure what to do -as im a shy quiet person i feel im letting my son down cause im not fighting more for him-why i havnt asked for statement is cause they are telling me hes doing ok at school. i had to struggle ect to get him dx......
  11. can somebody give me some advice please -im at my wits end and dont know whom i am meant to ask for help my 6 year old has no statement-school say hes doing really well-blah blah-hes good at his work and causes no problems at school-but socially struggles i think in playground he was dx in may autistic spectrum disorder-but no plans were made foe state ment-as he does well ive struggled since nursery getting him to school and back hes in year 2 now -and tbh im sick of it-he treats me like dirt and carrys on in the car -sometimes scraming and kicking me -if i talk with my other son whos 5 and he goes same school. its not safe to drive tbh with him in the car i make him sit at back and other son in front cause they fight all the time. im allowed on the car park with the taxis who get escorts ect it feels so unfair that i have to be going under this stress everyday and my 5 year old with my 6 year olds carrying on its first thing in morning-shouting -screaming arguing ect to get out door to get school -then he starts in the car then home time same thing to top it all my 5 year old is now coming out of school being abusive to me cause he sees his brother doing it- ive had enough would i get any help-with transport the thing is i have to take my 5 year old anyway and collect him-will this matter. what do i do-the school teacher knows i have trouble -and my son gets thumbs up or tghumbs down if hes come into school ok tbh its a pile of ######-cause he carrys on most days then walks into school ok im left really depressed and stressed out and im scared of driving while hes in the car to walk its a fair way and he refuses to do it as he cant walk brill -and he gets low rate mobilty help please rq xxx
  12. not sure if this is usefull but this year i started getting -what they call thunderclap migraines at the point of you know what[ ] id never had this before and it did feel really really bad like a sort of stroke type thing-i felt i couldnt move and it was all down one side of my head and body. really scared me-went to drs who then arranged a mri scan of my brain,gave me strong migrane tablets..........i had some of the results back -there was something that showed up in my scan -one of my veins was bigger than the other -or something-and they belived i wa sok -but they wanted to double check with drs in that field at hope hospital....im still waiting results. id deffo go back gps and ask if there is a need for a brain scan or further investigation.........i really wouldnt like to be sat around waiting for it to happen again.
  13. my 4 year old does this -hes not dx asd,but very hyper,its very constant and i think he does it as like an anixity thing,cause when we are in situations he starts it up,and humming ,-really gets unbearable after a while. my 6 year old -asd yelps alot and makes high pitched noises ,and wails-theres no other word to describe it -its not like real crying but wailing.....about things ect... pair of them at it together=plenty of paracetamol
  14. yes in fact camhs asked me to ....this was pre dx because my son was not showing much behaviour in hospital settings or reception-school[back a couple of years] i filled a whole tape up of what goes on at home day to day it really opened there eyes when they saw it ...and not long after that he got dx.
  15. hi guys-just wanted to post this -lol stupid vigin have messed up my net when i moved to talk unlimited plan-they brought modem out since then cant get on net missing this forum so bad -they coming out next mon to sort it if they can................... feel really cut of with no net. im in libary doing this -on pc for use for an hour. hope everyones ok cant wait to get back on to read all the posts bye for now rx xxx <'>
  16. Im reading a book at the moment by brenda boyd -parenting a child with asperger syndrome as theres been alot of posts of late feeling like we are bad parents i thought the first bit in her book applys to us all.......its under laying the foundations -looking after yourself......... http://books.google.co.uk/books?id=E_4svBS...SbXFPg2vTJWzLl8 hugs to everyone feeling low <'> >< <'> >< rq xxx
  17. hi busylizzie 100 It has been suggested to me that DS3 acts as he does because he has two older brothers both on the spectrum, so he has to jump through hoops to get them to interact and the result is a hyper, manic child! Personally, I disagree. His impulsiveness and destructivity is not brought on by their responses, I'm sure. i had to reply to that ive had exactly same said to me about son number 2-i dont agree with it too,i know it dont help having asd in the family but i dont belive it can be the cause of hyperactivity ect.... im in the same postion as you -son 2 has been seen by camhs and they have sent forms out to reception to see what hes like at school[which if its anything like my other son....ill be waiting forever-as my other son behaved so well at school ect] so i am just waiting now for another appointment.....but ive been told theres such a long waiting list for adhd team ect....so will have to see how it goes...... take care rq xxx
  18. hi carrieq i would ask your gp for a refferal for her to be checked into i have 6 year old asd and my nearly 5 year old displays alot adhd signs,in fact hes got overlooked really with all the miver with my 6 year old.........but i asked my gp to reffer him to cdc and then camhs to to see if he has adhd..... he has a few similar autistic traits at times but like u say about your daughter he is very social and is not the same as my 6 year old but hes deffo hyper always on the go ,non stop talking,dont pay attention to things ect.....cant sit still ect.. in fact because of the way he is around my 6 year old-this is one of major reasons my 6 year old goes into meltdowns because he cant deal with the noise and the rushing around ect............ in fact i find it hard to deal with it.........so i deffo would suggest lookinh into it if you feel there is some concern. rq xxx
  19. I wondered how many other children do this....................i presume they do.. my 6 year old has always licked and sniffed things -i think its like a comfort thing....... when hes nervous he licks the back of his hand as well as doing like a tic movement at the same time....... hes always had a toy dog since a baby and would never part with him -used to sniff him all the time....but now the sniffing has moved onto other things.........and the licking caught him licking the fridges and freezers in local super market but this ones the best yet id bought him a nintendo ds for his 6th birthday i wondered why some of the games stopped working.........i took the ds back 2 weeks ago as i had it uder cover and exchanged it....but yet again the games were not always working well tonight found out why-he keeps licking the games then putting them in the ds so out of 5 games hes got-3 wasnt working.......... i wouldnt mind but there not cheap i managed to get 2 more working by blowing on them.........hoping the others will work to. i had to tell him off about it which i felt rottern for as this afternoon had been one of the good days[yesterday was a bad one with loads arguing and shouting] so he went bed upset. i was going get him some more games for xmas but have my doubts now rq xxx
  20. i second that.................dont be too hard on yourself ....but i know how you feel.as im sure most parents on this forum have and do feel the same at times.
  21. hello farfalla <'> welcome to the forum. rx xxx
  22. <'> >< <'> >< totally feel like this on really bad days everyone gets to breaking point i get all those thoughts in my head and more at times -then i feel really guilty and feel i have to punish myself for not being a good mum. rq xxx
  23. well just updating as i started both my sons on magnesium and b6 and also zinc i have to say i have seen a difference........so i do belive it helps........they are also taking the iq oil at the same time too.[asd son has had this since 2 years old] my asd son is having less meltdowns -or they are not lasting as long..........and my hyperactive son....well its reduced his fidgiting and constant moving dramaticlly.....he went one weekend without them and you could see the diffeence straight away -was going wild. i got them from holland and barret....my older son will swallow them whole but my 4 year old will not..........so i bought a pestal and mortor and crushed his up -melted 2 pieces of choc...mixed them in to that...put it in little sweet -cake holder...put in fridge to set.he will take it in that form after much arguing,and the reward of piece of choc after hed had the medicine choc. just thought id let you know as ive found some positive results with it.
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