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lisac

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Posts posted by lisac


  1. Sally your last sentence is true until they leave. I have learnt that Services change all the time and managers and staff come and go. It is so beneficial to have someone looking out for you who loves you and will keep these providers on their toes so to speak x


  2. Hi Jeanne how is Glen? Has he been to the dentist or had his eyes checked yet? I would think these are the most important things to get done asap so at least you can eliminate pain as a factor for the behaviours. Maybe it hurts Glen to go out as light can have a negative effect on sensitive eyes, just a thought. Hope he has settled more, x


  3. Hi Jeanne, I think the most important thing is making sure he gets his good eye re-checked at the appointment, as you say you think he has been hitting it, if just to be reassured. If it means drugging him to a point of sedation to get him there it has to be worth it. Will the care home do this?


  4. Hi Jeanne, the eye specialist must have previously checked his good eye. Did they say that it was Ok? I was worried about this too, as my soon also attacked his good eye but eventually gave up.

    ( I was told at the time that it is very very hard to detach your own retina and that the bad eye had probably had this weakness since birth). When is he having his good eye checked?

     

    This autism is Hell :(


  5. Im sad to hear about Glens eye sight, the same happened to my lad. The eye specialist said not to repair it because it had been like that for a while and other problems can occur later on with reattached retinas, like cataracts. I wonder if Glens eye could have been been bothering him for a while. It must be as irritating as hell and unbearable to live with. Our poor sons they really really don't deserve any of it. x


  6. Hi Jeanne I am very sorry to hear this It makes me want to cry. My son had an episode like this about ten years ago, I stupidly tried to intervene and was bitten badly and I was petrified he could kill himself. He attacked himself violently. He was put on high dose meds after that. I am always wary but It didn't happen again thank god. I am sure it had everything to do with his eye problem that he just could not cope with the discomfort. I really feel for you and hope this was a one off. Glens care home sound excellent. x


  7. That is good his eye will be checked. I too, don't know what bothers my son, the first things I do are check for any pain, ie. toenails, finger nails, insect bites, mouth ulcers, foot blisters, etc even an itchy head could start him off! My son is also anxious at the moment and your guess is as good as mine! Fingers crossed it all ceases and they can go back to being happy once again, xx


  8. Yes Jeanne I agree. My son was much better in himself when he left school and all pressure was off, he is 26 now. I never thought hed be able to learn anything as the right environment and approach was never found. He then had a series of different workers and agencies taking him out and about each day, to cafes, parks etc , until he started getting highly highly anxious again. Then I found this college that uses makaton, has some structure, but in a relaxed and respectful way and its been working.( so far). The one thing I can think that has made the difference is that my son is better for only a few hours, part time, anywhere than all day. In the past once lunch was over in the afternoons hed get very highly stressed, like hed had enough. But then gawd knows Jeanne, I could be wrong, as this is only through observation as it is impossible to know, as he is unable to have a conversation or tell me anything. Just so pleased I can drop him off for a few hours a day and not worry, x


  9. That is so very good to hear Jeanne. Yes, my son is doing fine. The past 4 yrs hes been going to a specialist college for a few hours each day. He does life skills stuff , using the ipad to choose items when shopping and cooking, visiting garden centres etc and has travel training. I still cant believe how lucky we are ( internet search) at finding this college, it really is a one off.x


  10. Glen sounds very much like my son. He is also an observer not a participator. I would say leave it well alone if he seems happy and content. With my son it can be the build of people putting pressure on him that then leads to very high anxiety levels and self injuring, even people keep asking him questions or getting him to get involved with stuff when he doesn't want to can trigger him off. Maybe wait till hes been there six months or so.


  11. Hi, yes I agree with this, no pressure is good! A slow start to the day can be the right thing. My lad goes to college in the afternoons 1-4pm and this is fine with us.

    I am remembering the days when he had to be up and out by 8am for the school bus to take him to his special school.. how stressful and pointless it all was. A relaxed way of being has to be better for anyones mental health. Heres to late mornings :wine:


  12. My son has had phases in the past of deliberately wetting and soiling himself and then as if by magic reverts to using the toilet again. No one knows why, only he does. I have sometimes felt it is a reaction to something he doesn't like, so he then has to do something worse than what it is he doesn't like. i.e wetting /soiling or self injuring. Not nice but im sure it will pass, just try as best as you can to ignore it .

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