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MrsD

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About MrsD

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    Salisbury Hill

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  • Gender
    Female
  • Location
    Devon
  1. MrsD

    Melatonin

    The Paediatric Consultant just phoned me to say she has spoken to 'their' pharmacist (presume at the Children's Development Centre where she is located) and the pharmacist said yes, it is ok to crush the prolonged release tablets. Thanks to you all for your replies.
  2. MrsD

    Melatonin

    Thank you so much for your replies. You've put my mind at rest, I'll be able to sleep tonight .
  3. MrsD

    Melatonin

    Hi, I wonder if anyone can help advise me? Four months ago my 4 year son with ASD was prescribed Melatonin by his Consultant Paed at the Child Development Centre for hyperactivity at bed time. The Paed told me it was a tablet, I told her DS would not take a tablet (4 years old!), she told me to crush it and put it in food/drink. It worked fantastically well and we are still using it. However, the Paed wrote to the GP and asked them to now prescribe Melatonin 2mg. The Melatonin tablets we were given were slow release and said "swallow whole". I didn't think about checking this at the time because the Paed told me to crush them. When I collected the prescription yesterday, the GP gave us Melatonin strawberry flavour Oral Liquid which contains E420, E218, E216 and E1520 (they had no directions from the Paed as to what Melatonin to prescribe). I phoned the GP and asked for the tablets which we are used to. When I collected the tablets today from the chemist, the pharmacist said the tablets should NOT be crushed. I told her the Paed consultant told me to crush them and she was very surprised. She said if I do start using the oral liquid now, it will act in a different way to the crushed tablets I've been giving him because they were slow release. Just feeling in limbo, not knowing whether to try DS with the oral liquid (although his drink will obviously taste different so forsee this will be a problem). Also, should I be concerned about the E numbers? Am I doing him any harm by crushing the tablets which are slow release? Any advice appreciated to put me out of misery as this will be on my mind all weekend! Thanks again.
  4. MrsD

    One year on

    Thank you all for your replies. Puffin - Yes, that's what I am thinking... when we get a new psychologist, she may have a different opinion and a diagnosis may be hard to get. 6 months ago I didn't anticipate my daughter needing help at school BUT for some reason her difficulties are becoming more evident. I know she will do academically well but it is her social side that I think will be a problem. I am going to phone the psychologist on Monday and take up the offer of a diagnosis.
  5. My daughter has been under the care of the clinical psychologist at the local children's development centre for the past 18 months. The psychologist is leaving and has been told to 'wrap up her cases'. She offered me a diagnosis for my daughter of "high functioning autism". I accepted the diagnosis but then thought about it for a few days, phoned the psychologist and said I didn't want her diagnosed yet and that I wanted to see how she got on at school - which was the original plan suggested to me. I don't know if I've done right. I DO anticipate problems at school but do I need a diagnosis to get help for my daughter? My daughter only has a mild spectrum disorder and there are family and friends that refuse she has any problems. Any thoughts appreciated.
  6. Communication and Interaction Resource Base Here's a link (hope I'm allowed to post it) with more information on a CAIRB http://www.the-castle-primary.devon.sch.uk/pages/CAIRB.htm
  7. Thanks to everyone that replied. As a result of the info given to me I have now: Requested a Statutory Assessment for my son - I am currently writing the Parental Evidence! On 12th November I will know if the assessment will go ahead. I have obtained a copy of the SEN Toolkit and Code of Practice. I have spoken to an outreach worker at a primary school (10 miles away) who runs a CAIRB for autistic children which is attached to a mainstream school. Apparently, to be a candidate for a placement, my son would have to have a statement and complex needs. ????DOES ANYONE HAVE EXPERIENCE OF A CAIRB???? Our designated mainstream school is a definite no no, we visited the other day. My son's behaviour was terrible while looking around, it's a very large, busy primary school and was too much for him. (This is going in my parental evidence with the telephone number of the SENCO who showed us around!) My head is spinning with visiting schools, talking to Parent Partnership, NAS, Special Education Team and the Outreach Worker. I'm learning as I go along. Yes, SALT has been involved for some time with my son (and my daughter who has had speech delay/clarity issues). Some days I wonder about my son's diagnosis of 'moderate ASD' and think he will be fine in a mainstream school. On a bad day, I know he will not Many thanks again.
  8. Thank you. I'll look at the link. It was the Portage Advisory Teacher at my son's review that told me a special school wouldn't look at him. Dee x
  9. Hi all, My son is due to start primary school next year. I have to submit my preference in November/December. I'm just about to start looking at schools. My son has been diagnosed with moderate ASD. We don't know yet whether he will need a statement, we are being referred to the Ed Psych. Currently there is funding in place at his pre school for one to one help, so I expect a statement may be likely although he has progressed amazingly well over the past few months. I have been told that a special school is not an option as they will 'not look at him' because his ASD is not severe enough. He is a bright little boy and a few months ago he started talking. He has a twin sister (non ASD), so ideally it would be beneficial for them both to attend the same school. It's all a bit daunting, I know nothing about schools as these are my first and only children. Do you have any advice as to what I should be asking or looking at when I visit these schools? Many thanks.
  10. Sally, My son is involved with Portage and has also just started nursery. That's a worry too. I have given them strict verbal instructions and written consent that if he's taken out for a walk they must use reins! The Psychologist recently advised me to lock all windows in case he tries to escape. It's such a worry isn't it? I'm finding myself checking and checking windows before he goes upstairs to bed! Thanks all. Dee
  11. Thanks for the ideas. I've never heard of Autism Outreach Department, who do they come under? We're not involved with social services (currently). My son was 3 in June and he was diagnosed with ASD a week before his 3rd birthday. I do use reins when he's out, but half of the time he's swinging around on them or on the floor - if he can't go where he wants to go. Yes, mainly it's a worry around the house/garden. Also, the road is so busy, taking him for a local walk is a no no. He has a twin sister and I've been a single mum for the past 4 months so I don't have time to do any active petitioning, unfortunately. Thanks.
  12. Thanks Bid for taking the time to reply. The 'housing association' consists of a few panel members from the local parish council, it's an Almshouse that I live in and there are only 2 properties available (one of them being my accommodation). There are no other properties - it seems a strange set up I know. I had a police officer visit me this afternoon re my formal complaint for speeding. She did think we should ask for gates to be fitted.
  13. Just over 2 years ago we were lucky to get offered accommodation in the form of charitable housing. At the time I didn't know my son had ASD and I had no idea how dangerous the road was. There's a 30mph speed limit but it's a straight road and cars/lorries/tractors/coaches come through all the time. The road is very busy and most vehicles exceed the speed limit. My husband's and neighbour's car have both been written off while stationary outside our house, both on different occasions. The driveway has no gate, it is so easy for my son to make his escape and it's such a constant worry. The county councillor, local councillor, MP, road casualty reduction officer and parish council have all been involved in trying to get traffic calming measures but as no one's been hurt yet, I don't think it's likely to happen. Getting an exchange is not a possibility so I would have to give up our secure tenancy and rent privately. My son has no road sense whatsoever. My instinct is telling me to get away from this road and move. Do you think I'm being sensible by doing this? I don't know when/or if my son will get any road sense. He has NO fears and NO sense of danger. Thanks for any advice.
  14. GOOD NEWS in a way but also sad. Today was the Clinical Case Review for my son, the Consultant IS diagnosing ASD. Apparently the CARS form which the Child Psychologist completed, with my help, is quite significant in confirming the diagnosis. The Consultant and Child Psychologist always did think my son has ASD, I suppose this has confirmed it for them. They also said it would help him get the extra help he needs when he starts pre-school in September. He'll be 3 years old next week. Dee (A worried mum with a very recent diagnosed gorgeous ASD little boy) x
  15. Yes, I agree with you, much easier to blame it on the parents. I was raging last week when I heard about Attachment Disorder, I can tell you! I wonder how many of you with ASD children have had comments from family/friends/health professionals (before diagnosis) who put your children's difficult behaviour down to parenting/home environment. Anyway, GOOD NEWS in a way but also sad. Today was the Clinical Case Review for my son, the Consultant IS diagnosing ASD. Apparently the CARS form which the Child Psychologist completed, with my help, is quite significant in confirming the diagnosis. The Consultant and Child Psychologist always did think my son has ASD, I suppose this has confirmed it for them. They also said it would help him get the extra help he needs when he starts pre-school in September. He'll be 3 years old next week. Dee (A worried mum with a very recent diagnosed gorgeous ASD little boy) x
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