I will start by introducing myself and say a little bit (if I can condense it) about me and my family.
I am Julie, I am a mum to 5 boys, Bradley - 13, Kieran - 11, Elliott - 7, Ollie - 6 and Jaeden - 17 months, I live with my partner and our boys in Cheshire where I work part time as a care assistant, my partner also has 2 sons who live with there mum.
I wish I had found this website and forum years ago. Bradley has Tourettes and ADHD and Elliott is a medical mystery so I'm told but after reading some of the threads I finally don't feel alone and like I'm going mad.
Elliott was born at 35 weeks + 1 day, by emergency section, his apgar score was 2 and took 20 mins to reach the full 10 during which time he was ventilated, I first noticed some delay when he wasnt sitting up or rolling over at 9 months but put it down to him being lazy, by the time he was 13 months and still couldnt do anything, health professionals started to get involved, he had physio, was seeing consultants weekly and we got told we were looking at a syndrome but they didn't know what kind of syndrome.
Anyway as time progressed so did Elliott, he eventually started walking and talking when he was nearly 3, he had portage, speech therapy, a behaviour therapist as he had lots of phobias and didnt sleep well.
Eventually as nobody could quite pinpoint Elliotts problems he started mainstream school, which I got told was the right thing to do.
Now at the age of 7, Elliott has so many quirky behaviours, CAMHS havent got a clue, they have suggested testing for ASD due to some of his behaviours which baffle us but we accept it's just Elliotts way.
I just wondered if anybody recognises any of these behaviours and I'm not looking for a diagnosis, just maybe for some help with dealing with them as we find them really challenging.
Really obsessive behaviour, taking every thing literally, violent outbursts including swearing at myself, my partner and his younger brother Ollie, he takes his underpants off after every toilet visit and they go missing, is like a little magpie, he is very clever at school and gets all top grades but I feel he absorbs it like a sponge as he recites what he has been told than how he understands it, he makes up stories, he has no sense of danger and would completely trust anybody who spoke to him by name, he can kind of do eye contact but looks through you rather than at you if that makes any sense, these are just some of his behaviours.
I don't have much faith in the consultant he is under, as she sent me to see the physio 'to shut me up' when I said his right leg looked smaller than his left and the physio confirmed that his right leg was about 2 cm shorter than his left leg.
Also CAHMS let Bradley down and he got labelled as a naughty boy all through primary school and it was put down that he behaved the way he did because I didnt have enough boundaries until he developed the twitches and then the high school noticed a pattern to his behaviour and he got diagnosed so I feel really let down by all concerned with my sons.
Sorry to have gone on and I hope that I havent bored you all too much and if anybody has any words of wisdom, They would be gratefully received.
Thanks for listening and pleased to be a part of your community xx