nikrix

Sounds familar!!.....P was just the same mega tamtrums every item of clothing was a battle to put on. The worst was shoes and socks would take ages and it all had to go on it the right order the right way (her way) I can hear you asking how we got over it, well it does still happen but not as bad. I think anxieties can be a cause of it. In the end it came down to blackmail just a little each day. For example P was not allowed down stairs to watch tele before she had her clothes on, another was she luvs egg sandwiches so she was told she could have one if she put her shoes and socks on first. We had to be persistent and this went on for months but it worked in the end. We got what we wanted and she got what she wanted. Sorry if any one thinks its out of orderb to use a bit of blackmail but it worked for us.

weather

About time we had a campaign like this!!!! I have not had time to read it all but what I have seen so far looks good. I've added the link to my site and I will do all I can to help with this campaign. If there is any other way I can help pm me. Keep up the good work

alley

Hi glad your back and up and running again !!!

Hi jontytheartist, I am sorry to hear that you are going through a bad time. I think you need time to talk with people that understand your problems and I think here is a good place. I must agree with phasmid that is not a good thing to give out personal details to someone we do not know, but am sure that a lot of member here will be happy to give you advice. I think for the time being it would be wise to get some advice from the members here. You can use the personal messenger if you wish to talk to someone in private. Maybe it would help if you give us more details of what you are going through. I have not read all of your last posts and i will go and have a look now. I just think you should keep posting your concerns and get to know us all. All the best Nikrix

I said that when the third came a long, but it did I can tell you. How old are all yours? I am reaching that age where I think if I dont have another one it will be to late. Not felt like that for 5 years lol. It funny how it hits you I never dreamt I would want more.

Well most are saying that they were more sick with girls, I was the other way round. I was sick every day with the boys and with my girl one to two month free of the sickness. So I can not tell you, think its different with all of us. Good luck with it all. 4 how will you cope? I have 3 didn't want any more but..........that time clock is ticking away, maybe number 4 may come one day.

Its a personal decision My two older children have had it. My daughter now nine was dx with epilepsy at a early age she had a few seizures before the MMR but went on to have quiet a few after then a dx of ASD. My son now four had 2 seizures the same as my daughter before his MMR was due, he has not had the MMR and had no more seizures. Yes its a worry I don't know if I have done the right thing. He has come out in a rash recently and it looked just like measles, he still has it but it was put down to a viral infection. I don't have the answers either, sorry!!!

Boxer shorts

Just Posted. Are you in the picture Helen??

Hi again Just found this, may be of some help Petite Mal Seizures Petite mal seizures, also known as absence attacks, or primary generalized seizures, occur almost exclusively in children. Typically they affect people younger than 20, with children between the ages of 6 and 12 most likely to experience them. This type of seizure can run in families. Most children with petit mal seizures have otherwise normal neurological systems. Many can expect to outgrow the disorder. Petite mal, or absence, seizures are characterized by an abrupt interruption of consciousness without convulsion. During the typical, seconds-long episode there is a zoning out, rarely with chewing, swallowing, or blinking automatisms. The individual usually continues doing what he was doing, despite the seizure, yet his actions are void of intention, automated. Interaction is not possible during the episode. Following the seizure, the child often continues in the activity that engaged him prior to the seizure?s onset as though a lapse did not occur. In their subtlety, petite mals can be easily missed. Sometimes children with these seizure are misdiagnosed with learning or behavioral problems. Nikrix

It could be Petit Mals which is a form of epilepsy. When you child is having these absences can you get through to him?? My daughter has a dx of epilepsy and has had Petit Mals she will gaze into thin air and you cannot get through to her they last only a few minutes if that and they are unaware of what has taken place or what has been said. If you would like to know anymore pm me. NIkrix

Hi all thanks for all your replys. I did think like a lot of you that it could be a sensory problem or scizhophrenia thats why I was so concerned. Her dx is ASD , she has had problems of seeing things before this was mostly flashing lights and the swirly things as she calls them. The main concern is the voices for me as there are telling her to do things and at the moment she can not make out what. She has said she has not heard the voices for a few days, just her head going fast, thats her words she finds it hard to explain the feeling. Thanks all again, I will phone her consultant tomorrow and see if the appointment can be brought forward. Nikrix

Thanks Tylers-mum, not posted in a while because sometimes feel that I don't fit in on the forum. I always check new posts, but find it hard to reply. Hope you know what I mean. Think its just me as a person find it hard to fit in. It was really nice to get your reply made me feel more welcome <'> Thankyou Nikrix

Hi sorry not posted in a while. My daughter has started to hear voices in her head. She says she see,s white in front of her followed by swirls of colours and then loads of voices telling her to do something but she can not make out what. She is usually in a quite place when it happens. I have informed the school and they are keeping her in at break times and not letting her go into crowded place as this may be to much for her. I am going to see her consultant in May and will bring this up. I wandered if any one else had ever heard of anything like this. Nikrix

Some of what you say, I feel like some times but only some. I don't know what I would do if I felt like that all the time. It does sound to me that you are depressed and I would try to get some help if you can. Just please try to remember you are not alone and I am sure that we all here will try to help you in any way we can. I am sorry I do not know the right words to say to you and I wish I could give you a big hug right now. If you need a good old chat PM me. Thinking of you Nikrix

That is so sad. I have 4 cats. To old cats which never go out and 2 part persain cats that do go out. They never seem to wander, some say that pedigree cats do not wander or are more homely. I would leave things for a while and see how the kids feel after they have gotten over the shock of it. I am so sorry for your news I love my cats and could not bare to be without them. Good luck with what ever you decide. Nikrix

Sorry can not find my posts that I start on this topic. For those who don't know I have been trying to put additional hours into P statement for lunch time and play time as I have had loads of problems at these times with P. Just found the post where I started this topic http://www.asd-forum.org.uk/forum/index.php?showtopic=5692 Well received letter from the LEA today and they are not going to give P the additional hours in her statement to cover lunch time and playtime. The reason for this they say is because P needs are being met at the school she is receiving 25 hours TA support in the classroom and there have sent a time table to show this. Her statement says 15 hours so she is receiving more, well so the school says. It was also said she is getting support in addition to the 25 hour at lunch time and play time and yes she is now but only because I kicked up about it. Who is to say that it will all stop again that?s why I wanted the hours put in the statement. It looks like there is nothing you can do. But if these problems happen again and I think there will, what are we to do, the LEA believe the schools over us parents. I will keep fighting, but at the moment things are in place. We will just have to wait and see. Nikrix

Hi Tina and welcome, Yes you are right this forum has got some wonderful caring people. I have 3 children son 12, daughter 9 ASD, son 4. Look forward to getting to know you. Just seen dave has added to this post, hello and welcome to you as well Nikrix

Sorry come into this a bit late, sending you loads of ((((hugs)))) <'> <'> <'> <'> Hope you are feeling more positive now. Sometimes these things need to come to a head to get things moving in the right direction. I too have big problems with my NT son 12, there is just no talking to him. It really got me down the other week, I could not even talk to him without him kicking off. I didn't know which way to turn, things are a little better, but things are just not the same as they were. It takes time and there is always something new round the corner to cope with. You're a great mum, I can see how much you care from your posts, so don't give up. xxxxxx

I was wandering how they were getting on, glad to hear things are moving in the right direction Nikrix

Simon All the best for tomorrow <'> <'> Nikrix

I voted no! Last year P hit her head at school, this happened in the morning. P went to the sick room three time during the day because she felt ill, she also told the helper who said "don't worry you'll feel fine in a minute" As I have said before P has a problem with expressing herself so she probably could not tell them exactly how she was feeling. By the end of the day she was quite badly sick, the teacher did come out and inform me that P had been sick, she looked as white as a ghost and was ill for the rest of the evening. It was not till later when P felt a little better that she said she had a important note in her bag, this is when i found out that P had hit her head. The teacher never mentioned this when she told me she had been sick. You can imagine how I felt, P is also got a dx of epilepsy. I went in and saw the head the next day and she said she would deal with it. I should of been imformed of it as soon as it happened.

P was diagnosed with ASD at school they always refer to her having aspergers, it is also written in her statement the she has dx of asperger It confuses me. Nikrix