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reuby2

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Posts posted by reuby2

  2. Posted · Report reply

    Lucas,

    I have been told that my 7 year old son has autistic features but not enought to diagnose "classic autism" and they have asked for extra reports and we go back on thursday.I have had it explained as being on "the spectrum".After reading these posts I feel unsure now as to what that means...e.g If they don't diagnose "classic autism" does that mean he isn't autistic???? Would appreciate your opinion please..

    :)

  3. Posted · Edited by reuby2 · Report reply

    :ph34r: gosh what is this place i've stumbled into :ph34r:

    Maybe it was the mushrooms in that pizza last night.As i'm catwoman I thought I ought to see what goes on in the batcave and boy now I know !!!!!!!!!!!!!!!!!!!!

     

    Wow pyschadelic :jester::jester::jester:

     

    I'll be back !!!!!!!! :robbie:

    :robbie::ph34r::party:

     

     

     

    B)B)B)

  4. Posted · Edited by reuby2 · Report reply

    Hi all,

    I have been posting for the last 3 weeks since it was suggested by camhs that J may have autism. J (Not his real initial but a bit unsure about posting his name) is our only child ,he is 7 now.We are already seeing a speech therapist(since Jan) had assessment by O.T for fine motor skills and should be getting some support there, seen a pysiotherapist for shoulder and pelvic strength he was discharged from there but the teacher and O.T want that rechecked, Seen a paediatrician and lastly been to CAMHS for his anxiety where they are checking out autism (he has autistic features, whatever that means) his teacher and speech therapist also think he may be dyspraxic.This last year has been a roller coaster and I have just been taking every step and putting on a brave face, cracking jokes ar work etc but i do feel that it is just about taking it's toll :fight: .On top of that my son's behaviour is really ruling the house.I am constantly trying to be patient in the face of his shouting(when he can't make himself understood) or jumping on my head (whichever he is doing at that time) and it does work.People think he is just a spoilt brat who needs a good smack .He is a lovely boy who gets aggressive when upset and also

    most times just thinks he's playing!! :hypno:

    At school he is totally different, he hates school :angry: , he looks defeated when he goes to school just really sad and down :tearful: and he just waits for hometime.I think this is the first place that i have admitted that things are hard sometimes.I sometimes feel like i am in prison, :wallbash: it is a struggle to get him to come out unless it's something for him.We can't decorate his room , even though the paint is peeling off!!(he gets upset at the thought and wants it exactly the same colour i mean exactly!!!)

    He wont go anywhere without us , my mum looks after him twice a week for an hour and a half after school but he will not have anything to do with her,he either watches t.v or sits on his own waiting.He tells people what they can and can't do (which gets him into trouble with us. :shame: ) you can't sit there, you can't come in here etc. Last time we went out at night (me and hubby :D ) My mum had to ring us as she was really worried, he was sitting on his own in the dark(wouldn't let her come in) and just asking constantly when we would be home :( .We are now trying to be much firmer and making him come out with us when we need to do anything but the constant upset makes doing things hard.Sometimes he does want to do things and we have a good time :thumbs: and he is great at home, bubbly and confident.I have been reading the posts and can see that this behaviour is part of autism, also can see a pattern e.g he gets upset when something doesn't happen as he wanted or expected.I just want to admit that it gets me down.He is not a naughty boy, he is actually very kind and loving to me (when not jumping on my head that is !!!!) :party:

    and is an angel at school :pray: .How do you sift through what is bad behviour and what is the autistic feature????????????????????? :blink::blink:

  6. Posted · Report reply

    Hiya, you said that it has got worse all of a sudden, have you perhaps had your ears checked?Ear infections can sometimes cause loss of balance and those feelings.If not, join the club!! I get stuck when going over boardwalks(where you can see through the cracks.) Up stairs that you can see through.In fact when going over a bridge on holiday, I was stuck gripping on to the rails for grim death!!!!!!

    Fi

  7. Posted · Report reply

    Thanks for replying, I just didn't know if they were changing their mind now.To be honest i have covered up a lot of his behaviour issues and regularly my hubby and me get hit or kicked when he just doesn't stop even when you tell him it hurts.It is playing to him but we end up getting really hurt and he just doesn't respond to us asking him to stop or telling him we are hurt untill we really shout and then he looks sad and says he didn't know it would hurt and he is sorry.......and then does exactly the same thing again.Anyway i'm going to have a cuppa now

    bye for now

    Fi

    x

  8. Posted · Report reply

    Hiya all,

    We are going back to Camhs on thursday when hopefully they will be able to come to some conclusion for my son.I have just got my head around the fact that they suspected autism and when we go on thursday they should have the school report and the ot and speech and language.What i am confused about today is that they have sent us a copy of the letter that they have sent to the paediatrician concerning our last meeting in which they state that ...he has some autistic features but not enough to make a diagnosis of classic autism at this point...then goes on to say that they have requested reports from school etc.What does this mean? My son acts very reserved at school and i have read that some kids appear passive which is what i think he is doing but i am concerned that he wont get any help now.What is classic autism?I am confused!!!!!!!!!!!!!!!!!

    Fi

    xx

  9. Posted · Report reply

    Hi,

    I have been taking citalopram at 40 mg for the last 2 years and I feel my normal self again.I have been diagnosed with G.A.D (generalized anxiety disorder)

    This came to light after my son was born and I had post natal depression at first.I have suffered with anxiety all my life and during my teens it became so bad that I tried to commit suicide and afterwards self harmed for years.My Mum didn't believe in medication and kept it very quiet as she was ashamed and frightened for me I think.Personally I think that if I had had some medication when I was younger that it would have stopped the years of fear and mistakes that I had made (turning to alcohol etc). I am now 33 and feel the best I have felt ever, I actually feel that I am enjoying my life now, without the constant stress and worry that eventually wipes you out.It may be that this particular drug doesn't suit your son (I had different ones before this and had bad reactions) but anxiety is something that literally drains life out of you and anything that helps is worth it.

    Hope everything goes okay,

    Fi

    xx

  11. Posted · Report reply

    hiya Ray,

    My son is now 7 and became obsessed by a fear of dying 3 years ago, 6 months after his nana died.He was frightened that falling down would make him die or touching something would make him die etc.What we did was let him pray his fears out at night (we have always said a prayer at bedtime) and although the prayer takes about 5 mins (has to be in order or else he starts from the beginning and to start with he was praying at different times through the day) he now speaks out his fears in a matter of fact way and seems much happier with it all.

    He says he gets hot feeling in his hands and that gives him bad thoughts which still upset him and make him cry at school but we find it is more the thought of being seperated that makes the idea of death upset him.We have just been told that my son may have autism and that this kind of anxiety is very commonly found in autism.I understand how you feel because we had a particularly bad spell when he went back to school in september where he was getting himself almost hysterical over it and couldn't be comforted but it does seem to have calmed down a bit now. Is your son facing any changes at the moment because we find that when my son is having to cope with change it crops up again.I work in a library and actually got a book from the library, I didn't know if it was a good idea or not, but it was all about different creatures and their lifetimes ranging from a day for a mayfly to a humans lifetime, it was written as a story and although i thought it would perhaps upset my son more, it helped because he started to understand the concept of time and it took some of the uncertainty away. your local library would be able to get hold of some books that may help.

    Thinking of you

    Fi

    x

  12. Posted · Report reply

    Hiya,

    I have been so angry with my family , my brother and his wife, as they have always thought my son was a spoilt brat.So much so that they never come to see their only nephew and have been really pretty unkind really> I have been really upset as he is my only sibling and my son is the only child in the family.I decided to wash my hands of them ( they always talked about us behind our back and critisized us even though they don't have any kids at all!!!).However now that we have been told my son may have autism, the next day they wanted to come round...but i don't want them to.i think the only reason they are bothered now is because they feel guilty at their attitudes and i think.. good let them feel guilty .My Mum says that My son has given the impression of being spoilt, even though he never asks for anything material.Chin up eh, I know exactly how you feel !!!!!!

  13. Posted · Report reply

    Hi,

    I just wanted to say that I understand how you feel.I also have problems with my family and their attitudes towards my son. I have come to the conclusion (after many years) that I can't change them.I get so angry because it hurts me so much but i have learn't (and am still) that I have had to let go of my assumptions e.g That my mother should offer support, my brother should want to see his only nephew and understand that they have there own problems and reasons why they are unable to give me what I need. I have tried to forgive them their failings towards me (although they would never think they have done anything wrong) and instead looked towards other places for my support.I have only just joined this site but already have found so much help.I know that we expect our family to be there for us and to be fair, but unfortunately not everone's family are.

    Take time to appreciate yourself and don't keep trying to make them what they should be (like i did) but acknowledge their failings, otherwise you will constantly be hurting yourself.You need people who can support you, who understand and who care.

    Keep going you are doing great!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

     

    P.s If your sister is No1 let her be it.My brother has always been No1, can do no wrong.I argued for years because of the difference in the way we were treated ,now i just let them get on with it!!!!!!!!!!!!!!!!

    Regarding your niece with the pychology degree........There is a huge difference between knowing something on paper and experiencing it in real life !!!!!

  14. Posted · Report reply

    Cheers everyone!!!!!

    Well I am stopping feeling so sorry for myself now and feeling quite positive.My son is currently running around spraying water all over his Dad quite happily, nothing has changed and he isn't miserable (unless at school or with nana)

    Life is going to be okay.Thanks for putting up with my moaning but it did help !!!!!

    Hope you all have a good week,

    from Fi (reuby is the dog!!!!!!!!!)

    x

  15. Posted · Edited by reuby2 · Report reply

    Hi, again.

    Thanks for all your support.I have definitely taken on board what has been said.

    Thanks, thanks,thanks !!!!!!!!!!!!!!

    I read "welcome to Holland" and broke my heart, I think that is it at the moment.Every hope and dream that I had for my son's future may be gone...may not but everything is now so uncertain.Family and friends say "you'll all be okay" and then they carry on with their lives just the same, even though before they thought he was a naughty boy and got angry at us for being patient.That is why I have found all of your replies so helpful because you are already there and know how it feels.My son is my everything and he is still the same.I have always wanted to protect him but I can't forever.He has already been teased at school over his speech, (he has been having speech therapy since feb and is improving) and the

    primary school that he is at are very good, his teacher is the S.E.N.C.O for the school and very kind.Oh well "holland's" not so bad ,as long as i'm with my son anywhere's fine..

  17. Posted · Report reply

    Thank you all so much.It has made me feel much better.I spent a lot of today crying, I think i am currently in denial e.g He is just shy,will grow out of it,just needs confidence, Psychiatrist doesn't know what she's talking about etc.I have a generalized anxiety disorder and feel like it's my fault.I just thought they were going to say he was struggling with anxiety (he seems to be petrified by death and germs at the moment) so was knocked for six by her saying autism.

    Thanks for your support

    x

  18. Posted · Report reply

    After spending 3 hours answering questions about my son Jim today at Cams

    We have been told that the psychiatrist thinks my son has autism, she is going to get a report from school and we see her again in 3 weeks. I am gutted! My son is

    bright ,intelligent and well liked.He doesn't socialise at school and appears shy, instead spending time walking around on his own.He is very anxious (which is why we were referred) and hates going to school and being seperate from me(mum)

    He is very loving towards myself and Dad but will not give a kiss or any affection to Nana,Grandad etc.I am finding it hard to believe that he has autism and am really upset to think that this is something that is serious and long term.I keep wondering what his future will be like (he is just 7 now).Will he get a job and get married,have kids etc.Sorry if i sound so negative but i feel like a huge bombshell has been dropped on my head. Did anyone else find it hard when there kids were diagnosed?He is a good kid whom we idolise ,and our only child.

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