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trekster

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Everything posted by trekster

  1. Hello Tomorrow (Sunday 11th Oct) Deaf Centre Kings Square, Bristol, Jenny Griffin runs this group. 630pm til 830pm, Minimum age to attend 13 but many members have been here for a few years. We have a pool table, a table football game and we play skittles for a chocolate bar being the prize for the highest individual score. Mixture of Asperger and autistic folk. PS (go around the back of the building if the doors are shut) Tuesday 13th October, Bristol Pub Group*, BSB on the waterfront 7pm til 9pm (many members attend late). Over 18s only, We're planning our Xmas meal and also there's one more place left on the Halloween break. Announcements for the group at 830pm approx, Wednesday 14th October, User representation group*, Deaf Centre, queens square Bristol 2-4pm (Simon cannot attend this time so Nick T is running the group instead) Over 18s only This is where autistics have the chance to air their views. A newsletter hasn't been produced this month so i dont know what the topic is. We have covered various areas such as health (which we are likely to do again considering only 1 person attended the health meeting), housing, employment, benefits and some others i can recall yet. Thursday 15th October, Bath pub group outing, Aspects leisure park longwell green, Nick T runs this group 630pm if you wish to eat with us beforehand in the pub or 730-9pm if you just want to bowl. * Simon Allen (Bristol autism officer) facilitates these social groups, ring him at NAS Filton office to help you decide whether the social groups would suit you.
  2. i wouldn't call it jealously of another sibling i would call it a change of routine. Think about it all of a sudden your autistic kids routines are changed because there's another baby in the house.
  3. http://www.kidsbehaviour.co.uk/free-reward...-behaviour.html Free rewards for good behaviour, and that site looks really good.
  4. They can get praise for things they do right with their daughter. Yes my sisters been resentful of me as well. Thats a good idea then adjustments for what they can and cant do are easier to implement. If you can spend quality time with each child in turn doing something that kid does. It might help with the resentfulness. You could ask for an OT referral for her severe sensory issues. Sounds like she has a strong gag reflex so her body thinks shes going to choke which is why she spits out the medicine. Yes and to me it tastes the same, ask for "gluten free" section of your local supermarket. Sainsburys are the best, followed by Morrisons (get my easter eggs from them), then tescos. See the diets section of this site so you can contact parents who are on it. Im on it and resisted the stuff for 10 years because i couldn't face it. Oppositional Defiance Disorder, * Frequent and/or extreme temper tantrums * Tendency to be easily annoyed by others * Blatant refusal to comply with household or school rules * Takes argumentative stance with adults * Rude, uncooperative and confrontational attitude * Use of mean-spirited language when upset * Deliberate attempts to upset and annoy others * Frequent bursts of anger or resentful attitude * Tendency to place blame on others * Outward and belligerent defiance * Revengeful attitude http://www.kidsbehaviour.co.uk/Oppositiona...isorderODD.html Hard to tell what is an autisitc meltdown and what is ODD though. i'm no expert but i know a parent with an ODD kid so i will ask him for further information if you are still stuck. Alexis PS was worried you would be angry at me for the way i replied.
  5. ive heard of some "untestable" autistics that given the right form of testing came out with very good results.
  6. Pleased you found a quicker journey, train timetables are really crazy at times Alexis
  7. i would complain either to the welfare officer, disability officer or someone high up. Make sure you get the interest from the grant when it arrives.
  8. Hope the student loan part will be enough to keep you going until the other bits come through. Pleased to see you back online mate Alexis
  9. Hello A college that can negotiate my needs with me as well as my carers is the best. Has he asked for a support person to be with him at break/lunchtimes? Is there somewhere he can hang out that's safe during the break-times? is there anything he can take natural or otherwise for his anxiety? What about trying to find another autistic/asperger student he could stick with, strength in numbers comes to mind here. Alexis
  10. Mate i hope this is sorted now and you are settled into your new university year.
  11. What university were you attending? i asked the disability officer to put me in touch with "autistics who wanted to meet other autistics". i met Fiona who i only knew for 2 years as she sadly died from cancer whilst at university. i was her only friend and that meant a lot to her and me. Is there a local NAS social group you could attend? Maybe you will be able to find other students there that happen to be at your university. Im at the university of birmigham but thats distance education only. hope you find some autistic academics you can gell with. Alexis
  12. Some kids react really badly to the chemicals used to clean the schools. If they are benzoate based i would suspect this to be a cause. i am normally very well functioning and able to access constructive ways of dealing with my anxiety, but prolonged exposure to benzoate and im a little monster. Could he be in pain and not able to communicate that pain? Could it be severe sensory overload? (dinning halls made me want to run away and scream due to all the background chattering). Have you tried addressing the possibility that his anger could be related to depression? Prolonged episodes of anger in me are actually depression and taurine, 5htp and being gluten free addresses this. Alexis
  13. If it helps athestar i believe you could be asperger. You can apply for DLA without a diagnosis but you have to be able to describe your difficulties in a way thy can understand. Mine was picked up age 16 (about 14 years ago) for me that was late as i was severely depressed and unable to function mentally. Now 2 years ago i moved into my own housing association flat. If you can its better to get diagnosed with ASD or autism since aspergers doesn't fit any learning disability or mental health criterion. At least thats my experience. Good luck and dont give up, see if you can find a local NAS branch if possible and ask them for help if you need it. Alexis
  14. Hello i couldn't cope without my support person in class, in fact i couldn't cope before i had access to a support person (they didn't admit i had aspergers til age 16). It could be that we have problems accessing our memories. Ask to see his school books instead that hes written in. i hope you resolve your situation soon. Alexis
  15. i wish i could get over this issue as some of our social club members tend to back out at the last minute for the holidays i organise.
  16. A few ideas "Social Stories" by Carol Grey. A pictorial or written timetable of how the school trip is going to happen? That a teaching assistant accompanies him on the school trip. That he can ring you if there is a problem with the school trip. Possibility of going to get him if the trip gets too much. Possibility of taking him to the place hes visiting the week before and let him ask questions about the place. Then you can write it all down for him so he can refer to it if he gets stuck. Definitely a routine thing, with me the sensory overload was a bit much but i just about managed a trip in maths about 2 years ago age 28! So it affects us older folk as well. Alexis
  17. Have fun tally and take it easy when you get back. Do you feel better when you are in hotter climates? Alexis
  18. Or it could be that he cant remember who he's told what? i used to be like that but when my memory improved due to milk withdrawal i was much better. Many of my autistic friends also have poor memories and ive noticed a correlation between poor memory and repetition. Alexis
  19. Sorry not a parent but i can describe the repetition issue in my aspergers. Yes we like repetition because spontaneity is something that's easier for us to remember. As for selectively eating he might need the gluten and dairy free diet if that is mainly what he's having. Have you tried supplements for anxiety? b6 and magnesium can help, gaba, taurine and b12 (if he frequently forgets whats happening or has language recall problems). Alexis
  20. Hello i went through a stage of hating my sister. i think it was to do with the fact that she had things i couldn't achieve. How do people react when she does something that's not so easy for autistics? such as remembers her manners? or waits her turn? or asks for something? Does she get praise for things she does that come automatically to other siblings? Does she feel she getting into trouble more than her other siblings. Its nothing to do with being treated the same its to do with being treated according to your needs. i grew up not knowing i was autistic and was shouted at and smacked for every thing i did wrong. It made me not trust my parents. Normalising us tends to make us rebel, normal sucks and we just want to be accepted for who we are. Sounds to me like she could benefit from going gluten and dairy free and having some supplements in her diet. She could have been born with a conduct disorder such as ODD.
  21. How about giving him something hard to bite like carrots or celery instead? Sounds like hes craving sensory input. Alexis
  22. trekster

    flatulence

    Gluten and milk caused my flatulence also eggs or items with lots of carbon dioxide in them. Also probiotics helped with this but not the milk derived ones, they made it worse!
  23. How long did it take from the date or ordering to when your blanket arrived? We ordered mine about 2 weeks ago and im wondering whether to chase weight2go up or not? There have been no emails and im hoping this blanket will help me sleep. thanks Alexis
  24. i have been chelating for nearly 2 years now. There are some forms of chelation that are unsafe such as IVs and others that are much safer such as AC protocol. PM me for details of this list as its on email not BB. DMSA, ALA or DMPS are known as safer methods of chelation. Alexis
  25. Was wondering if my reading from right to left (ie upside down better than the right way up) could be corrected using this therapy? i live near Bristol and need some help getting some color therapy contacts. Also if anyone knows a driver that will permanently put my screen upside down on my PC i will be grateful for your help. Alexis
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