trekster

i prefer Provamel rice milk and despite what others here say highly advise against using animal milks as subs. Some of us also react to soy milk. i find benzoates i react to whether they be in my diet or on my skin. Alexis

i found it greatly helped my ME. i made the mistake of not cutting out the msg or the aspartame and did better after i did this. i had to include b6, mag, cal, milk thistle, b12 and a few other supplements as well as the diet. They often appear after going gf/cf since the addiction tends to hide them at the time. i hope you can try again sometime. ive been on it about 4 years now and im still improving. Alexis

Try looking up a route from Reading to Windsor and see what you get. http://www.travelinesoutheast.org.uk/se/XSLT_TRIP_REQUEST2 Alexis

Hello i normally find an autism alert card, a disabled railcard or a disabled bus pass is enough to get me in. They don't normally ask for evidence of being a carer at these things. i got a group of us into Edinburgh castle under a discount as the most NT appearing person asked for a discount for us. Usually the words "autism spectrum disorder" are enough to get me in various places. Once we got myself, rally man, quiet asperger and rally mans girlfriend in 1/2 price as rally man and his girlfriend looked NT enough to be our carers. In effect they were our carers as rally man had driven us there. ive been to legoland before but i was too overloaded to take anything in about discounts. i think gran got a senior one but cant remember how the rest of us did. Some disabled folk need 2 carers so you might be able to negotiate that for the 3 year old. Have fun! Let us know how it goes when you get back. Alexis

Same here, unfortunately there are higher incidents of naive autistic kids being abused. Im sure the NAS young persons officer has some information on how to tell if an autistic kid is being abused or if they are displaying "challenging autistic behaviour".

justine1 Has your AS son been tested for severe ADHD or conduct disorder/ODD? This sort of behaviour is normally displayed by kids like your sons. i don't deny hes AS as those disorders can co-occur with AS. Just reminds me of Jackie Jacksons son Joe who told his mum in front of the teacher "my teacher didnt spank me once today".

They should send him to Elliott house as that would confirm that his behaviour is autistic related.

The only way to fight off the "nasty undiagnosed asperger" bully was to pretend she was beating me up when we were having a fight. i didn't like to do that but desperate times called for desperate measures at the time. She didn't bother me after that but i could have got a detention for fighting, i only survived that incident as i froze as soon as the dinner lady came around the corner.

i got this at secondary school, at the time i was sweating because my gf/cf addiction wasn't being treated. Would budding her up with a trusted more assertive child help? She could become selectively silent due to the bullying shes receiving. i know many autistics who have. If she had to draw what was happening would that help? Or even use figurines like playmobils (which i often use to describe how im feeling). Agreed, not sure how the NAS "make school make sense" campaign has been going in your area. Have you heard of Number 6? it is in Edinburgh and is a resource centre for parents and autistics. Its also a safe haven to escape from the outside pressures of the scary world. Would she like to meet other asperger syndrome kids? You could try and ask for a befriender from the NAS if 1-1 works better for her. Also peer awareness but the problem is i fear that could make things worse for your child. i got out a "asperger syndrome practical strategies for the classroom" book one day and underlined what affected me and what would help. My gran then wrote that information up and had a meeting at the school. i know you are reluctant to do this but it might help and then can be passed onto the next scool when she leaves. Have you considered changing schools? It worked in some respects for me but only for a short time. Anti bullying campaign might give you some ideas. Alexis PS i wasn't diagnosed until i was age 16 and had just left school but this worked to an extent at college.

Hi i was diagnosed with aspergers at age 16. Now ive got a supported living flat and ive just turned 30. Alexis

NAS advocacy for education service 0845 070 4002

SAFE is Supporting Autistic Families in Essex. My friend lives in that area and he was also accused of child abuse towards his son. The lad has ADHD. social phobia and ODD and wasnt diagnosed until he was age 16. There is also the NAS advocacy for education service 0845 070 4002 HTH Alexis

Hello My grans cousin has MS and that's on my maternal side. Have you tried looking at google scholar? Thats a site for academics that need research papers about various subjects. There is a treatment for MS that has also helped autistic's in America. Its called LDN (low dose naltroxene) when tends to improve immune system responses in various patients. It can also help with fibro and ME but unfortunately AFAIK isnt around in England. Considering allergies and ASD run in families and celiac and ASD runs in families it wouldnt surprise me if a link was found between MS and ASD in families. Sorry i cant be more specific. Alexis

Thats a very open question and it could mean a number of things. i think they are asking for some sort of evidence that you think you have aspergers. If you have any school reports, college reports any type of educational reports then take them with you. Make sure you talk about your interests as much as you can during the assessment. Alexis

Thanks for posting this but unfortunately it wouldn't suit people like me. i went to see toy story and the only time i could hear the film was when there was music on. The other autistics were unable to quietly be themselves in the cinema. Hope you have fun with all your noisy autistic folk! Alexis

i was thinking of maybe starting thread by saying for example "from Bristol, please post here and share social and support groups that happen in bristol" or something similar. The subheading would be "for non promotional use only" A pinned topic in resources sounds like a good starting point, so we could have "sw region social groups and parent support groups" (or even list them seperately) eg "SW social group for ASD folk" and "Sw parents groups". i don't mean to separate people out offensively its just some of the groups are for ASD folk like "the bristol autism user representation group". All what would be asked in return is for members to keep in touch with each other to reduce the "am i the only ASD (or parent) in Bristol?" feelings. HTH Alexis

Im wondering if one of the twins is a nasty ND? Rickie is still in if you mean the scottish guy? i have a sky + box and record one and watch the other. Alexis

Your welcome i was actually quite angry about something else on another autistic forum at the time so its good to appreciated. If you explain that "due to my sons autism he cannot transition easily from one activity to another. When he is reminded of this fact it gets him very upset which is why he lashes out". Then suggest something they could use with him, eg "when i give you a pen it mean we have to move onto the next activity". High Scope teaching is something you can look for in a good school. It is where the child takes responsibility in effect for their own learning. Each child will have their own peg to hang their coat with their name and something that reminds them its their peg. Also they have a board with their name and the same symbol as their peg which they carry around the room with the teacher to choose their activity. The names are hung up next to their planned activity so the child can see when something is full. If an activity is full some children have been known to negotiate with others so they can use the activity after them. Other times the teacher intervenes and helps them to choose another activity. After so long all change and children move onto another activity. If taught at an early age this method can aid childrens learning. i had it at my nursery school and although i could play in the right areas i couldn't play with the other kids. High scope was developed in america in special schools and has been known to improve kids confidence and well being. i was trying to find something more concrete on their site but didn't see anything so this is all from grans memory and shes not in the UK atm! http://www.highscope.org/Content.asp?ContentId=1 Alexis

Signed thanks for posting this

Thats a good idea to start with mate. i got mine to help me understand post that didn't make sense. Also they help me word something so it gets the message across in a non confrontational way. Sorting through my hoards are a challenging in themselves. i did find my "its not mine box" recently and ive started filling it with things for other people. That includes birthday pressies once wrapped. Alexis

thanks for all the welcomes to this site.

im a fibromite, with dyslexia and aspergers that gives me 3 causes of sleep problems. i get into bed eventually after getting off the PC and attempt to overload my brain at night by doing a number of mind heavy tasks at once. Sometimes this works the other way though. even with my taurine x 2 and my 5htp x 2 i still have problems getting off the PC. Can he tell you why he doesn't sleep? Or why the computer is more important to him than sleeping? Which senses are hyperstimulated for him? Sounds like his body is in pain or hes not worn out enough. Are there any particular days in which he does manage to sleep? What happens before he goes to bed on the "im able to sleep tonight mum" days. Puberty was a nightmare for me with sleep. i had so many ideas buzzing around in my head. Also im a "must fix this now" type of person and that can include when its time to go to bed! Alexis

Welcome Euan Mods: ive just realised that calling a member "norfolk broad" status is likely to confuse. i was thinking all new members were from the broads.

Either they are taking the Michael or they must be autistic themselves. Its a plastic toy for goodness sake its not going to pick up metal! i was having fun with my playmobils recently doing role play for a job i might be applying for. i was asked what i would do in x situation so i acted it out and made the autistic out to be an arrogance and denial one who thought everything the befriender did was mean. Basically behaving like me in meltdown mode. ive got a camper van, 3 dolls houses (one in bits) and more than 400 playmobile people here. Most of them have names although i have to admit their more PC than they used to be. i wish i could understand these emoticons, at the moment they dont seem to put the name of the emotion when i run my mouse cursor over them. i would hate to use the embarrassed one when i was angry or the other way around. Mods: Can this topic be merged with my other introduction please? Ive just realised i posted 2 introductions by mistake. i would like "hi im new from nr bristol and any replies to stay though if possible.

Welcome Paul i know a few aspies in Norfolk which if you like i can put you in touch with each other? Alexis