trekster

It's a really eerie feeling when you discover a relatives death could have been prevented due to a disability you have. My gran died of dementia but I think it would have been harder for her if she had her mobility. We both identify as elhers danlos and grans hip operation going wrong resulted in her physically weakened state. I heard of a lad who used to pace when he was nervous. There was a traffic jam and he got out of the car walked onto the motorway and was instantly killed. He was aspergers.

Happy to help

At the back of the "adults guide to self advocacy for adults on the autism spectrum" booklet free to download from nas website theres a section written by Sue Mulcahy I think on being interviewed by the police. Steve Gerrard was my favourite player and as you're studying in Glasgow I'm guessing you're supporting a local team.

Please seek permission before you post a research topic by private messaging me first. Names of supervisor and ethical approval where relevant also need to be included.

Hi and welcome

Hi and welcome. I got my autism degree in 2010 by doing a case study on myself. I couldn't find anyone else to do the research about.

Hello Jess Welcome to the site, I am one of the moderators on here. http://www.eric.org.uk/Parents/info_bedwetting_wetting_parents...... That's a section from the national charity supporting families of people who bed-wet and soil the bed. Some of their strategies may not work for kids affected by Aspergers though. The bedwetting could be anxiety (8 is the age in which Asperger kids realise they are different from other children) or it could be that she has poor introspection (internal sensory awareness)..... some websites include http://hplusmagazine.com/2010/10/04/autism-introspective-brain-why-we-treat-some-people-differently-others/ http://www.medicaldaily.com/people-autism-withdraw-others-because-autistic-brain-generates-42-more-information-while-rest-268405 Sensory issues and autism/aspergers are common in our population. The inability to cope with change is due to extremely poor short term memory. If we can control our anxiety and process the change at our own pace we are more likely to accept that change. Hope this makes sense?

Welcome I was in the create centre earlier today. If you saw someone in a smart suit in a wheelchair with a pudsey bear that was me.

Welcome Psychogenic seizures are normally caused by a traumatic event in ones past and it's the brains way of not coping. My bodies way of not coping with my trauma was to develop complex ptsd.

Welcome to the asd forum I was diagnosed when I was 16 before then I was just a naughty kid and the laughing stock of the class. I think he doesn't understand the task which is why he does things his way. I was the same at school still am with university. Can he go in a different class for this particular subject that he's struggling with? Some kids wound me up in class so I pretended to have a crush on the teacher so I got moved class. The Scottish autism alliance might be able to advise further. I'm in bristol despite being half kircaldian.

If it helped then see if you can ask for their help again as a carer with needs.

There is nothing to stop you from contacting or attending carers groups. You can also request a social services assessment as a carer for your son.

Above is a copy from the pip form specimen I found online.

The form should make that clear. I think you have to put a reason why he can't sign for himself. 4 of 20 This area for automatic personalisation for customers name and post code. Signing the form for someone else You can fill in the form for someone else, but they must still sign themselves unless: l youve already been legally appointed to receive and deal with their benefits. That is, you are a benefit appointee, a deputy or hold a Power of Attorney, or l the person youre claiming for is too ill or disabled to claim for themselves and you want to be appointed to receive and deal with their benefits, or l youre claiming for them under the special rules for terminally ill people. Why are you signing the form for them? Please select one of the following. I am an appointee, appointed by the Department for Work and Pensions I hold Power of Attorney I am a Deputy I am a Tutor (under Scottish law) I am a Guardian (under Scottish law) I am a Curator bonis or Judicial factor (under Scottish law) I am a Corporate Acting Body or Corporate Appointee For example, an organisation appointed to act on behalf of the person the benefit is for such as a local authority or firm of solicitors. Please tell us the name of your organisation: Unless weve already seen this authority, well need to see it before we can process this claim. Please send us your power of attorney or any relevant documents with this claim. You can send the original document, or a certified copy. I am claiming for them under the special rules for terminally ill people The special rules for terminally ill people are for people with a progressive disease who are not expected to live for longer than six months. You may wish to tell the person the benefit is for, about this claim. This is because we will send letters about Personal Independence Payment to this person. I want to be appointed to act on their behalf Tick this box if l the person youre claiming for is too ill or disabled to claim for themselves and you want to be appointed to handle their benefit affairs, or l youre in the process of becoming a legally appointed representative. Well contact you about this. Are you signing the form for someone else? Yes No Go to page 6. Continue below. Specimen only not for use

None of those links I gave have anything to do with Social Services. http://www.edinburghtherapy.co.uk/counselling help for Asperger adults. There could be other organisations as well do an online search.

http://www.disabilityrightsuk.org/benefits-hospital "if you claim PIP whilst in hospital it cannot be paid until after you leave hospital....... this rule does not apply if you you were under 18 when you entered"

There's a number of different angles you could try to get help. My family got help for me in the end because my Gran applied for help as my carer. I've just done an online search and found bipolar uk support groups unfortunately none in Huddesfield itself, nearest would be West Leeds. https://www.bipolaruk.org/find-a-support-group Helpline for those affected by bipolar. https://www.bipolaruk.org/support-line Story about a son who spends all day watching you tube videos (I appreciate this is about a child but the same principles apply). https://www.theguardian.com/lifeandstyle/2015/may/08/son-autistic-wont-do-anything-but-watch-youtube Organisation that helps carers in your area. http://www.carerstrustmidyorkshire.org.uk/carerstrust-services/ Hope these links help.

Hi Paula He's retreating into his routines to try and help himself feel safe. He seems to be severely depressed could he have Bipolar as well? I cannot remember if you are the member that mentioned your son found plates hurt his hands? I am in constant severe pain due to my EDS/HMS and fibromyalgia but I cannot express this in ways people will understand or in some cases accept. Folk on the autism express pain in unconventional ways and that can include the types of behaviours your son is experiencing. https://spectrumnews.org/features/deep-dive/unseen-agony-dismantling-autisms-house-of-pain/ A great book by John Clemants that you might be able to get from your local library is called; "people with autism behaving badly moving on from social and behavioural challenges". The link below is to a search of books by John Clemants. http://tinyurl.com/zkhnqqp

http://scotland.shelter.org.uk/get_advice/local_services/edinburgh That's Shelters services for housing in Edinburgh. There's also ELAS who can help with self advocacy; http://edspace.org.uk/service/edinburgh-lothian-asperger-society-elas/

Unfortunately the situation has gotten this bad. http://scotland.shelter.org.uk/might be able to give you more specific advice regarding your housing. http://www.housingoptionsscotland.org.uk/is a website aimed at disabled people trying to find somewhere to live.

Happy to help and those links can help you with any stage of the process for PIP. Mine took about 6 months from when I had to order the form to when it arrived.

I've done some research online but unable to find anything concrete to show you. All I can think of is we notice things that other people notice and can put the clues together to reach a conclusion. This can be done in a scripted way so we can appear less affected by our autism than we actually are. We have adapted in a way and this is considered a positive coping strategy. Also family members are easier to 'read' socially than complete strangers. I am more likely to laugh at a joke that someone i know makes than someone i dont know even if they make the same joke. This is presuming it's my sense of humour as well. Hope I am making sense here? www.leics.gov.uk/autism_social_scripts-2.pdf might interest you.

Hello and good to see you on the forums again. Sorry to hear your sons eyesight has deteriorated so severely. Below is a link to the NAS section of their benefits section of the site. http://www.nas.org.uk/pip http://www.rnib.org.uk/information-everyday-living-benefits-and-concessions-benefits-people-working-age/personal That is the RNIB take on how PIP forms work. One question they will ask which might interest you when you apply "is your son severely autistic?" This is so they can give you more time to fill in the form if necessary. I tried to argue with them that when an autistic is having a meltdown they are severely autistic at that moment but it didn't work on them unfortunately.

Hello I was hoping this link might help you with the PIP process. It also contains information about how to appeal if you need to. http://www.nas.org.uk/pip

hello and welcome It is possible to have ADHD and Aspergers, it is also possible that dyslexia manifests itself as ADHD. If you are not okay then you reply "im not okay, kind of you to ask". Or "could be better". Are there any local autism or asperger groups in your area you could access? Let me know if you need help finding somewhere. You might want to look up "visual stress" as some folk find colour overlays can help them to read or concentrate on reading. For me I find reading upside down is easier than the right way up.