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trekster

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Posts posted by trekster

  1. Posted · Report reply

    I have to say that I find the term "Asperger's Sufferer" fairly inoffensive in the scale of things, and think it's one we probably have to come to terms with hearing. To me it implies that we have a condition which causes us difficulties, which is probably realistic.

     

    Exactly why do you find this term so hurtful personally, and what do you think are the wider implications of its use for autistic people generally?

     

    Im with you on this one Tally.

     

  2. Posted · Report reply

    Hello fellow members!

     

    I've just left school (June 2009) after finally completing my G.C.S.E exams after 11 years of torment.

     

    The Possibility of me having Aspergers Syndrome first showed its face back when I was 3, I wasn't developing enough in speach and walk.

     

    It wasn't untill I joined my Comprehensive School things started getting bad as I felt like a social reject for the first time, bullying and classmate tormet followed in the next 5 years.

     

    But I Wasnt Diagnosed untill 2007 (by a Proffesional). That gave me 3 years knowing I had Asperegers Syndrome.

     

    During the 3 years after the result I had G.C.S.E's to look forward to. But I did not recieve any help from my School watsoever (Class helper)

     

    Could of this affected my chances?

     

    i can understand where you are coming from here. Problems with speech were detected at age 3 (they knew it was overly formal). i didnt get diagnosed until i was 16 with aspergers. This was after my GCSEs.

     

    What would you like to happen as a result of this?

     

    Would you like to prevent other kids from going through a similar experience?

     

    Would you like to increase the awareness of autism/aspergers in your area?

     

    Have you considered joining an autistic action group?

     

    i ask because i joined the steering committee for my area to help educate others about autism/aspergers. Also so i can be asked about what me

    or my autistic friends might think of certain changes. i also do talks and sign petitions such as the "make schools make sense campaign".

     

    i hope you can do with your experiences what i have done with mine and try and educate others so they are not let down like you are.

     

    good luck

     

    Alexis

     

  5. Posted · Report reply

    i can distinctly remember that as i got older i felt punished, for being rude when i wasn't a few years ago, for having to wait longer for my meals (i had a circulation disorder that meant standing out in the cold excruciatingly painful). It just didnt make sense and i felt and sometimes do still feel as though the world has left me behind and im running to keep up!

     

    Alexis

  6. Posted · Report reply

    Hello, and welcome to the forum.

     

    DIagnosis is a difficult time. Did you suspect Asperger's for a while before your diagnosis, or has it come as a surprise?

     

    I had already suspected I had AS and my diagnosis came as a relief, but I also felt quite sad about having my difficulties confirmed - and also seeing written reports detailing difficulties I hadn't previously realised I had. I found that I did get used to it, though my view on things still changes and develops two years after diagnosis, which I think is part of the process of coming to terms with it

     

    Thats my take on my diagnosis, NAS did a report a while ago asking if autism "was a label or a signpost". To me it is a signpost to recognise my particular take on the world.

    It sounds like you are also suffering with anxiety/paranoia/OCD. These things are often much more disabling than the Asperger's. Hopefully your diagnosis will be key to finding appropriate treatments for these mental health problems.

     

    Personally i find the dyslexia harder to deal with than the mental health side of the Aspergers, since it relates to my misreading things and disorganisation.

     

    Alexis

  8. Posted · Report reply

    interesting that you've posted that. one of our kids (NT but we suspect something is up, not ASD though) does this. today we pointed out some birds sitting on the roof of the house and she said 'there are farms on the roof' and didn't appear to notice she'd used the wrong word. at another point she tried to talk about the birds and it took over a minutes pause mid-sentence before she found the word birds to say.

     

    Sounds like dyslexia to me, but even since this interesting topic has started (love a mystery) im not so sure.

    she makes up names for things (she got some plastic panpipes with a magazine and despite being told what they were called multiple times could only call them tuna) and seems incapable of saying certain words correctly. she got very excited today because there was a flamingo on her arm bands... but she can only say 'mingo' no matter how many times we correct her. she also doesn't understand certain words at all. you can't use the word why cos she doesn't know what you're saying, she just says 'i did it' over and over if you ask her why did you do it, and can't ask 'can you come and do X' she can only say 'you can do X if you like'. think i'm going to ask for her to be referred to the speech therapist because writing it all out here it seems like an awful lot.

     

    i was looking at a website speechdisorder.co.uk the other day and was sure i saw one listed as what you described, but when i went back to look i couldn't find it. it still has a lot of information on it that seems helpful

     

    Good idea to ask about the speech and language therapist route. Hard to say what is autism and what is something else, which could be the possible reason why many other neurodiversities go unnoticed :crying: Ive got friends who cannot get autism diagnosed since "it doesn't come with ADHD or dyslexia or dyspraxia as well". Good news is that the diagnostic criterion for autism is being attempted a rewrite.

     

    Alexis

  9. Posted · Report reply

    Hello

     

    I had speech delay which was treated with 6 months intensive speech therapy at the time (early 1980s). After those 6 months apart from being recorded that "her behaviour is slightly formal and literal", I was discharged from the service with no further referral for ASD. Long story but i asked to see my medical notes and then got a shock!

     

    I get things muddled up as well and have problems finding the right words for things. I said to a friend of mine "password" instead of "activation code" for example. I am nearly 30 years old.

     

    I don't wish to upset or confuse you with this post, it's just got me wondering if my problem is "more than dyslexia"? Pronoun reversal is common in dyslexia.

     

    According to Tony Atwoods "the complete guide to asperger syndrome" (im not presuming your son is Asperger) "the diagnostic boundaries between asperger syndrome and specific language disorder are not clear cut".

     

    As for your suspicions that "delayed language" is being a late talker and not necessarily permanent, yes that is correct. However each child can vary and I went from age 2 (speaking occasional words) to age 2.5 (speaking in complete sentences) with speech therapy pre Asperger diagnosis.

     

    Disorder can be permanent, it depends on the disorder and the child. i guess you are attempting to find out what disorder your kid has/had? have you tried asking your GP for further explanation?

     

    Alexis (who now cant shut up lol)

  10. Posted · Edited by trekster · Report reply

    Hello

     

    Welcome to the world of Asperger syndrome, I guess you are thinking "ok so what next?" Your fear of not being accepted

    will hopefully ease as it was something i experienced after many years of bullying.

     

    "Congratulations you have Asperger syndrome" you are not mad, bad or defective but you have a different

    way of thinking that you share with other people.

     

    What do you like about yourself?

     

    With me i like my detailed orientated abilities in stamp collecting and star trek. Also my ability to empathise with

    other autistics and folk who've been in similar situations to me.

     

    What do other people like about you?

     

    My sense of humour and my cross stitch embroidery. If they want an honest answer they can ask me!

     

    useful resources (moderators have my permission to put these in a separate file if they feel the need to)

     

    Heres are some things ive found help me with everyday asperger life. i hope they can help you as well.

     

    "what is asperger syndrome and how will it affect me?" National autistic society (NAS publications)

    That is an excellent to start with book as it's aimed at people like you who have just found out about Asperger syndrome.

     

    "Information shortcuts for people with ASD", http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=119 (NAS website).

     

    Attending the local social groups (ask your regional officer for more details)

    One way of meeting other asperger folk another way is asking the NAS for a befriender but i hear thats got a waiting list.

     

    Asking questions on safe forums such as this one (only been here a few weeks and feel at home in some areas already).

     

    Meeting other asperger folk, my longest friendship with an asperger is 14 years and counting (we met in college).

     

    Joining the NAS for £10 (more if a parent or carer without ASD joins).

     

    Applying for DLA even if you think you wont get it as its not dependant on income.

     

    Subscribe to Asperger United, the newspaper for and by autistics.

     

    Try joining groups related to your interests.

     

    Alexis

  13. Posted · Report reply

    Hello

     

    To begin with your kid is likely to refuse any alternatives put in from of them. As for the testing the only real test is trying the diet for a year.

    You cannot tell if your negative is a false negative or a real negative.

     

    ive done no tests at all not one, ive just read the literature and if i think it could help i will do something.

     

    Alexis

  19. Posted · Report reply

    Hello

     

    i often record the program "take it or leave it" on my Sky + box. Problem is it has a weird fault with this program only.

     

    When it gets to the adds sometimes if i skip them with the fast forward button it goes back to the beginning of the program!

     

    Does anyone else have this problem on Virgin 1 or Challenge TV (not on challenge atm so im gonna check when it does come back to see if the fault is there as well)

     

    Alexis

  20. Posted · Report reply

    Have you tried GABA or taurine or 5htp? All are OTC remedies from a HFS.

     

    Taurine helps me sleep but doesnt have an anti depressant effect

    Licorice root extract helps with evening related anxiety

    GABA i havent tried but it can help with anxiety type depression

    5htp helps with sleep and depression.

     

    HTH

     

    Alexis

  23. Posted · Report reply

    Risperidone is classified as an antipsychotic, but is used for many other conditions including depression, bipolarism and anxiety. It can have side effects as well, and many people find the side effects outweight the benefits.

     

    It can be used for adults as well as children.

     

    i happen to be one of those people, nearly lost my mind on it.

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