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trekster

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Posts posted by trekster


  1. Hi and welcome to the forum. I'm in my late 30s and struggling to get some post diagnostic support because they can't find my diagnosis. Been fighting the local Asd service for over three years now and it's getting ridiculous. 

    You tried seeing if theres a peer support group in your area? I down Bristol way so unsure what there is in your area. 


  2. On 1/6/2018 at 11:34 PM, MiddleEarthNet said:

    Hi, so it has been months since I last posted on here.  I figured this thread was the most appropriate to post again.

    The reason for my absence is because I needed the time to figure out who I was.  Last time I was on here, I was questioning my gender and the whole thing was tearing me apart.

    I have come to realise, I am transgender, ftm.  My support workers have been brilliant and have taken me clothes shopping.  But my parents (who barely accepted my autism and ADHD have taken it badly.

    Anyway, I’m back, now that I’m more settled and beginning to live as male.

    I am really pleased that this thread has helped you to realise who you are. i wish you luck in your transition, feel free to ask any questions you have about transitioning on here or via Pm to me.

    Recently i have been watching transformation street which although features mostly male to female patients has one female to male patient attending. The series is on channel 4 at 9pm on thursdays. Last monday the bbc 1 drama doctors featured a female to male trans character as well as a one off episode, it was very well written and portrayed.


  3. hello all

    I had a tough time at school, got 7 gcses B-C which im proud of and then took 7 years to get my A levels, another 7 to get my undergraduate degree and another 7 to get my postgraduate degree. i did other things though during my time at a university that didn't want me at first, disabled student of the year was one award, runner up social entrepreneur of the year was another and my graduation at my 3rd university last month. ive also set up my own support network for adults affected by autism and similar disabilities. We meet in a public place for cafe, cinema and pub groups and have just had out 7th Xmas meal. We set up a second group last April and already have 10 regular members. My volunteer work is enough for me to contribute to society, i do occasionally look for paid work, but struggle to get an interview and fill in forms.


  4. First of all autstics are not selfie or rude (those are negative stereotypes about autism) and yes he does miss social cues and signals. The situation with his mum sounds like a typical example. unless he dates a girl into those sorts of things he is going to be stuck, but teaching him it's not appropriate is going to be difficult unless you get the mum on side. Are you in the US? It's just the services we know about are UK only based.


  5. Hello

    Im one of the volunteer moderators on here and am also autistic. For me eating lots of certain foods were actually making me worse. Gluten and all animal dairy was causing severe behavioural problems and stomach issues. Also self injury can be a way of redirecting physical pain, for me that was the case. Hope the assessment went well.


  6. 4 hours ago, Ivan McIn said:

    Asperger's can be utterly disabling, far more than some people think, and the only "cure" is to learn to live with it.

    There are other things we can do to make life easier for ourselves like finding autistic friendly spaces, going off gluten and dairy. There are some folk who believe chelation and other treatments can help their or their childs autism.


  7. On 09/06/2017 at 7:26 PM, ProudAutie said:

    hi alexa1994,i will help you in any way i can and its great to see a family member actively seeking support for their niece,the internet is great in that aspect.

    i hope i do not offend you but aspergers or any other form of autism are not categorised as a disease as you are born with it and it is a different neurotype as opposed to something that develops and gets worse progressively, aspergers syndrome is also known as high functioning autism and ASD is now moving towards being called ASC [autism spectrum condition] gradually as 'condition' better describes us than a medical disorder.

    i recommend reading the book 'neurotribes' which gives a healthy outlook on the spectrum,as opposed to seeing us as dead weights on society.

    I'm going to respectfully disagree with you that condition is a better description to describe autism. I find it is likely to move services away from the fact that some of us still struggle to get the help we need. To dismiss autism as a condition like blue eyes is I fear is just denting the fact that autism can be a disability. Disabled by society is what I mean rather than us being defective. 

    Haven't read neurotribes yet. I do run a neuro diverse support group in my spare time. 


  8. I've found some of the books aimed at partners of autistic/asperger folk to be quite offensive and downplaying. One of them was written by someone who invented 'cassandra syndrome' to describe non autistic partners who had developed autistic like behaviours to cope with their partners. 


  9. On 23/08/2017 at 5:55 PM, eranur said:

    trekster, do you mean "parent of autistic child" or "autistic parent"?

    I don't mind, I just need a parent whose experienced in helping their autistic child navigate the education or other systems. I remember what school was like but I don't know how the special education system ieps etc works. 


  10. On 6/22/2017 at 9:21 AM, Deepthought said:

    Hi Ferret,

    The legal and general situation was resolved with an edit job.

    Apologies for any inconvenience.

     

    Hi Trekster,

    or anyone else that knows,

    Is there an edit function on this website system at all, or is it only achievable by asking a moderator?

    Just as a question though.

    i dont understand your question, edit function for what? There is a thread about the new look website which would be the best place to ask.


  11. Hello and welcome

    One book ive found useful is 'multicoloured mayhem' by jacqui jackson, it's about a mother of a number of different neurodiverse children. I hope you find the support you need here. Hoping to get a parent to help moderate the forum soon.

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