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Ok, that's a good idea! I will look into getting some probiotics and some good youghurts. I tried some "tough love" today, I made him sit on the tiolet twice. He was very, very distressed, he kept pleading and crying: "it hurts, it hurts". I cannot imagine how awful I'd feel it it turned out there was some physical reason why he has pain all the time. Thanks everyone!

His anal opening appears healthy, it's the inside rectum that hurts.

Sorry I cannot make a full answer as I popped on here in a hurry, but the specialist still wants him to be on Movicol, he is on 4 a day. That's why his poo is runny. They want him to keep taking it to stop from getting impacted again. I let him to wear a nappy, because he holds his wee and poo when he tells me he has pain. When poo eventually comes out it needs to go somewhere - that's why nappy is there. If my son didn't wear it, runny poo would go into his pants,trousers and floor. He is the one who choses to put a nappy on, I don't ask him to do it, nor I do it myself. Why does he feel pain constantly? Sorry.. this is taking a toll on me, I am getting stressed out too much.

He's seing a bottom specialist, continence nurses visit us once in a while, but nobody has suggested a therapist. He keeps saying that he is in pain, it is impossible for him to push poo. He gets too distressed when I mention going to toilet, or even letting the poo out into the nappy. He keeps repeating: "it will be to painful, it's impossible" and he cries. He is too distressed and I really don't see an end to this problem.. I think there is a real reason for pain somehow, my son is not one to make things like this up. But nobody will examine him any further.

I apologise, all my posts are all scattereda round, so it's difficult for someone to get the full picture. My son has Aspergers, he hasn't got severe autism. He is very well mannered, well behaved and sounds intelligent when you just hold a short conversation with him. People who have come to evaluate him at school for funding purposes have concluded he is fine with a half day support. I think they got 17 hours a week, so some extra time was left somewhere, so decision was probably taken to make friday a full day, but for the rest only until 12 pm. My son is not constipated, the poo is like a smoothie. He has been on 6 movicols, now we are going to decrease to 4. He drinks ok, I would not say he gets dehydrated atv all, I have to dilute the stupid Movicol, so he can't feel the horrible taste so much. May I ask how you got home help? I have been in so much anguish about this situation,the social services were out to make anassesment, they said they my son will be able to receive some direct payments, but cannot tell me how much or when! I have tried to call and ask for a carers assesment, but they keep telling me they need to verify something and make mee fel as if I am wanting to get too much all for myself, or like it's not right to ask for it. Or maybe they cannot go ahead with it until they have a clear idea how much my son will be able to receive. I will call again next week!. Just few days ago there I met a man from the Buddy Scheme, he took some details about my son. Hopefully they can find someone! There are no support groups in my area, if there are it will take driving, which currently is impossible for us.

He could have severe gas pains they really do hurt so much you think someone has kicked you sometimes. Sorry, I didn't specify, his pain is usually only bottom, rectal kind. On occasion he will have abdominal pain, sometimes I rub his tummy and he does pass gas, but he has constant bottom pain.

Yes, I have started something like that, but I find I don't have much time to write those things down.. I do and will try (when I can) and especiallywhen things get really bad.

I want to know if it is humanly possible for a child to hold their own bowels so much, they are causing themselves serious pain and discomfort. Yes, I understand that this is possible if the bowel movement is solid, but what if the person in question has been and is on a medication that makes the bowel movement entirely liquid. The doctor and the continence services have decided that my son is holding things on on purpose and needs to gradually toilet trained (yes, by me of course!). I despair when I see my son in so much pain, he paces around the house like a woman in labour and cries out in pain. He tells me he is still in pain even after the poo comes out into the napppy. He was severly impacted but today's x-ray has shown that that now has cleared. Blood tests have shown no food sensitivities or allergies. Doctor has refused to do any more tests of any kind. Where do I go from here? My son actually is happy to eat healthily: apples, pineapples, carrot sticks.. So, no problems there..

Thank you everyone for your input, ideas and advice! I just wanted to get an idea whether I should bother aplying for higher rate DLA or should I not waste my time. If there is no improvement, I will do. Thank you again! We had an x-ray at the hopsital today and the impaction has cleared. They recommended that I keep my son on 4 Movicols, so I will be sending him back to school. This, unfortunately is not the end of our troubles, as I really cannot figure out what is still wrong with him. He was running around all evening in distress and in pain until he had a poo in the nappy, but still he was in pain after that, he kept pacing around and later jumping up in his bed whilst sitting with his legs crossed going "ow, ow, ow"., The doctors and continence people are convinced my son is holding things in on purpose and I am supposed to teach him to start to use the toilet again. But they have no idea how distressed he gets and how much in pain he is every day. They have told me there will be no tests of any other kind. Really, can a child hold his poo causing himsef so much pain? Or is there something WRONG with him inside and causing him pain and that is why he is afraid to have a poo?

My son is being looked after by continence services people and by a "children's bottom" specialist from the local hospital. He's been having problems with poo for a year now and for a year he has been unable to use the toilet saying it hurts. I begged the specialist to do some more examinations, so she agreed to an x-ray and some bloodwork. Blood came back fine, no sensitivities, no allregies and no increased white blood cells. X-ray showed a severe impaction. Over the Easter holidays we were supposed to drink 4, 6, 8, 10, 12, 12, 12,10, 8,6, 4 Movicols - do this for two weeks, but after two weeks they asked me to do this for one more week, then for one more. Then for the next following 4 weeks my son had 12 Movicols a day every day. Basically since 26thof March up to two weeks ago my son was on 10-12-8 doses a day. My son has been prescribed Docusol, I managed it for a few days mixed with caramel and yougurt, but now he won't take it anymore. I also give him Senna liquid. Now, I started sending him back to school, he is on 6 doses, but he is in a lot of pain and becauseof that he hardly and he looks sickly pale. No one even suggested he should be hospitalised. I have two other kids, one of them a toddler and no family, no one to help around.. I also have no means of getting around, only my husband drives. It's a nightmare, my husband works evenings so after school I am on my own with all three and my other two kids want to go out, but my Aspergers son cannot. Some days I feel I will lose my mind. My son is not on the high DLA, so I can't get lots of assistance. My son is in mainstreamschool, gets 1 to 1 assistance mornings only and on fridays the whole day. Thank you for the phone number, I'll give it a try!

Thank you! I will look into the information you gave me! Actually, I was hoping to get some sort of physical help from Crossroads, you know for someone tohelp to look after my son a little sometime..

Thank you for advice, son has been seen by GP and specialist at hospital, blood has been tested, he has no sensitivities or allergies. He has always had sheep droppings ever since he was a toddler no matter how many veg or fruit he had. I am aware there is some sort of testing done by University of Sunderland, but they test urine. Isn't blood test more accurate than urine test? My son has been on so much meds lately they cause him pain in the bottom literally, and the feacal constipation is causing him pain too. He can soil himself any minute, he doesn't want to walk, just lay on the sofa or sit to hold his bottom shut.. He goes to school till 12, then comes home, I medicate and it impares him for the rest of the day/evening. It's awful. We are going for another x-ray to see what has happened to the impaction after so much medication. They hoped to shift it in 2 weeks... knowing how much pain my son had been having for the last year I didn't believe it, well..I was right..

My son has pain from his impaction and drinking medication. I have a toddler and another son, in the evenings I am alone at home, but I cannot take my two other kids out to play, I am under house arrest with my son who won't go out because of aspergers+ pain form impaction and medication. I could do with someone helping me out at least for 30 mins each day while I take out my other two children. I have no friends ( sad, I know.. but I myself have social phobia) and no family. There is no one to help. I have been practically housebound myself for last two months, because I had to stay at home with my son, while he was having 12 movicols a day and lots of liquid poo into his nappy at random times of day. He won't use the toilet for poo and hasn't done so for a year. I wake up at 6 sometimes earlier, but its because of my 17 month old daughter. My son is fine in mornings, except for me needing to wash him, if he soils.

Hi, I have a son, 7, who has Aspergers and toiletting issues (goes in a nappy only). A year ago I was really, really struggling, and someone suggested I call Crossroads. Person on the other end wasn't exacly forthcoming with information, I asked to send me some information in mail, but never received anything. I had a lot of other things to deal with, so I let it be.. Well, I am desperately trying to find some help for my son now, he has been having difficult time with feacal impaction, it has not cleared after 2 months of intensive movicol treatment and he has been pretty much housebound for two months. I have 2 other children, I am alone in the evenings, have no friends, relatives or transport. I could do with a bit of assistance.. I called them up again, they promised to ring back, but did not.. I called them again, and you can clearly detect they are not too thrilled to be talking to you. I am in Cheshire BTW.. Why do you think this is? Have you dealt with Crossroads and what has been your experience?

What are the criteria? My son has Aspergers, but he has been battling with chronic constipation/ feacal impaction. I often have to sit by his bed till 10:30 at night, because he is afraid. Often, around 1:00 am he soils himself, we then get him up and get him cleaned. He won't do poo in the toilet and only goes in a nappy, this has been happening only for one year, he was toilet trained before this. He goes to mainstream school and gets 1 to 1 assistance 17 hours every week. He has missed a lot of school because of his toiletting problem, and currently goes only for half a day as all the medication for feacal impaction causes him a lot of pain, (well, and feacal impaction does as well). I called DLA, they said you can only receive higher rate if the person needs assistance all through the night. My husband and I, or only him, we stay up till about 1:30 and after that go to bed. I really do not get up to check on my son through the night, but often in the morning he will have a poo in his nappy. What do you think?