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liamsmum

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About liamsmum

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    Norfolk Broads
  1. Thanks for all the advice people - it has been very interesting !!! I am still awaiting the letter detailing why they turned me down for DLA, and I will post on here when I get it. I'm sure it will make us all laugh !!! I even rang them yesterday to ask where it was, as I only have 1 month to appeal - and guess what, no-one knew anything about my request or when it would be dealt with !!!! Typical !! Thanks
  2. I hope it goes well for you Vicki, please let us know how you get on !!! Hello Penny - I'm glad you managed to get DLA for your son, at least someone has got it !!! When you say all AS children will get DLA as they are autistic, that is exactly what I thought. However you will discover if you read the whole of this thread that infact this is not the case. Far from it !!!! I have now been rejected twice (even after an appeal) even though Liam has a formal diagnosis of AS, has an SEN Statement, and is in a Special School !!!!! What else id needed to prove he is AS and is basically disabled. The "suits" at the appeal knew nothing about AS, didn't want to know or listen to me, and obviously didn't care. It is an absolutely disgaceful situation, and one I am appealing against again !!! The more I read and research this condition, the more I realise the authorities are not interested in helping us :-(
  3. Hello Vicki, Thanks for that reply, I 'm glad I'm not the only one who feels like that !!! I actually had a representative at the appeal - she was connected to the social services and backed up everything I said to the panel about Liam, but they obviously still didn't want to understand the seriousness of it all. I think they just think he is a naughty little boy !!!! If only they knew !! I would be interested in the welfare people you talk about - could you let me know what organisation this is, as I am really ready to try anyone who can actually understand and are willing to help me. What I really can't understand is that surely if there is a case where just one AS case is awarded DLA, then surely this is a precedent for all other cases - as they are basically saying that AS is a disabilty. For instance, if your child is diabetic, then DLA would auutomatically be given - you wouldn't have to prove over and over that they definitely are diabetic. What is the difference with AS - it is still a disability ??? Totally frustrated with the authorities on this one, as they are obviously clueless as to the condition and the situations that it causes. Thanks
  4. Yes they definitely try and waear us down, that is certain !! Every single issue I have addressed with my son has resulted in bad decisions, no help, people blaming other people, departments blaming other departments - even my MP has been no help whatsoever. This is the same with the education authority, social services, and the medical people involved. The whole thing has been a complete battle from the start - when I would have thought authorities would be trying to help. I think they are all so ignorant of AS that they just don't know what to do, and therefore pass it onto someone else !! Has anyone challenged the appeal ruling for Disability benefit - I have requested the reasons for the rejection, and they should be interesting to read !! I think there is then another procedure to appeal the decision. Anyone gone this route ?? Many thanks people !
  5. Thanks very much everyone - that information is very interesting indeed !! As has already been said, it looks like it is potluck whether you receive help or not.........which is quite disgraceful really. All the authorities up here in Cleveland have been totally hopeless in this particular case, and are blatently incompetent when it comes to AS !! Any further experiences or info would be great :-) Thanks alot !!!
  6. Hello everyone, I'm new here, and have a 10 year old son (Liam) who was diagnosed with AS two years ago. After lots of discussion and arguments with the local education authority, Liam finally got accepted into a special local school last year, after being expelled from two mainstream schools. It seems to suit him much better than mainstream. However I applied for the Disability Allowance after getting the diagnosis - just to allow me to pay for some respite care, as the loacl authority have offered me nothing in this respect. I was initially refused this claim, and therefore went to an appeal where lots of completely un-informed people asked me lots of stupid and irrelevant questions. Unsurprisingly my application was again rejected. It is not really the Allowance money that is now the issue that is bugging me, it is more the complete lack of understanding by these so-called experts who are basically not recognising the fact that I have a disabled son. Has anyone else on here been down this route, and what are your experinces - I would love to hear about them, as I am very frustrated with the whole thing at present. Has anyone else claimed Disability Allownace for AS children ?? Thanks
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