jollypig

34 views not a single comment ! thanks for the suport !!!

my daughter left special school to go to a specialist college but that hasnt worked out for a variety of reasons, what are her options now ? She is 16 yrs old and has complex needss, we have a meeting tomorrow with the SEN 16+ manager but im at a loss to know where we go from here. The local college was deemed unsuitable.

Ive phoned but ive also spoken to the LEA 16+ person who has emailed school and told them she wants to be informed when its complete so her and i can go through it.

all conditons have been diagnosed, it turns out the incompetant head at school said it was complete when it wasnt ! i have now at least got their attention and its in the works but considering this was going to be done last november and she leaves school in july im so not impressed !

Thats what i thought , she needs fulltime support as well as the epilepsy she is autistic, dyspraxic and has reflux disease, she has short term memory issues and gets confused really easily yet all school have mentioned is the epilepsy! Her statment details epilepsy and dyspraxia but at that time she was going through the process at CAMHS although her statment doesnt include autism there i reference to her autistic traits and the fact she was going through the process.

its got to be fillled in describing a childs needs when they leave school to go to college, it follows on from a statment.

we have [after a lot of pushing] recieved a copy of my daughters 139a form as i understand it , it should contain all the relevant information about her issues , the only info it has is about her epilepsy theres nothing about the dyspraxia or autism ! Am i right in thinking this should have been included

She is almost 16 and wants to go to residential college although i suspect i will have a fight on my hands with the LEA.

thanks for the reply thats what i thought

My dd attends a special school since the statment was put in place she has been diagnosed with autism school are failing big time although they dont seem to think so. she plans to leave school in July, is it worth me going through the process to have suitable autism provision put into her statment ? Her annual review is on Monday

i believe sally Bercow has an autistic son so maybe the directness etc is due to dealing with it day in and day out, im not autistic but i find myself more and more probably sounding like i could be just because i havent got the time/patience/inclination to deal with some people.

well the appointment went as expected but they are referring her to a specialist team but they do think she is depressed and did suggest medication maybe the way to go . blood tests via the pediatrician have shown she is lacking in vitamin D and iron , im hoping a while on supplement may help lift her mood without the need for anti depressants.

thanks for the replies- she does have a lot to deal with as well as the autism she has uncontrolled epilepsy and dyspraxia she is also struggling with acid reflux she is on an assortment of 8 tablets twice a day and add the stress of school issues i think she close to breaking point. i just hope they have something helpful at offer cos i dont know where to turn next.

My daughter has a camhs appointment tomorrow as she is threatening to harm [kill] herself when she is in a rage, she was dx as autistic in late 2010 but since then there has been no input from them it was a case of diagnose then get on with it. what kind of help are we likely to receive ? the man i spoke to initially was less than helpful told me to hide the knives and paracetamol !!! gee hadnt thought of that !

we have a slightly different situation my daughter is 15 and at special school she wants to leave next year and go to a residential college an hour away. we go to see it in November and if she likes it i will start the process but i have to day im absolutely dreading her going.

We have found the Linkage Trust college that she is very keen on. ive arranged a visit in a few weeks and have spoken to the connexions adviser. its a residential placement so although she is really excited im not lol

my daughter announced last night that she wants to leave school after this year , up until now she has wanted to stay until shes 19. she has complex issues asd/dyspraxia and uncontrolled epilepsy does anyone know of any special colleges ive found the linkage one near cleethorpoes/skegness but im just in a spin as i thought we had a few years to sort out her post education path.

im planning to take Hannah to the st Anne's one also ,see you there !

thanks for posting that hannah loves swimming so im going to take her to as many of the sessions as i can, although hannah said she loved the scope event she is refusing to go back ?? no particular reason as to why.

when my dd was in nursery she refused to use the smaller childrens toilets so they allowed her to use the staff loo it solved her problems.

hi all , thanks for the replies as far as i know its just the sponge she has eaten, i don't tend to get mad at her because it doesn't do any good, i will buy flannels from now on i don't want to give her sweets as she is epileptic and is having a lot of seizures at the moment. she is under a lot of stress at the moment so maybe thats got a lot to do with it hopefully it wont happen again. she is just so sensible usually that this has thrown me a bit.

My soon to be 15 yr old is generally sensible but Ive just found out she is eating bits of the bath sponge !! when we realized what was going on an confronted her on it her response is "i didn't know i couldn't eat it " . obviously we have told her to only put food /drink in her mouth but has anyone come across this before ? at times its like having a baby again .

i found it interesting and can relate to elements in most of the children filmed but the bit that got me was the twins mother saying she gets no enjoyment out of them, i found that really hard to understand .

well we have had a break through , scope [funded by aiming higher]do a youth group on Saturdays 1-4pm , we went along today and hannah loved it .

thanks for the replies , i guess im going to just have to keep looking !