LisaKaz75
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Posts posted by LisaKaz75
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My son is 6.5 and exactly the same. We are under the continence service and she tells us that this is a very common problem
Often Leo only goes for a wee first thing in the morning then perhaps once or twice in the evening, once he is home. He has never used the toilet at school or out and about and only recently at his grandparents
They never seem concerned about his lack of fluid, though try at regular intervals. I queried about health and she said if he had an infection he and us would know about it
One thing that was suggested to us was to get a disabled toilet key. Think they are called Radar keys. Then your child can use a toilet on his own with no unexpected flushing or hand dryer noises.
LisaKaz
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Never had any direct dealings they have never responded to any emails. They seem to signpost a lot
They are opening a free autism school in my area, but will have to see how that all goes next year!
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oh yes!
I can so empathise with this. Our DS said nothing at 3 and at nearly 6 he never shuts up. Not only that he talks very loudly. We have a volume chart and we show him it to bring him down in volume but its lasts for 20 seconds then its shouting again
It never stops, my ears are ringing!!
He can parrot whole books and scenes from TV programmes word perfect - I know some episodes of Peppa Pig and Ben and Holly of by heart
No idea what the solution is
LisaKaz
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I got so far and then the 2nd video clip would not play
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yes he is making progress in SALT. He is now forming sounds properly and she has moved on to some topic work that helps him with concepts
So this term on, next to, behind, in, in front of etc...
He is tested each time she is back in and a new area is then set
I have to say this seems to work really well as he is starting to use these terms in sentences and they even make sense! lol
LisaKaz
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Meeting went well
School are supporting that he needs the 32.5 hrs (he has this now) and hope the LEA will agree. If not they will be arguing it with us
If he does not get funding for it, he will have it anyway
Relief!
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thanks everyone!
Feel a bit more relaxed now - its just our first one
Sally, Leo gets speech therapy from SALT once every half term and she leaves activities and tasks for his one to one to do and she does them 3 times a week. This is all specified in statement
He has no other therapy in school
Lisa
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Thanks Sally not seen any reports, though verbally was told that his current teacher has recommended full hours
Yes he is statemented and it says 32.5 hours additional support though one to one, to work in small groups with aid of one to one to help with social interaction
The school I have to say are fab. A child that in Sept had no interactions with peers, could not hold a pen or read, now has a small group of friends is writing and reading at the recommended level (age 5 to 6)
I could not fault anything that they do. They are immensely inclusive and I have a communication book everyday telling me what he has done, who he has played with and any achievements he has had so we can talk to him about this at home
Just the hours thing that worries me.
LisaKaz
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Its his review today! Am dreading it
Leo is currently reception going up to year 1 and as yet no transition in place. We have annual review this afternoon, so hoping for some answers
My main concern is that there is a SEN funding shortfall at the school this year as it is a high attaining school with a good reputation for SEN fo higher than average number of SEN pupils - hence lack of money
They are applying for the top up funding but not heard if that been successful
Leo currently gets 32.5 hours one to one and he needs it. If its cut not sure how he can cope in mainstream, he needs the support more at unstructured times such as break and between activities, than he does in the classroom
I am led to beleive they cant just cut hours due to funding there has to be a good reason such as improvement etc.. but I am not convinced this will happen
Can I refuse to sign if I do not agree with any changes?
Am so hoping that they just agree that he needs his current level of support to continue
LisaKaz
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Yes Leo when he was younger repeated words again and again and again.
At 5 he now repeats whole sections of books or a tv programme over and over. it can get very tiring!
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my son was diagnosed at 3 with very few words, some made up words and grunting and pointing was his main communication
He is now 5 and in mainstream school with one to one provision. I wont lie he is behind his peers, but he is speaking and learning new words daily. He knows all his letters and is reading and starting to write. i did not see this even 12 months ago, so a massive change for him!!
So there are no guarantees, but with early diagnosis there is certainly a good chance of big change
LisaKaz
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Leo had this problem he went from very loose stools to being very constipated
We used to give various treatments that seemed to make us lurch even worse from one scenario to another
It is worth seeing a paediatrician and also maybe a dietician as they may be able to suggest small changes that can help
LisaKaz
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Sa Skimrande! They are not dumbed down, they are the normal films. They are really good for perhaps people who struggle in a usual cinema setting. in my case my son would be bored by the trailers and may annoy others talking or if he gets excited about something in the film
Cineworld and Odeons hold monthly autism friendly screenings
The key changes are:-
- The lights will be on low
- The volume will be turned down
- There will be no trailers at the beginning of the film
- You'll be able to take your own food and drinks
- You'll be able to move around the cinema if you like
I think your comment of dumbed down is not very understanding, you should know that autism affects people differently
- The lights will be on low
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I have not commented on all the changes and issues recently, as dont feel its appropriate
But I think its wonderful how the forum had pulled together and its lovely to see some new moderators especially ones who are regular visitors and contributors to the forum
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thanks everyone. There is no specific wording re the one to ones. Luckily the guy who has been moved away wishes to keep a relationship with Leo and also keep things moving forward. The head is not prepared to budge, but has agreed that the old one to one can have lunches and lunch times with Leo, to encourage those playground interactions, and also spend the last 20 minutes of the day reviewing what the new one to one has done and suggesting any changes
I know its not ideal! The new one to one seems very nice, but is inexperienced, so she is glad of the others support. Also both his morning and afternoon one to ones are now in his classroom all day, so can cover and oversee each other. I need to try and see positives in the situation as my anxiety will make Leo anxious and I really dont want that!
We have all agreed to review in 2 weeks to see how things are going.
thanks again for all your advice
Lisa
PS still awaiting input from Parent Partnership and the local autism team, but weather is making things difficult
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My 5 year old as autism and has a statement for 32.5 hours a week. He has a morning one to one and a different afternoon one to one. Since he started school in September he has thrived! He can hold a pen, started to read, but more importantly started to form relationships and interact with staff and other pupils in his class
Yesterday at 2.30 i received a phonecall from the head to inform me that as of Monday, Leo was having a new afternoon one to one. In short, the afternoon one to one started the day my son did, and half his contract was for Leo. Now the school has seen he has loads to offer and as the head said to me "he cant just help one child he has the skills to offer support to a group of children!"
So he has gone to another part of the school and I am mad and very upset. I can not explain to my son that this teacher is no longer his. Also although a new afternoon one to one has been appointed, he has to bond all over again
The main thing this guy did was encourage Leo to be in small groups, and we strongly believe this is why Leos interaction skills have come on so
Anyway - can the school just swap and change like that? It seems wrong after 1 term and 2 weeks to take him off my sons provision. Is there anything I can do? I spoke to Leos teacher and she is not happy either. It has been presented to all of us as a done deal
Any advice
Lisa
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thanks for all that I need to have a good read through!
His violence is not condoned at all and I firmly accept that his behaviour should not be accepted because he is autistic. I think we need to look more closely at the root cause - often it seems he just wants to be left alone to line up his trains etc.. and does not want tea/ bath etc... but again he has to learn that he cant always have his own way
Interestingly, I mentioned this to his paediatrician and we have been recommended to go on a Cygnet parenting course (developed by Barnados). This is a 7 week programme for parents of children on the spectrum to go though issues faced at home, rather than at school setting. it says that it helps to understand the condition better and it offers practical strategies that you can use at home, as well as giving the opportunities to meet others in a similar position to share experiences
I am sure it wont have all the answers, but its great that we were listened to at the last paed appointment and its certainly worth attending if only to meet other parents in similar positions
LisaKaz
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My 5 year old son started school in September
We have noticed big improvements and have been impressed with the school and everything that they have put into place for him. He is statemented for 32.5 hours (so full time, including lunch and break times). He has started to interact with others and for the first time is talking about other children in his class and things he has done with them!
However, when he gets home it all disintegrates into chaos. He does not want to talk, or interact and he gets very frustrated and aggressive. You ask him anything and he shouts "no" picks up the nearest thing and throws it at me very hard
I tend to try and leave him alone for a while as I think he is tired after school, but he just goes wild. Running around, screaming and shouting for no apparent reason
If i tell him no, or try and stop him wrecking the house, he storms up to me to kick or hit. Even if his dad disciplines him he just comes straight over to me to be violent
What can i do. Often he is in tears as he does it! it seems more frustration than anything, but I cant see any triggers and in the meantime I am getting black and blue!
He always says sorry (but I think its cos he knows its expected) then 5 mins later he does the same again
Any suggestions??
LisaKaz
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Take a look at this job which may be of interest - read it all through. Its for a fee paid member of the First Tier Tribunal (social entitlement chamber)
Being a carer or someone with a disability is enough of a qualification. Its 15 days (option for more) per year at £192 per day
http://jac.judiciary.gov.uk/selection-process/selection-exercises/forthcoming/1657.htm
There is a lot of information to get through! But if you read the 2 case studies it make interesting reading
The tribunal mainly deals with appeals against decisions about social security benefits, including DLA
Hope its OK to share this as it was posted on a local forum that I am a member of
LisaKaz
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Just went on a well known supermarket website
Cheapest loaf 47p, value tin of toms 31p, own brand cornflakes £1.29, cheapest butter 81p etc...
Could your daughter/ you perhaps do a little research? Come up with an example menu plan and costs for a week and present that to them?
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It does seem little tight to do a shop like that
A lot of basic staples such as bread, milk, butter etc... would easily eat into this amount. Plus if she needs to get cooking oil and any seasonings. When I was a student, you could do a lot with some mince, a tin of tomotoes and some herbs, but even tomatoes are not that cheap anymore!!
I think once all the staples were bought you could then perhaps survive on £15 a week, but even that would be tight, as you say fruit and veg are not cheap and a set to go up in price after this years weather
Lisa
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thanks darkshine!
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Dont know how to post a link to YouTube
But Buffalo Stance by Neneh Cherry!
Heard it on a top 10 on the radio the other day after not hearing it for years and still knew all the words
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this is partially why we got a diagnosis and statement for Leo so that he could be looked after in a mainstream setting
I was told a school could not discriminate under SEN and would take care if need be
LisaKaz
Wisdom Teeth
in General Discussion
Posted · Report reply
Jeanne
My little one is only 6 so not at the wisdom tooth stage yet. However, he has lost his first couple of teeth and aside from the panic of them actually coming out he has been agitated and upset more and he keeps pointing to the ones that are coming in
Also personally, at age 39 I have recently had 2 wisdom teeth start to come through a little more and one of these had food that had got stuck and caused infection - and it was the most painful thing I had ever had! I could not think of anything else at all apart from this constant pain, it was just throbbing all the time. I had some antibiotics and it made a big improvement within 48 hours. It could be worth getting the dentist to have another look, as its so difficult to keep them clean at this stage
LisaKaz