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smileyK

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Everything posted by smileyK

  1. I get so frustrated/confused when try work out how to 'tackle' way round on how to do 'own way' of independence! As so much involved! And don't like swallowing my pride and asking for help and support! ;( not easy and takes self-esteem battering and can be such draining,tiring task /challenge to face up to in the first place! I feel guilty ,bad I can't do these skills at 'my age' as feel like I'm lazy /de-motivated! - feel like I'm failure/let down XKLX
  2. She does sound like she got a lot 'issues' difficulties in the ASC area pointing in that direction I would assist to have her re-assessed as sounds like professionals at CAMHS at early age in her childhood has been clearly focusing their attention/efforts on ADHD yet concentration and attention -lack of can also be AS related too lot of what you have bullet pointed listed on here is 'classic main type ASC symptoms' what be known as AS (even though term diagnostically 'scrapped'!) Your daughter could have ADHD aswell as 'other linked /connected spectrum conditions' such as ASC or could just have ADHD traits along with ASC but ASC sounds likelyhood present in some form! You know daughter best so ask for 2nd opinion it's your daughter 'n' your right too! Has dyspraxia been looked into at all?! As she coming up to time in her life - puberty and hormones physcial/emotional changes where she'll need consistency and stability so 'answers' need to be there -settled and calm for her to accept and understand where needed I was officially assessed and diagnosed during my early teens too (14 years old!) Only discovered through mental health issues (depression/anxiety) so can personally relate to your daughter's situation! XKLX
  3. This is the personal "battle" I'm struggling to find the 'right balance' right now between being dependent on parents for their reassurance and guidance to reduce my stress /anxieties in life! yet via being independent young adult scares me surrounds me dread and fear!I panic when got to face the fear of independent head on can be 'depressing' fact of life! And not an exciting life adventure it is suppose to be! ;( XKLX
  4. I HAVE NOW informed them of "everything" being worried /scared about going back on medication (anti-D's) incase get back in same state of mind and situation I am being OPEN and honest feel can't do much more now!
  5. I can't seem to 'heal' or 'move on' constantly 'trapped' suffocated by "pressure" emotional state/issues put me under! I've tried all three options given self-help , sympathetic 'listening ear' (friend/s or auntie etc) and professional (CBT ,behaviour modification,family therapy sessions,grief counselling) had it all over years ... But still left what had before emotional deep complicated issues! Not cleared up still there ever present! ;(
  6. What in explaining what I mean by being 'clearer'?
  7. Does being in emotional rollercoaster - trapped and crushed count for anything if had physical pain it be medicated or sorted via surgery but with emotional turmoil /confusion plod on trying to do best to 'heal' get on?! Should I just pleased everyone shut up get on?! What do you think?! XKLX
  8. Feels I'm chasing 'thin air' right now ended up spending most day in streaming tears... All building again not good sign! That when starts going 'wrong' 'bad' for me! only thing got 'gut feeling' team short term basis onto 'other services' out there refer you too like already have been (NAS)! Feel like I'm doomed! I feel so 'trashy'it's all broken promises and false ones made which hurts and destroys me quite literally causes 'emotional pain/distress' people wonder how I reach the 'desperate stage' of -crisis point let me think - as crisis team at hosp dicharge me back onto adult MHT which again leave me 'hanging out there -searching aimlessly for what I don't know?! Not kept in the loop even though request beg ask none of it is effectively I'm only one person! Think forget about me ,my case I'm at bottom of pile somewhere collecting dust even though jog memory still 'pushed' a side! XKLX I saw well -being worker @ docs this morning she had same thought/idea as me agreeing that one avenues/direction to go down is try ADHD 'n' AS team and so two other professionals that agree that re-referring to ADHD 'n' AS team is best action forward to take positive step! As less generalised more specialised in managing AS on 'different level'! I've booked docs appointment today for next wednesday afternoon to ask doc to re-refer back to ADHD 'n' AS team, fingers crossed he agrees too hope so! As believe this plan of action as adult MHT are not doing 'anything'! Well -being worker said she would write notes on computer to doc about her agreeing way forward! XKLX
  9. Lady @ MIND - listening worker who got for 13 weeks until funding discovered etc! Told me today to seek any other avenues (support services) she mentioned local team (ADHD 'n' AS team) work within local hospital not main one! As still waiting for intial assessment report from adult MHT could be waiting for long time! Not surprised if ever gets done! Don't know what outcome was of that assessment rang to find out to find haven't been put together or wrote up waiting for information from social worker @ adult MHT! About right for them! And nurse I rang spoke to just listed autism specific websites (one not even local website one NAS website which generalised!) Not helpful useful feel just being palmed off once again left my own devices even after chasing them up 'on my own' so am grateful to have MIND now on my side chasing around to find out how much personal budget funding outstanding for me! So far haven't got back to MIND - so frustrating! Be waiting forever! It be MIND chasing up adult MHT not other way round they won't get in touch with MIND so another option that may not be closed to me due to lack of funding don't suit my needs etc is where been referred before to local hosp team but they referred me long term to NAS but now they 'case closed' on me I have been told I can go back reapply again to their team through GP so looks like going back to docs AGAIN! Surprised I'm FED UP! Drained -had enough! Even after 'crisis situation' feel isolated alone scared incase crops up again what next for me?! Hoping the referral back goes "smooth" fingers X we can but hope! It like every service pass the parcel/buck and the blame/excuses to elsewhere! Can't carry on in this state constantly, drags you down makes feel not worthy of any support out there like you don't need or deserve it what 'outside' don't seem 'get' this is 'our reality' all time -no break end of! So desperate to be listened to for once get needs met my emotional /mental health needs 'balanced' 'stable' isn't easy at all! So trying chase up make an effort for myself not even that works properly doors in my face constantly doesn't help at all! ;( am I right to seek this level of support /service?! Feel cheeky/rude for asking! But need someone something going mad crazy being spun in circles endlessdly constantly! Isn't doing me any 'good' hearing what the services 'want' me too! XKLX
  10. No he could still have dyspraxic traits doesn't have to affected all motor skills just some or one type can be affected by dyspraxia?! Different levels and how child are affected by skills lacking /missing or affected?! As common traits of having difficulties using knife and fork using scissors etc XKLX
  11. Have you heard of dyspraxia ? This can be seperate yet linked/connected condition with autism dyspraxia can affect your physical skills (hand eye co-ordination, etc) worth researching looking into further???! You can have both condition existing together isn't usual! XKLX
  12. He obviously isn't 'fine' as stated and is currently presenting difficulties and has 'issues' which need looking into - investigating on further basis /level! Professionals make me 'chuckle' like parents have 'nothing' better to do with their time /energy go round looking for 'issues' /difficulties! Really doesn't add up make proper sense! I would protest stamp feet be 'forceful' go with your personal opinion! And you know your son best his issues/difficulties ask for second opinion or to see different professional even! I would really 'dig' 'your heels in' will be worth the fight/battle my mum WON battle/fight with me! Remember you are your son's 'voice'! Don't lose hope or faith don't let me side track you or question you're own abilities /standards as his mum! I think comment/statement the teacher made is truly utterly appauling disgusting to make! I would be shocked traumatised and horrified! Don't let any of comments/statements/attitudes put you off from 'fighting' for what is 'rightfully' your son's needs /issues! You live with the 'true harsh reality' not 'them' -good luck! XKLX
  13. Time needs to hurry up and collect pace and speed then as so hard for us 'female' sit back watch other sex (males) to get diagnosed in front of line rather than 'us' blend into the background! Which means having more outstanding and underlying mental health issues surrounding 'us'! Not healthy well-being! ;( need to 'step up' and quick to 'catch up' in this 'fast pace race' XKLX
  14. SENCO may not be 'keen' just keep being persistant and keep pushing as my mum had to do 'same' for me over dyspraxia diagnosis as SENCO classed /branded my mum as OTT mum making up difficulties /issues alongside paedtrician! XKLX
  15. When I went out with support workers more interested in 'other things' like mobile phone texting if had to re-plan due to work commitments as bank staff so rang up unexpected -outta the blue had ring and cancel our NAS out reach sessions never 'happy' about me doing this as didn't fit round their routine not about me my routine /structure which made me so upset anxious even more so! Weren't helpful or consistent or they (two support workers) always phoning up sick not being able to make sessions! ;( * I do totally give up thought service suppose to be supported around our needs our routine! But learnt hard way! Feel crushed as 'no-one' wants to really know or care "if you're coping or ok" anymore! It so bad I had faith in NAS not no more! Feel if adult with AS you're wandering alone out in cold with no service to go however much struggling/battling especially if received a late diagnosis sets back even further! So hard get head around feel rejected no good enough - worthy of being 'supported' in 'right way'!
  16. I feel like all time no information is actually discovered buried underneath a heap mountain of disorganistation mess which leads to endless frustrations! I feel like spinning round with all services that suppose to be 'supporting me'! It just adds to the already difficult issues!
  17. Just feel like NAS are such "fake" service that don't do anything to 'support' highlight needs in the community feel like careless about "our lives" just feel can't match up what out there! Trying to live up too!I always have to find out chase up 'everything' all time like can't be bothered! XKLX
  18. @ trekster - I think my whole daily existence 'boils down' to not have 'enough' self belief /confidence! Which brings with it a sinking dread /anxiety within me I need 'someone' I trust around incase something goes 'completely wrong' and can help guide reassure me into a decision that is "right"!
  19. Thinking about this further - he may be oppositional act and behave this way due to anxiety /panic over certain situations??? So he tries to gain ultimate "control" over "every situation"? As he feels has no 'real control' over 'anything'!? XKLX
  20. How do you think parents would react over you trying to 'explain' describe AS? As they know your son have AS dx so surely aint going be 'totally shocked' be told you also have been dx'd too with it!? Or even write them letter?
  21. @ lynda lou - earlier dx deffo needs working on for females as such frustrating issue outstanding as many more boys shine through limelight rather than 'miss through' the system unless have mental health issues! So I agree on that statement! XKLX
  22. I so struggle with being 'too attached' and also dependent on my parents have struggled to 'break free' but am working steadily on this as my 'home work' I taking it step by step day by day! Still difficult to "swallow" walk away with own independent own life! Panic get anxious and scared over my 'missing' or 'lacking' skills which I seem to pressure myself over it all time trying to "break down" every part slowly gradually! Taking it easy! But overwhelming long road to travel can be so frustrating and overwhelming! XKLX
  23. I was going to mention ODD too as beahviours are severe and constant part of this everyday routine!!! So I would deffo look into -investigate ODD??? See if he matches any of description/explanation X KLX
  24. I have been in similiar situation to your daughter walking away from situations rather than face them head on just easier to swerve when anxiety puts barrier in the way setting yourself little steps challenges has helped me gain confidence -move forward in positive direction! More your daughter stays in her "comfort safe zone" she will become set in pattern not willing to shift or move! I did voluntary work as was in bedroom most of day it gave me structure,routine and motivation ambition to seek future - encouraged me reassured me made me feel more relaxed I now gained part-time job from doing volunteering @ nursery enjoy what I do and on an annual contract as lunch time assistant! Feel I'm 'accepted' in part of a community/team! Best decision I ever made!my job suits me and my capabilities /needs! XKLX
  25. smileyK

    Smoking

    Maybe your son needs fill his time/routine with 'other activities' hobbies rather than smoke which isn't going to benefit him in anyway! Maybe sit down and explore other possibilities of other activities to occupy his time and release stress /tension/pressure in 'better way'! XKLX
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