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snibbug

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About snibbug

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    Norfolk Broads
  1. We have some major issues with our little man. He's 8 years old, he has no official diagnosis yet as he was assessed 2 years ago and deemed too complex to diagnose. His paed has told us many times she is certain he is ASD and he has been medicated for ADHD alongside this. The problem being that he is in mainstream school right now, and although he is making academic progress the school are extremely worried about his social/emotional wellbeing right now. We are too, his thoughts are very dark, he self harms and he has been noticeably isolating himself from his peers. We have been having regular CAF meetings regarding his health as he has lot a large amount of weight causing alarm, he refuses to eat. The latest meeting was yesterday where it transpired the teachers had told him to stop swinging on his chair as he may fall off and hurt himself to which he simply replied "good". When asked why that would be good he said " I like pain". He also said his sisters often hit him and when he tells mummy and daddy he is ignored (clearly not the case). They are growing more concerned that he won't join in at play time, he sits on the periphery just lost in his own thoughts. His paed attended this CAF meeting and speaking to her after she said she wants to stop the dexamfetamine for his ADHD for a month to see if his appetite increases and his mood changes so she can establish if this is a mental health issue or anxiety or just a side effect. My issue is that he is on SA+ and has been since he started primary school only to see his mental health deteriorate and he hates going to school. Could he be considered for a statement based on his social/emotional wellbeing alone or does he have to be struggling academically too? He's working towards national expectation so he isn't drastically behind...he needs support to help him cope with school, and engage in activities and even help with his care needs because he gets so upset on PE days. He struggles to dress and undress and he told me there's only 1 teacher for PE and she's always too busy with the other kids so he gets no help. He also has some continence issues at times and needs a lot of prompting to drink/eat etc. I asked the head mistress what she thought about a statement a few months ago and she said there was no need. I strongly disagree and feel he needs 1-1 support for behavioural reasons...especially since he won't be medicated! If anyone has any words of wisdom on this matter I would be truly grateful because I am at the point where I might just withdraw him from school before he really hurts himself.
  2. We are moving house which means he will move school but it's the time he has to endure there until this happens His head master won't support a statement. He has already seen an ed psych several times as he has observations done in school once every 6 mths. He also wrote a cracking report on him out of school as well as in school which was part of the CASBAT which I have given the tribunal as evidence for his case. I know he needs help in school but I have resigned myself to the fact that at this school it just won't happen. It is the help I need with him out of school we need the DLA for, the damage to my property that I need to repair, and replacing his furniture and clothes (he often has "accidents" of both functions at night and sometimes in the day). Also he wants to do sports but as he doesn't cope in groups he needs private swimming lessons for instance, and I can't afford to provide them on my student budget, this is where he misses out and he could really benefit from these opportunities. I don't know if it is worth just waiting until he is at his new school to try for a statement, the head mistress of the new school seems more understanding and willing to give him a fresh start. For starters the class size is smaller and they have a few TA's in all day every day (his current school doesn't and his teacher says when they do have a TA he needs her attention a lot but obviously she is for the whole class so he doesn't get it).
  3. Hello, My son is in year 1 currently and he has had his CASBAT assessment which highlighted he has such complex difficulties that they want to wait and see how he matures as he has potential diagnoses of ASD, ADHD and Dyspraxia. We have applied for DLA for him and he is on SA+, but my issue is the school. They seem really unsupportive of my son and our application for DLA. The head teacher in particular refuses to admit that my son has any issues in school despite his teacher telling me that he struggles to get him to sit down and concentrate, he has anger issues and his social skills are poor. My little man has been bullied and the school were told about it but they keep saying that unless they see it happen or if my son speaks up they can't do anything. My little man is too scared to tell incase he gets told off and half the time he tells me it happened last week The DLA form was sent to my son's reception teacher, however, the head master filled it in and basically said he was shocked that the suspected diagnosis is ASD because he was unaware of this (a blatant lie!), he also put on the form that my son copes well in school and is settled (the biggest joke of all since his teacher said he isn't settled!). The result was inevitably the DLA refusal, and despite all the medical reports backing me up it has come to tribunal point. The CAB advised me to try and get his teacher to write a supportive letter, so today I approached him but he had to ask the head teacher if this was doable, but he refused basically saying that if they want additional evidence they have to send a request to the school where the head will fill it in. I am so upset and angry because I don't understand why the head won't support us but will quite happily let my son continue to be on SA+ and struggle on. I asked if my son has an IEP, apparently he does although I hadn't seen it, so I asked for a copy, they were hesitant but I insisted and finally got one. It is focused on his behaviour, and most of it hasn't had any follow up or outcomes put in it! I just don't know what to do, my son hates school and we have a real battle to get him to go there and he has a meltdown every day because of it but yet the school is claiming he is fine once he is there. Should I just give up on the DLA claim and accept that my life and his life will forever be a struggle? It just seems none of the support we need is forthcoming!
  4. snibbug

    Hello there

    Thanks for the fast reply, i am going to sound like a total newbie now...but how do i start the statementing process? x
  5. snibbug

    Hello there

    Hello there, I was looking for information and support as my son goes through the long process of CASBAT assessments. It is suspected he has aspergers syndrome with elements of ADHD. He is 4 years old. He has a social worker and is on the special educational needs register at school, he has had a few CAF meetings so that all of the professionals are singing off the same hymn sheet. Today i picked him up from school and was waiting and waiting, everyone's children were coming out but i couldn't see my son anywhere! One of his friends approached me with 2 fairly remarkable gashes on his face which my son had done...He informed me that he was in time out... His teacher approached me and asked for a 'quiet word' my stomach dropped..she informed me that he has been really difficult all day, he has been answering back at adults, refusing to do as he's asked, carrying on with his own thing regardless, but worst of all that he has been really violent all day..He's lashed out at a lot of children causing them injuries, and he lashed out at some of the adults too. He was in the corridor refusing to come out when i went in, and i had to pick him up and carry him out as the teacher just said 'he's all yours' and left us to it. I'm at a bit of a loss as to what to do now though, he's got his appointment with the educational psychologist on thursday, he's already seen speech and language...I have called his paediatrician and left a message for her to get in touch asap. The school are obviously not able to manage this behaviour as well as we had all hoped.
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