lee2010

I have requested a mandatory consideration apparently I need to send new information, of which I have none other than write a letter pointing out the statements. They said doesn't have to anyone who knows asd as its on how it effects you, but if u don't know and understand how could you know ? Is that just me I can't see how. She has lied on the report I am shocked I've heard of it but now I am suffering it. I've tried to look for similar cases but haven't found any recent ? Thanks Lee

Fuming finally received my award for pip i have lost standard mobility and lowered to standard care from high. The assessor basically lied on her assessment report said i was very comunicative, i was very aware but poor eye contact displayed good memory etc all rubbish. Nothing has changed from my first award but apparently because of this assessor my needs are different !!!. i received high care and standard mobility for only 3 years and they assessed me after 3. I am fed up of fighting .........

Me and my partner have decided to go down the route for assesement for my son and daughter 10 and 8 years old. Always feared going down the route but knowing what it like to live with without help when your younger and going into adulthood we both feel they need all the help they can get. I am diagnosed hfa my father was aspergers and my sister was aspergers she took her own life at 22. My father and sister knew they was autistic as do i but the school dont see it, as they are good at school mt daughter struggles but my son excells. Their is so many traits i see and have always known. I think it is going to be very hard to even get an assesement for them here in Hull as i did and my father did. Am i right to go down the route of getting them assessed ? considered for so many years every year it just seems to become more difficult for them both

Anyone filled in the new PIP forms ? I am finding really hard to describe my problems in the right way.

I am happy to give an update, i have been diagnosed as high functioning autistic after having gone through the disco test. It has took me many years to finally be diagnosed here in hull it is very difficult to get diagnosed especially as the mental heath team instantly indicate your not when you are intelligent !!. It has been two weeks since diagnosis and its hard to get my head around.

My girlfriend recently asked for her dla claim to be looked at again as she was advised she was entitled to higher rate than the lower one she was getting. She was also advised that if she asked them to do so she may lose her dla which as you stated seemed like a threat, she has lost all hr benefits due to asking them to look at it again even though she is clearly entitled to them as she has bipolar. Unfortunately this seems to be a pattern which is happening now anyone who is up for a review or asked for the claim to be looked at seems to lose their dla, we are now having to to take the matter further an have ben advised it can take upto a year and we are left financially struggling even though we have evidnce and is clear she entitled to it. I hope the same doesnt happen in your case but they are looking at all claims in my opinion they will try to get as many people off it as they can as they have mandate to get so many people off it, this leaves me fuming at the way we are all been treated.

thasnks i am contacting all places i can as the state of mental health team here in hull is poor to non exsistent. thanks again lee

I have been trying for the last few months to get a referal to dr michaels who can diagnose aspergers within hull, i have had to be referd to the the hull mental health team who have seen before regarding adhd and depression. However they are just messing me about they say i need a referal from clinician to clinician and this the only way, they have promised me i will see the head who is teh only one who can refer me but have failed to see him the last 2 times. They now say they need to review me over time and then they will consider it, however my girlfriend who has just had her dla stopped we requested the report as we was quite shocked learn this. We have received the report which states that i am well known to mental health team for adhd and aspergers of which i am obviously neither!!!, i am shocked that i have been named in my girlfriends report and as i was due to see the boss next month it is clerar they are not going to give me a referal. Is they any other avenue i can take as my father and sister are aspergers i believe very strongly i am and my gp has been very supportive however because of the above it very unlikely i will ever get the diagnose and help i need.

She is very lucky as the point scheme they have makes it near impossible which i disagree with it isnt setup for people with mental disabilities in my opinion, infact i believe it descriminates against mental disabilities altogether.

Unfortunately ESA is for physical disabilities any type of neurlogical/mental disabilities do not exsist as far as ESA is concerned however my sister who is aspergers does get ESA but they insist on her going to interviews perodically as she may outgrow her disabilities. Like most benefits you claim more times than not you will not get awarded first time in my opinion as the percentage of people will just give up and claim normal benefits, because of this i would advice that you always take the matter further always list everything no matter how small.

I would have to say i have always felt different and i have read on many occassions people with aspergers mentioning they feel like aliens on earth which i definetly always have, i am not as yet diagnosed as aspergers but myy siister and father are and have a very likely hood i am and i believe 100% i am. I cant say i feel much postivity about it infact it has been a pretty s*** life and i am not expecting to improve lol. Lee

I dont give much hope to people with physical disabilities never neurological/mental health problems, its not about a better life it is about money all of it no matter the consequences. I wasnt keen on labour but then i also new whichever goverment got in charge they would be changes but not as harsh as they proposing. This is going to cause more poverty not decrease it and they just using teh whole lazy society as a excuse which for the majority they will buy, all these changes have worried for sometime but always hoped that they would at least look those who cant or would need a lot help to work which has never been the case really but now none at all. Im so angry with the whole thing, this goverment should be allowed to get away with it.

Interesting as i feel the only way i could work is from home as it is the only place i feel comfortable and ease, im not sure what jobs you can actually do from home especially ones which would pay enough to live on lol

I show a great inerest in politics around welfare rights especially having unfortunately dealt with them a lot in the last few years, I ind the new proposals very frightening as it seems that they are going push a lot of people into poverty especially people with disabiities. I am looking to get a diagnosis of aspergers and have a mood disorder my girlfriend is bipolar so life is very difficult to cope with the thought of all these changes gives me great anxiety. I have struggled for years to cope with normal life and i dont cope with stress at all i hate been away from my family even for a short period of time. I just wondered what other peoples opinions was on the walfare reform ?? Thanks lee

I believe that the mood disorder is because the AS although only self diagnosed as yet lol, i agree it is part of me because of my experience of life i dont believe i was born with a mood disorder but i do believe i was born AS. Exactly we all are all different regardless or because of our disabilities ive no doubt we all find life difficult to divering degrees. The question that i always find people asking is what is normal, normal doesnt exsist does it because we are all different.