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LindaB

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Everything posted by LindaB

  1. My dd had a home tutor at home for 1 hour a day for 3 years. We had to be a bit flexible with the times and were told that a child has to be available between 9 and 4 as this was the time they were expected to be at school. She gradually started to have her lessons with the home tutor at school as it is our LEA policy that children should be reintergrated into school when at all possible. The tutor was always happy to come to the home if dd was not well enough to go into school. She has now got a statement and school have taken over the responsibility with full LSA support for her 1 hour a day but it is not really as effective as her home tutor was because she has had to drop english and maths because she can't manage to keep up with only attending one class a week for each subject. Once school was receiving extra funding for dd the home tution service wanted out even though school offered to pay for them to continue tutoring her in school for english and maths.
  2. When we first got our appointment at CAMHS we just saw a nurse practioner. I really did have to push it to see the pyschiatrist. It was at least a 6 month wait to see her (and that was with the paeditrician intervening because DD was depressed (she also suffers from chronic fatigue - long story). Once I managed to see the pyschiatrist she has been absolutely brilliant. We have had to fill in various assessment forms and DD has been observed by a psychologist and finally I had to attend what they call a 3Di assessment on my own which took about 8 hours in total (over 3 sessions). We now have a provisional diagnosis (of all the things we suspected plus a few other things) which she is at the moment fine tuning. Her only wish was that she had seen us much sooner as DD is now 14 and has had problems for so long that no one would take on board. If I had not been persistent at those initial interviews we would have been no better off. So keep at it.
  3. LindaB

    melatonin

    The consultant prescribed melatonin for my daughter no problem
  4. LindaB

    GF/CF

    My daughter is intolerant to cows milk and soya. I get Oatly oat drink plus which has added calcium. It does contain rapeseed oil. I have to order it from my local chemist. You can get the non-added calcium type from Sainsburys, Holland and Barret and Tesco. Unfortunately the one with the added calcium is ?1.69 a litre so it is expensive especially as my daughter gets through about 6 litres a week. Your GP should be able to give the calcium drops.
  5. DD has AS and IBS as well. She also has had Chronic Fatigue Syndrome/ME for the past 2 years.
  6. My daughter just seems to be intolerant to soya milk. I don't deliberately use soya flour or anything like that but I know it is an added ingredient in lots of foods but she seems to tolerate these OK.
  7. My daughter can tell if its Coke out of a bottle or a can. We went through phases of only liking it out of a bottle and then only out of a can. Thankfully she has gone right off the stuff now and only drinks fresh orange juice but it has to the the freshly squeezed stuff, no concentrates, and it has to be from Sainsburys. Don't you just love'em.
  8. Hello and welcome to the forum. My daughter has AS. She also has had a hard time at school being teased and all the other unpleasant things that sometimes happen at school. She is in year 10 at the moment and also gets very lonely. Perhaps you would like to chat to each other on MSN sometime?
  9. My dd had vomiting and colic from being a newborn. I was fobbed off, being told she would grow out of it. After numerous visits to health visitor\GP and not getting anywhere I put her on to soya milk at about 6 months old and it was like I had a different child. She can still not tolerate dairy products at the age of 14 and has recently become intolerant to soya which is a bit of a nightmare.
  10. LindaB

    Home tuition

    When dd was unable to attend school (actually because of chronic fatigue syndrome) I just had to get a letter from my GP and school arranged with the LEA to provide home tuition. We got a tutor within a week.
  11. Our first session with psych involved all of us. After that just my dd and myself went and I spoke with the psychiatrist while dd went off with the clinical psychologist. I had to fill in various questionnaires. After these 2 sessions the psych wanted to do a 3Di interview. This involved me spending about 7-8 hours over 3 sessions with the psychiatrist with her inputting the answers to a computer program. This produced a provisional report with scores for different conditions. The Psych now has to analysise this report to come up with the final diagnosis. The 3Di interview was very intense and thorough and the initial diagnosis was what we expected but did come up with some unexpected results as well as AS. The psychiastrist was very friendly and completely put me at ease and I must say that it was the first time that I didn't feel that I was being regarded as a neurotic mother because dd is an only child. She could not understand why it had taken so long for us to have been referred for a diagnosis (dd is 14). I told her that I had often raised my concerns but because dd does not have demanding behaviour problems and didn't cause teachers any problems my fears were always ignored. It has only been since dd has suffered from chronic fatigue syndrome for the past 2 years that the succession of medics she has seen have agreed that all was not well. I have found the whole assessment process quite tiring but thanks to the psychiatrist I came out the the interviews knowing I had been listened to.
  12. LindaB

    omega 3

    Most of the "high juice" squashes don't contain artificial sweetners.
  13. We have just had the forms to sign for the MMR booster for year 10 and year 11 as they are saying mumps is going around the district. I don't know if the MMR jab caused my daughter's Aspergers or her IBS but I am not prepared to take the risk.
  14. My daughter is currently undergoing assessment. It was the paediatrician who she is seeing about her chronic fatigue syndrome first mentioned aspergers, although I had my suspicions. She referred us to a psychiatrist for an assessment. This has also involved seeing the clinical psycologist. She has also seen the ed psycologist but this was in connection with her statement and not her assessment. The whole process has taken several months. By the way we had no trouble getting her statement even though we have yet to get an official diagnosis.
  15. Thanks for that. Sarah has been assessed by the clinical psychologist and the psychiatrist so hopefully this might be the final stage and we get some answers. I will go armed with all her school reports etc and hopefully I will be able to remember ages etc!
  16. Thanks for looking it up. She only want to interview me. I know it takes about 3 hours and we are doing the interview over 3 sessions. I guess I'll just have to take any information I have about Sarah's development. I know when they start asking me at what age she did such and such my mind goes blank. She's 14 now so her baby days were a long time ago!
  17. I am seeing my daughters psychiatrist that is assessing her for Aspergers on Thursday where she will be conducting a 3di interview. Has anybody any experience of this, if so what sort of information are they looking for? Any help would be much as appreciated as I would like to go equipped with the right information. Thanks
  18. LindaB

    Introductions!!

    Hi, I have been looking at this forum for several weeks and thought it about time I joined and introduced myself. I have a 14 year old daughter who has been diagnosed with dyspraxia and we are in the final stages of her being assessed with possible Aspergers. We have had a tough time in the last 3 years as she is also suffering from chronic fatigue syndrome. As she has been unable to attend school for more than 1 hour a day we have at least had some success in getting a statement for her and all the problems she has had in school with communications and socially have at last been addressed. So as bad as the chronic fatigue has been for her some good has come of it. Her school and home tutor have been very supportive and I feel we have been very lucky in this respect. I look forward to reading and posting on the forum.
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