kathyanne

omg..social services have declined help twice last year...however I will have to contact them again if i have too..thanks guys...im getting nowhere fast here!!ive done everything the DWP has asked..filled in and got every medical cert and letter they have requested..nothing...they still have paid him nothing! I have e-mailed His worker from MIND to see if she can help again....

I've done all I can ..appeal in..MIND Complaint in......letter to MP and DWP of complaint..letter to downing street..3 weeks in and still not a penny for him, no rent or even JSA....I'm totally disgusted with them..he cant work because he has the highest form of aspergers and has severe anxiety when in open spaces..the job centre and social services have refused to help him find a job he can cope with due to lack of resources....im at a loss:(

Thanks guys....yes, i have a letter from his consultant saying he cannot work at all as he has the higher traits asbergers.....i have contacted the MP, i am in touch with MIND also, they are trying but as yet, James hasnt had ANYTHING for 4 weeks..im so worried, he cant even pay his rent now i will seek legal action if this continues

Hi...i have done all that... i haven't had a reply off my MP, the minister, downing street, the council..the social security..nobody..they make me sick!

hi..i have just copied this post into this part of the forum just in case someone else reads it..thanks.. Hi..I need some help.. My son who is 23 has lost all his benefits...as I write this I have just sent an appeal form in for him... he hasn't been paid any benefits for 2 weeks , they have stopped his ESA and housing benefit...he has no money for food or rent, we have had to pay this but don't think I can for much longer...... I have rung the help line and they have said there's nothing I can do, they need his appeal pack before they give him anything back... My son has diagnosed High traits asbergers syndrome. I have a report 10 pages long from his clinical psychologist confirming this.... last year the benefits agency took his ESA away... just like this, we appealed, sent a report from his consultant and the decision was overturned..... that was in August 2012... they asked for him to return again for another appointment only 8 months later and did the same again...he saw a DWP doctor who stated in her report, that he could speak clearly, operate a dishwasher and had good eye contact so he was fit for work.....they have stopped it again...... I have been back to his clinical psychologist who was appalled and has written me an in-depth letter.... my question is..is this illegal to put my son through the appeals process so quickly after winning one only in August 2012?? who do I complain to? I have written to the local MP and London but have heard nothing.......what can I do? He is currently in a bad way and very stressed..his flat is is haven and I don't know what will happen if he losses it..... he has thretned to kill himself only last week..im distraught....please help...Kat.

They have all that information, i explain all that and they have three reports from his clinical phsychologist explaining this...what im asking is is there anyone I can go to higher up to complain about his despicable treatment from the DWP doctors?

Hi..I need some help.. My son who is 23 has lost all his benefits...as I write this I have just sent an appeal form in for him... he hasn't been paid any benefits for 2 weeks , they have stopped his ESA and housing benefit...he has no money for food or rent, we have had to pay this but don't think I can for much longer...... I have rung the help line and they have said there's nothing I can do, they need his appeal pack before they give him anything back... My son has diagnosed High traits asbergers syndrome. I have a report 10 pages long from his clinical psychologist confirming this.... last year the benefits agency took his ESA away... just like this, we appealed, sent a report from his consultant and the decision was overturned..... that was in August 2012... they asked for him to return again for another appointment only 8 months later and did the same again...he saw a DWP doctor who stated in her report, that he could speak clearly, operate a dishwasher and had good eye contact so he was fit for work.....they have stopped it again...... I have been back to his clinical psychologist who was appalled and has written me an in-depth letter.... my question is..is this illegal to put my son through the appeals process so quickly after winning one only in August 2012?? who do I complain to? I have written to the local MP and London but have heard nothing.......what can I do? He is currently in a bad way and very stressed..his flat is is haven and I don't know what will happen if he losses it..... he has thretned to kill himself only last week..im distraught....please help...Kat.

thank you guys any help would be appreciated, im hoping to try get some support now for him as no one wanted to know before diagnosis!! thanks again , kat:)

Hi... Just though Id share my joy with you all! After 2 years on the waiting list and at the age of 22 and many many times being told over the years by doctors that my son was just ignorant rude and no hope, my lovely 22 year old has been formally diagnosed as being on the spectrum. He goes back next week to find out how far along or whereabouts the spectrum he is.. does this make sense, they say probably somewhere in the middle?? He is so relived as are we... we almost felt like we were going mad, but painstakingly we kept on and on at our GP and then got another GP, and another, until we finally got someone to refer him on..... since that referal, james has come on leaps and bounds and is moving forward with life, we hope that his firm diagnosis will give him the help and support he needs to move on futher. all you mums and parents out there,..... plod on and no matter how long it takes , you will eventully find someone to listen and take you seriously. it took me 22 years, and i feel very angry with his school, college and other authorities who just fobbed us off and treated him badly, but we got there in the end..... one happy mum today !!!

hi there.. thanks so much for that, and i found the airport information really good... appreciate it .

Hi... Can anyone help/// we live abroad in NZ and my son who suffers from AS, is coming to visit us for the first time over here in december... hes flown before but only with us when he was younger, now hes an adult, he has communication difficulties and social issues like most with AS, does anyone know if airlines help asbies with airflights.. i.e getting to and from terminals etc... does anyone have any experience or are you an aspie that has flown alone and how did you cope?? i would really appreciate any feedback, kat.

Wow everyone... i did not expect all this fuss...I have just logged back on as been away, at the time I wrote it.. my emotions were high... basically.. he rents our flat and lives in there, there are 4 flats in the building, he was the only person to get questioned, the poiceman said that the woman above belived it was him who stole the mail/ Yes, he did dob his mate in for it! james also said the police were not sympathetic to him when he got anxious and he felt the officer was pointing the finger straight away before he had chance to say anything..... they didnt seem to know what AS was, and he felt hurt and stupid when asked if it made him steal.... i think there is a total lack of knowledge and compassion in this case and also a little predudice in there too... sorry if you dont agree L&P, but sadly the police this time have acted inapropriatly. Kat:)

Hi, i have just come on to have a rant as i know most of you will empathise with this. My son has asbergers syndrome./ He lives in our flat and has been doing really well lately. Basically, some mail went missing from the flat above so the lady who lives there knocked on my sons door and asked if he had seen it, he said no sorry he had not. This happened on his 22nd birthday. About an hour later, the police came to the door and started questioning him. James started getting anxious, so told the police he suffered from asbergers syndrome. The police went onto say........ ............. so , does asbergers syndrome make you steal mail ??............ .......... you can understand my horror and that of my poor son and my family family.... unbenown to james, his birthday cards with all his money in had been stolen too, we know who the culprit is.. unfortunatly it was someone who james let in and thought was a friend.We have been to the police and lodged a massive complaint. James anxiety levels have heightned and he is soo upset.. he is sick of being percived as strage, different and hates people taking him the wrong way.. hes a gentle lad, who keeps himself to himself and this is what he gets treated like.... just wanted to know your views on the situation.. thanks ... kat

Hi, My son is 21, im afraid that i too couldnt cope with the constant verbal abuse he gave me and his two brothers, and i moved my son into rented. for 2 years he tried to cope but just couldnt on his own,however he seems to have turned a corner recently...... we put more family support in place and visits... we also do his finances as he was just drawing his DLA and spending it all on drink... he just couldnt budget himself!!!now he dosnt have to worry about his bills , rent, and can just ring us up and ask us for a fiver here there and everywhere, hes a diferent kid..... he has his independance but support as well...we have managed to get him into college but know the only way of getting him there is for us all to take it in turns and drive him up....wee have tried the let him learn himself and learn to be independant in the past and it hasnt worked!!! we have to go in and remind him to shower, clean etc and ring him every day.... I do sympathise with you..life has been hell for us the last three years too.... everyones experiences with asbergers are different, some seem to cope well independantly, and others dont.... do what you know is the right thing for now.... kat:)

Hi Just thought id give you a quick reply.... my son has asbergers and is 21.... the worst part was when he was 15-16, probably due to hormones too... He seems to be melowing out now and being much more accepting of his asbergers, he also now trys to self help and is much more independant, so as your son gets older , things may get easier.Your message is a little confusing....its so hard to give an answer to your question. I guess, as parents we have to accept their asbergers and know that their behavior is a part of that, just being there, listening, and accepting their views( although these can sound irrational to us!) is so important. your son will thank you in the future for being there and at least trying to understand his world.Good luck.....life is always going to be a struggle, but we can make it easier by being a shoulder for them kat.