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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

mamabear

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About mamabear

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    UK Manchester
  • Interests
    how to survive living with violence and destruction
  1. What input can I expect from CAHMS/ClinPsych

    Our main contact at CAHMS is Naruto's clinical psychiatrist (paediatric) - she has taken the lead role and co-ordinated his assessments and diagnosis. Nothing is being 'done' about NAruto except that we have support and ideas and were recently using a medication to help him get control of his violent temper It sounds like you may be seeing the psychologist for family support / ideas / advice etc. Which can be really helpful - we've just started seeing one again (we had one preivous to Naruto's formal diagnosis - in our situation, that was the first initiative undertaken). As far as their contact with school goes.. I have been arranging multi-agency meetings at school (via the disabled children's social worker) which the psychiatrist is invited to and attends. Our most recent crisis at school was discussed at one of those meetings.. and the psychiatrist turned up. However, all she can really do though is feedback what is going on from her perspective, talk about Naruto's actual condition and relay information such as that he is doing well at home and his problems do not stem from there. Her job is not to advise school, she is a medical doctor working for us, to advise us, etc. There are other professionals who are supposed to do that side of things (ie advise school of strategies and how to communicate with your child, and so on) - you can call a meeting like this yourself, ask school to call one, or your social worker - or at a push talk to your CAHMS person. 1. Educational psychologist (independent from Local Education Authority (LEA)- their job is to advise school of ways to try to meet the needs of disabled kids, or kids who have ASDs or any other difficulties. 2. Representatives from specialist education units can come in and give them ideas from observing our kids. They are needed to prove the school is trying everything before they evict a kid. Eg from a challenging behaviour school, or an ASD school.
  2. Naruto is in his last week weaning off Risperidone.. thank goodness the violent cycle was broken. He's doing so well!

  3. my son has been prescribed risperidone

    My son was prescribed risperidone recently to deal with a crisis situation where he appeared to be in an ongoing meltdown which was making him ill - involving hour long violent episodes with short pauses (i've got a new scar on my chin to prove it! ). These were not only putting him and everyone else at risk, but also beginning to make him ill (eg the pauses were due to headaches because of the prolonged tension) so I felt medication was a viable short term option to cease the crisis. We found risperidone worked really quickly and N became calmer within the week.. it just took the edge off what his psychiatrist calls his 'arousal' and made it easier for him to get control of his temper. It is only intended for short term crisis use, so after six weeks we've started to wean Naruto back off the meds, now doing his final week on a quarter of a tablet. He is out of the crisis cycle and doing really well, although the situation at school is very tentative right now and he is only managing one hour per day there. Naruto is 7 and he was taking the same 5mg dose - he's half the size of your son. We did find it helped for short term crisis management. Perhaps it would work with your son if they increase the dose. I know they said they could increase for Naruto if necessary, but the 5mg was enough. mamabear
  4. Met my first DAN-Style parent...

    Hiya. What a shame that he doesn;t know it's possible to autistic and OK :-( Seems really illogical doesn't it. I think it comes from desperation to help our kids. People trying to help their kids will even do things which defy clear logic and common sense if someone says it will help - or - if a 'professional' (real or not) tells them they are doing it wrong and they should do it like this, or they are deliberately making their kids life worse. I tend to blame the professionals who lead them to this rubbish, not parents, who usually are just trying to do what they have been told is best for their kid. Every parent wants thngs to be as good as possible for all our kids. Parents NOT doing what professinals suggest can lead to anything from the disapproval of people with power over our kids lives, all the way to being accused of abuse. For example when my eldest was two I was told teaching her some sign language to support her spoken communication was abuse (!) Of course I just replied that *I think* it's abusive to deny a child a method of communication which could work for them - but what happens to parents who fall for this ######? Desperation. More medicalisation. more normalisation. More snake oils. We live in a country where we think the 'best' thing for disabled fetuses is to kill them off before birth 'for their own good' - working from this basis, snake oil sellers are making a mint from the 'terrible' lives of disabled people, including autistic people (I mean disabled as in the social model sense, not as in that we are personally defective in some way ;-) ) . Mamabear
  5. Medication for temper/violence/aggression

    oh thank you so much I will take a look at these. I just want my son to be happy and feel like I spend my entire life trying to do this so he does not get upset.. but whatever I do is never enough. I am willing to try new things until we find better ways to help him thank you so much
  6. A few of my friends have asked why Naruto is not on any medication. He has been diagnosed with Autistic Spectrum Disorder last December and is six. He is of above average intelligence and has a high vocabulary but far lower levels of receptive understanding and interpretation and doesn;t understand the aocial context of things. When he is unhappy, which can be caused by many things, in particular not getting his own way, he is prone to violence and aggressive behaviour - such as smashing things and throwing everything he can get his hands on including furniture, using and creating weapons and attackng people in a very focussed way and so on - including teachers, nurses etc. obviously we've been working on his behavour for a very long time to try and avoid the outbursts in the first place by doing many things, including ptuting him first in our planning/strategies/activities and using distraction, etc.. His reaction/temper is, so far, more extreme than anyone else/anyone else's kid I've heard of personally. He was initially given a label of conduct Disorder and I suppose he still has that too.. though it sees to be caused by autism related self centred-ness, pickyness, preferences, communication difficulties and so on. He cannot manage in school without a full time support worker and sometimes two. If he were an adult with a severe anger problem which affects their life so badly, wouldnt they be on some kind of medication and therapy? Does anyone know of anything we ought to be doing with our son. i never thought i would ever consider medicating him, but his problems are so profound and I think it must be awful for him (as well as us) for him to be so upset so often... I would be prepared to at least consider it. Thanks for any info, thoughts or ideas anyone can share. Mamabear
  7. a fairly peaceful couple of weeks - one of our now annd then lulls.. wonderful.. I can see how far we've come at times like this :-)

  8. woke up to smashing and crashing... that twitch in the face has started again....

  9. Hello, thanks and help!

    Hi justine1 and thank you for replying to me with such a detailed list of strategies - wow! Yes I think there are some things here we need to work on. we gave up visual timetable for a bit as it wasn't helping because Naruto was trying to use it to control the universe ;-) I think we might not have been using it correctly anyway so need to learn more about this. I smiled when you mentioned timers - we're having trouble with the computer turn taking and the twins so timers are on today's shopping list! Briliant I am glad to hear it's helpful I wondered about it. Sadly I think we;re at the stage where we need to empty his bedroom of toys except soft toys again - we had another try after xmas and new toys arriving but it#s led to a room which looks like a bomb has hit it again. So once again there is no furniture except a bed in there :-( and I need to sort the toys so I will prioritise this in the next day or two- it's a big drain of energy to try and keep srting it. Bed smashing oh I am so sorry I laughed when I read that due to the relief on hearing another person's child has also smashed up beds!!! sorry!! I swear I've never seen anything like this in my life! Yes Naruto also had a period of no bed after breaking two beds and a third mattress in about a week and a half. I then aquired a hospital mattress from health visitor due to it being waterproof and strong and it's been a godsend. He has a bed again now although the mattress went flying again twice yesterday :-( so I am considering moving to sleeping bag from sheets and quilt etc to save me keep lifting mattress and straining putting sheet on it - if this is becoming another regular occurrence. We also need to replace his bedroom door )again) because it's so badly smashed up (also on today's to do list - is is always this never ending aghhhh!) due to us putting him there when he is uncontrollably violent or destructive to limit damage / harm. I have not really done punishment/ penalties but I think we might need to consider using the method you use as it might help. We do give him Pokemon collector's cards for going to school and 10p for following the house rules per day as best he can./ know what though I keep forgetting that one, which won;t be helping so I need to goto your point about consistency and that maybe I let some things slide.
  10. Hello, thanks and help!

    Hi thank you so much for replying to me :-) My son was labelled with Conduct Disorder, when he was referred up for psychiatric assessment (for autism) about a year and a half ago. CD is a severe form of ODD, usually only labelled to teenagers at the stage where they start to use weapons and fire. Naruto doesn't burn things but we have had all our cutlery and knives etc locked away for a couple of years now. Nobody has ever mentioned mediation and I got the impression that it's not possible to medicate him because he has autism :/ I will ask his psychiatrist though. As long as he is happy things are fine, but Naruto seems to really struggle to not be OTT aggression wise when he is unhappy. And unhappiness happens a lot due to not understanding / communication difficulties / being very temperamental due to the autism. :-( mamabear
  11. the bliss of two hours respite with babysitting service :-) Bren rocks and naruto adores him

    1. mamabear

      mamabear

      nice to hear them playing in background. The hot coffee is good too ;-)

    2. mamabear

      mamabear

      DLA care component: Thank you

  12. Why is it such a fight?

    It has been a fight for us also since my son was 2-3 and his behavioural problems began to emerge. We finally got a diagnosis of ASD in December but people like his schoolteachers are still having trouble understanding he has acces needs not that he is nasty. they have been blaming his behaviour on me for ages and can;t seem to snap out of it. this is despite Naruto being a twin and his twin sister in same class is exemplary, they seem to think I must have by miracle managed to parent them differently! I feel like things should get easier now he has a diagnosis but things are a long way from settled yet while we work out how to meet his access nmeeds and how to stop his violence and destruction. my son is in manstream with an IEP and a full time support assistant, but he continues to remain at risk of being parmanently excluded. it is very important to me that he stays in mainstream though :-( mamabear
  13. Direct Payments - respite care

    Hi - I use direct payments myself to employ a personal assistant (due to physical health problems) and for me it's definitely been the best use of care hours. For my autistic son, I have finally got 3 hours per week through social services but they pay a service provider. Previously they have told me you can;t get direct payments for kids but I believe this is not true. I am going to ask again soon as the problem may have been that my son didn;t have any regular supoprt hours like he does now. I would buy the service I am using in anyway, but I'd rather have more control over it and the option to change that if I wish. mamabear
  14. Results of ADOS test

    I think ours took a few months as it wasn't just the ADOS test which was needed for diagnosis of Naruto's ASD, but also a speech and language assessment which took two visits. Naruto has previously has an ADOS test with a private psychologist and she said he was not autistic (!) thank goodness for the NHS keeping it's eye on expertise, as my son's autism is obvious from a mile away and has been since he was one. Mamabear
  15. My happy son is adorable.. I just need to find a way to keep him permanently happy (!)

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